Test Results On Kids

[momtojzsh]

Okay so I was diagnosed a couple of months ago, and so I had 2 of my kids tested(the ones I figured needed it for right now)They are 6 and 7 years old

The tests came back and the doctor said they are both negative.

Anti-endomysial Ab was negative in both

tissue transglutamin IgG and IgA were both <3

IgA was 54 in one and 79 in the other.

Okay so does that mean they don't have it, and will never have it, or should I keep an eye on it and have them retested.I don't trust our primary care doctor at all with any of this, he is completely clueless to all of this.

Thank you for any info!!

[ravenwoodglass]

If the IGA tests, 54 and 79, were total IGA that is pretty low. Do you have the reference ranges? If those were the antigliadin IGA then that would be a pretty high result. If their total IGA is low that can cause a false negative. If the kids seem to have symptoms, either GI or behavioral or growth do give the diet a good strict try as false negatives on kids are even higher than they are for adults.

If they don't have symptoms and you are simply screening then do know that celiac can appear at any age and if they develop any problems they should be retested.

[momtojzsh]

Thanks for you response. I am not sure, there were no reference numbers, that's why I was confused. I tried figuring it out by looking all over the internet but couldn't really get a good answer. I had them tested because they seemed somewhat symptomatic.My son is more with behavioral isues(possible Aspergers) and also seems to have some immunity issues.My daughter had severe FTT and reflux until she was 3. She was tube fed from 8 months old and had to have an amino acid based formula.She is still fairly small and seems somewhat symptomatic(bad moods,doesn't eat well,Leg cramps,dark circles under her eyes, and a few other things) she also seems to avoid most foods that have gluten in them instinctively. I guess I will bring the test results in to my GI when I see her next month and see what she says.

[ravenwoodglass]

Thanks for you response. I am not sure, there were no reference numbers, that's why I was confused. I tried figuring it out by looking all over the internet but couldn't really get a good answer. I had them tested because they seemed somewhat symptomatic.My son is more with behavioral isues(possible Aspergers) and also seems to have some immunity issues.My daughter had severe FTT and reflux until she was 3. She was tube fed from 8 months old and had to have an amino acid based formula.She is still fairly small and seems somewhat symptomatic(bad moods,doesn't eat well,Leg cramps,dark circles under her eyes, and a few other things) she also seems to avoid most foods that have gluten in them instinctively. I guess I will bring the test results in to my GI when I see her next month and see what she says.

Your little girl sounds like me as a child. My family thought I was weird cause I would eat the candles off a birthday cake but not the cake.

Do know that if she is eating a low gluten diet her tests will run a greater risk of false negatives. And false negatives with little ones are not uncommon even if they are on a full gluten diet. Since you are celiac and celiac seems to have multiples family members that will have it do give them a try on the diet when testing is done. Sometimes peds will diagnose based on how well the child does gluten free, and perhaps the affects of adding gluten back in after the child has been gluten-free for a while.