Husbands Enterolab Results

[mcat1234]

I am new to this forum and am looking for some thoughts on my husbands Enterolab report, which I have posted below. He is 53 years old and was diagnosed with osteoporosis at 50 years old. His mother is 87 and has been battling osteoporosis for about 20 years. With all of the vitamins and pills she takes it is still the worst case of osteoporosis that her doctor has ever seen. Now recently his mother is blind from macular degeneration. His mother also had problems with her teeth. When she was pregnant with her first child all of her teeth had to be removed because they deteriorated so badly. Her doctors explanation was that the baby was taking all of her calcium.

I had research the internet for causes of the osteoporosis and learned that it can be caused by the celiac or gluten intolerance. He has some other issues that also have been associated with it, such as gout, restless legs, arthritis, head aches, and problems with his teeth. His teeth are wearing away.

My husband is blessed with a very high metabolism and it would seem he eats enough dairy to provide calcium. So for some reason he is not absorbing it.

I just would like to know if any others with osteoporosis had similar test results and has it improved off of gluten.

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Final Laboratory Report

Date: 5/18/2011

Gluten/Antigenic Food Sensitivity Stool/Gene Panel

Fecal Anti-gliadin IgA 46 Units (Normal Range is less than 10 Units)

Fecal Anti-casein (cow

[ravenwoodglass]

You husbands antibody tests were positive and he has one of the most common celiac associated genes. If he wants to have a doctor derived diagnosis he should at the least get a celiac panel drawn and they may want to do an endoscopy. Blood tests and endos do have fairly high false negative rates so after he is done with all testing he wants to do he should go strictly gluten free.

[RollingAlong]

If he wants further testing for celiac, he needs to keep eating gluten, but he can go ahead and eliminate casein, eggs and soy. These intolerances may be temporary. He can try adding them back at 6 months or so.

My spouse had osteopenia at 47 and the same list of food intolerances. He has been able to add eggs back and small amounts of soy don't seem to bother him either. He doesn't eat a lot of processed food or care for tofu, so I don't know if he could eat a lot of it. Casein does bother him and he is very strict about avoiding gluten. All his celiac tests and endoscopy, were negative.

He is doing very well on a strictly gluten and dairy free version of the Paleo diet - sleeping great, no leg jerks at night, no mouth sores, much more energy and better mood. He is getting plenty of calcium from dark leafy greens.

You might want to look at this book for more info on teeth. The title is silly, but the information is very interesting.

http://www.(Company Name Removed - They Spammed This Forum and are Banned)/Kiss-Your-Dentist-Goodbye-ebook/dp/B00333NCOW

[Debbie B in MD]

My dad has macular degeneration. His father did as well. He is 86, not diagnosed with celiac, but the next time he has blood workthey are goingto do it. At this stage I don't think he woudl go gluten free anyway, but it will be helpful for the rest of us. I am very curious about others with celiac who have macular degeneration or Parkinsons. Both dad and grandfather have/had that too. I think they are both related.

[nora-n]

He does not have the main celiac genes, but there have been several people here with symptoms and DQ2,2. (the main celiac gene is DQ2,5, 0201)

I think he and his mother are very gluten intolerant, but tests may not show ordinary celiac.

The antibodies to eggs, milk and soy are also typical for gluten intolerance.

Note that the tests by Enterolab really ere developed for microscopic colitis, which is troggered by gluten too, but the ordinary tests for celiac do not work for microscolpic colitis. So Dr. Fine developed this test. He is postitive for something going on in the gut.

You can phone his nurse and ask more about that issue, after reading the other articles on his web site.

To add: some months ago someone complained here about the Enterolab test, where he was positive for intolerance to gluten etc. Afterwards he was diagnosed with microscopic colitis, and came over here to complain. We answered and explained that the enterolab tests are mainly for microscopic colitis, and he was positive, and that he had nothing to complain about. So this was settled after the explanation.

So my theory is that there is definitely something going on, and that it is way too narrow to just consider celiac disease. There is something called gluten intolerance which is just as bad, if nor worse. And one has to be just as strict with going gluten free.

In your case, also milk and egg and soy free, and those intolerances are just as important as gluten intolerance.

I myself am very casein intolerant.

[mcat1234]

Just wanted to provide an update. My dear mother-in-law passed away the end of July. She was totally blind from the macular degeneration and we she died from congestive heart failure.

My husband had a colonoscopy by a doctor that was referred to us by the University of Chicago Celiac Disease Center. So that test showed some diverticulitis and 3 polyps. Although, my husband told the doctor about the osteoporosis, the doctor forgot to order the blood tests for Celiac. So then after the colonoscopy, they did the blood tests. They phoned and they must have told my husband that he did not have celiac, because of the blood test. They did not do an endoscopy. I'm going to see if my husband can get a copy of the blood test.

Well, he is willing to try the diet, which we have been trying for the last couple of weeks. However, he hasn't been able to stick with it 100 percent. He often takes his dad out to eat now and finds it too difficult for him to stick to the diet. Plus I don't think he really believes he can stick to it. Bread, muffins, pizza, bagels are like water to him. He doesn't think he can live without them. He has always been able to eat whatever he wants, because of his high metabolism.

Well anyway, we will continue to try the diet the best we can. I am also trying it for myself, which I wrote up in a different post regarding my enterolab results.

The diet has been a lot of hard work. I have been cooking like crazy. I can't tell yet if it helping, because of a few accidental glutens. But I want to continue to give it a good shot. We are hoping it will help one of children who has some health problems.