Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

#*@($ !#*^% Doctor!

thleensd

By thleensd
in Doctors

Recommended Posts

thleensd Enthusiast
thleensd
Posted
  • Author

Speaking of "safe" and clean...We make our bread and the only place we eat out is in an entirely gluten-free cafe. I got lucky-- there is one about 45 minutes away. Just awesome. The first time I ate there, I started to cry....I knew I would be able to eat and not get sick :D

Been there, done that! "You mean I can eat *everything* here?" *tear* .... if I had the energy and money I'd totally open up a cafe!

Can I ask what state/country you're in?

JER due to BDA ... being dicked around? :lol: We kill me. :lol:

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


thleensd Enthusiast
thleensd
Posted
  • Author

My dog's veterinarian spends more time with her than most of the doctors have spent with me.

Yep, JER.

HA! Totally. I wish my doc was my cat's vet!!

IrishHeart Veteran
IrishHeart
Posted

Been there, done that! "You mean I can eat *everything* here?" *tear* .... if I had the energy and money I'd totally open up a cafe!

Can I ask what state/country you're in?

JER due to BDA ... being dicked around? :lol: We kill me. :lol:

:lol: :lol: :lol:

I am in upstate NY! :)

mushroom Proficient
mushroom
Posted

HA! Totally. I wish my doc was my cat's vet!!

No, no - you have to let someone in the family be well treated :P

IrishHeart Veteran
IrishHeart
Posted

You know...my cat's Vet is so loving and caring and leaves no stone unturned when figuring out what ails her....I want her to be MY doctor... :lol:

thleensd Enthusiast
thleensd
Posted
  • Author

No, no - you have to let someone in the family be well treated :P

Oh wait.... haha... I guess I should've been more specific. I wish that my cat's vet (who is awesome) was my doctor, too! lol! :P

IrishHeart Veteran
IrishHeart
Posted

Oh wait.... haha... I guess I should've been more specific. I wish that my cat's vet (who is awesome) was my doctor, too! lol! :P

I thought that was what you meant...! :lol: :lol:

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Marilyn R Community Regular
Marilyn R
Posted

No, no - you have to let someone in the family be well treated :P

Thank you for a good belly laugh! Love your sense of humor. :D

cassP Contributor
cassP
Posted

Me, too...that's when they reach for the pad to write antidepressants and anti-anxiety scripts :rolleyes: ....like that's the answer.

And I totally agree about the whole foods approach. Helped me immensely.

omg TOTALLY!!!!! when i broke down in front of my PCP, telling her that i KNEW that Synthroid was not the right medication for me, she was like " uh... i think there's something else going on here"... she wanted to explore antidepressants!!!!! <_<

i went into a walk in clinic months ago, sobbing- i was in so much pain- my stomach muscles were spasming- it was a STABBING pain.... i told the doc i wanted muscle relaxers.... he was resistant, but instead wanted to push Percocet or Lortab on me- maybe 10 years ago i would have jumped on that- but i was like "NOOOOOOO i dont need to mask the pain and i DONT NEED CONSTIPATION... i NEED MY MUSCLES TO RELAXXXXX" haha turns out i needed Vitamin D, which my doc never explained.

now im almost out of my Xanax .25 that i take twice a week after ive been gasping for air all day- and my Endo doesnt want to give me any, and wants to send me to a pulmonologist- I DONT NEED A PULMONOLOGIST!!!!!! i NEED some relief when im suffering panic attacks from swinging to hyper to hypo and back again... GEEZZZZZZZZ... nurse said i could have meds for palpitation- i said "i CAN HANDLE THE PALPITATIONS, i CANNOT HANDLE THE SUFFOCATING " :angry::angry::angry:

uh.. can u tell im suffering from JER today?

cassP Contributor
cassP
Posted

OMGGGG "BDA"????? u guys are HILARIOUS!!!!! i love it... yes i sometimes suffer from JER & BDA :lol:

someone please send this thread to all of our doctors LOL

Roda Rising Star
Roda
Posted

I buy bob's red mill gluten-free flours. I do consider myself one of the super-sensitives, though. I feel special? :P

>>

Just thought I would throw something out there for you to chew on. I went 8 months chasing down what my problem was starting in Jan. 2010. From every aspect I was gluten free. I was suffering from epigastric/RUQ pain, diarrhea, reflux, fat malabsorption, etc. I didn't think it was gluten cc because that wasn't what my symptoms were before. Many tests later my GI wanted to put me on steriods since my gliadin Igg was still positive. I refused and told him that I would look again at what I was eating and pretty much start from scratch. He did give me a RX for creon which I took for about 3 months during the time I decided to do this. It helped a lot (the RX). What did I discover? I am sensitive to ANY Bob's Red Mill gluten free products. Why? I believe that there is a low level of gluten free oat cc and that was getting me. I knew at 7 months into the gluten free diet I couldn't handle gluten free oats. I reacted so bad, but never gave the cc from then any thought until Aug. 2010. I also found that some main stream products that I previously ate I was no longer able to. I tested out the Bob's again in Jan. of this year and ate some gluten free baked goods from a dedicated gluten free bakery in FL where they used Bob's flours. Within 2-4 days all my symptoms came back and I didn't get over it for a good week later. Just a week ago I caved and ate a few cool ranch doritos with my youngest son. We both paid the price for that one. I started feeling bad the next day but the big D and bloating started 2 days later. My little boy was complaining of a tummy ache too that day and he was having bad mood swings. We are both on the mend now a week later. My reactions have changed. Before I would just get horrible reflux, bloating and constipation. I never thought I would say this but, the former reactions were easier to deal with.. :unsure::P:lol:

IrishHeart Veteran
IrishHeart
Posted

OMGGGG "BDA"????? u guys are HILARIOUS!!!!! i love it... yes i sometimes suffer from JER & BDA :lol:

someone please send this thread to all of our doctors LOL

I don't know, Cass....I met some pretty humorless jerkwads the past few years...I don't think they would get it!! :lol: :lol: :lol: :lol:

IrishHeart Veteran
IrishHeart
Posted

i NEED some relief when im suffering panic attacks from swinging to hyper to hypo and back again... GEEZZZZZZZZ... nurse said i could have meds for palpitation- i said "i CAN HANDLE THE PALPITATIONS, i CANNOT HANDLE THE SUFFOCATING " :angry::angry::angry:

uh.. can u tell im suffering from JER today?

CASS! This is what happened to me for 2 years. I am not saying you are the same as I am, but I just want to tell you...I was put on Synthroid for "hypo" (I was exhausted, losing hair and FAT and puffy. My TSH was 5.3 one day 4.3 the next week....) then, I zoomed to HYPER and jumping out of my skin...my brain buzzing with anxiety and trembling. Heart bursting out of my chest. Insomnia. RAPID weight loss (90 lbs.) plus all the celiac symptoms..It took me a long time to convince another doctor to check my thyroid antibodies...LOW. I was on meds for NO GOOD REASON!!...for 2 years. Turns out, the unDxed celiac was bouncing my TSH all around...but 2 endos could not agree with ME that I was WORSE for taking the meds. :blink:

I went off the meds a year ago and my thryoid functions normally..a steady 2.4 TSH and T3 and T4...normal..

Just my experience but anytime someone posts with this hyper-hypo fluctation, palpitations and feeling of suffocating...I just feel so bad because I had it too. Hope you level off and soon!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. xxnonamexx
      - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      16

      My journey is it gluten or fiber?

      Thanks very interesting I have to see if I should take these 2 vitamins along with my multi and super Vit B complex or if its too much or would hurt me. I don't have any other health issues but would love to see if this improves anything especially to feel stronger build muscle.
    2. Roses8721
      - Roses8721 replied to Roses8721's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      15

      GI DX celiac despite neg serology and no biopsy

      Neg for HLA dq8 and dq2
    3. knitty kitty
      - knitty kitty replied to Roses8721's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      15

      GI DX celiac despite neg serology and no biopsy

      How can you be negative for HLA? What markers did you have here? Curiouser and curiouser...
    4. knitty kitty
      - knitty kitty replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      16

      My journey is it gluten or fiber?

      Yes, I have noticed a big difference. I had serious malnutrition symptoms that my doctors couldn't figure out, so they blamed me, said I was "depressed" and washed their hands of me. At home, I could feel myself dying, and, with nothing left to lose, I relied on knowledge from my microbiology and nutrition classes at university. I went gluten free. I...
    5. Wheatwacked
      - Wheatwacked replied to Roses8721's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      15

      GI DX celiac despite neg serology and no biopsy

      Yes, I would be good with the diagnosis. While NCGS isn't a malabsorptive disease like celiac disease, inflammation and restricted diets can impact Vitamin D levels. Recovery from either disease requires avoiding gluten. celiac disease may take a longer recovery than NCGS because in celiac disease there is intestional damage to the cilia that has...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      132,746
    • Most Online (within 30 mins)
      7,748
    CarlyRenee
    Newest Member
    CarlyRenee
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • xxnonamexx
      My journey is it gluten or fiber?

      By xxnonamexx · Posted

      Thanks very interesting I have to see if I should take these 2 vitamins along with my multi and super Vit B complex or if its too much or would hurt me. I don't have any other health issues but would love to see if this improves anything especially to feel stronger build muscle.
    • Roses8721
      GI DX celiac despite neg serology and no biopsy

      By Roses8721 · Posted

      Neg for HLA dq8 and dq2
    • knitty kitty
      GI DX celiac despite neg serology and no biopsy

      By knitty kitty · Posted

      How can you be negative for HLA?   What markers did you have here? Curiouser and curiouser...  
    • knitty kitty
      My journey is it gluten or fiber?

      By knitty kitty · Posted

      Yes, I have noticed a big difference.  I had serious malnutrition symptoms that my doctors couldn't figure out, so they blamed me, said I was "depressed" and washed their hands of me.  At home, I could feel myself dying, and, with nothing left to lose, I relied on knowledge from my microbiology and nutrition classes at university.  I went gluten free.  I started taking vitamins according to my nutritional deficiency symptoms.  Vitamins worked.  My health improved.  Now I'm here to help others.  Celiac disease causes malabsorption which results in malnutrition.  Doctors don't recognize the symptoms of Celiac disease and malnutrition. Benfotiamine has been shown to promote intestinal healing and digestion, improves diabetes and neuropathy and much more.  TTFD (Thiamax or TTFD-B1 Max) helps with brain function, neuropathy and lots more.  Every cell in the body needs thiamine to make energy so the cell can function.  Without sufficient thiamine, mitochondria die.  Every cell also needs thiamine and the other B vitamins to make life sustaining enzymes.  Thiamine has antiviral and antibacterial properties.   We may not be getting sufficient thiamine from our diets if we eat a lot of carbohydrates.  The more carbs one eats the more thiamine is needed to process them into energy.  If there's insufficient thiamine, the body stores the carbs as fat. This is called high calorie malnutrition.   We may not be getting sufficient thiamine from our diets if we eat a gluten free diet.  Gluten free flours and processed foods are not required to be enriched nor fortified with vitamins and minerals like their gluten containing counterparts.  Meats are the best sources of thiamine, but some veggies (beans, potatoes, squash) and fruits (citrus and berries) contain some thiamine.    Explore thiamine more here: https://hormonesmatter.com/thiamine-deficiency-causes-problems/
    • Wheatwacked
      GI DX celiac despite neg serology and no biopsy

      By Wheatwacked · Posted

      Yes, I would be good with the diagnosis.  While NCGS isn't a malabsorptive disease like celiac disease, inflammation and restricted diets can impact Vitamin D levels.  Recovery from either disease requires avoiding gluten.  celiac disease may take a longer recovery than NCGS because in celiac disease there is intestional damage to the cilia that has to self repair in addition to the nutritional deficiencies.   Nonceliac Gluten Sensitivity Dr. Weston Price's research in the 1930s showed that diets rich in minerals and fat-soluble vitamins (A, D3, K2) promoted well-mineralized teeth, while deficiencies led to weaker enamel. Fatty liver, Intermittent diarrhea, Severe abdominal distension Choline deficiency causes abnormal deposition of fat in the liver, which results in a condition called nonalcoholic fatty liver disease. In some people, choline deficiency causes muscle damage. https://lpi.oregonstate.edu/mic/other-nutrients/choline    Choline is a large part if the bile salts for fat digestion, Acetycholine, a neural transmitter, mitochondria membrane structure, and along with folate, B12, and B6 recycles homocysteine  High homocysteine can damage artery linings. Low vitamin D levels are associated with increased symptoms of depression and anxiety,  autoimmune diseases and most of your symptoms.    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.