Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Sick Or Starving/any Advice?


DianeSeekingInfo

Recommended Posts

DianeSeekingInfo Rookie

Have you considered smoothies with pea protein and/or hemp protein?

Thanks so much for the replies. I have tried both pea protein and hemp protein (both is small quantities to start, etc.--never "over did it") and have similar reaction as to soy--not as bad as gluten and corn, but still a day of suffering with D, gas, cramping, nausau, etc. until it moves through. I can do limited amounts of hulled hemp seeds and chia seeds a day, which I will dutifully maintain. When I add more/too much these I also have problems.

Am determined to keep trying, just worried I'm still not getting enough protein and this could prove detremental in long run, etc.

Thanks again. The information and knowledge you guys pass out here every day is truly remarkable, empowering and life changing. Thanks again.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Marilyn R Community Regular

I'm sorry we have not been able to give you more help. We have covered a lot of foods already that you cannot eat. Perhaps we could help you better if you list what your DO eat currently? There are many different vegetables out there and maybe there are some new ones you could try to give you more variety/nutrition?

I second GFManna, it would help if you list what hyou eat. The other thing that lept out out me was that you couldn't tolerate cocunut milk. Could it be an additive in the canned milk that you can't handle? (I think almost all of us have had problems with chemical additives.

I know it's really difficult to change from a vegan diet. I found chilled Italian canned tuna in oil on top of greens and hearts of palm with a squirt of fresh lemon or lime palatable. (You can add a miriad of other fresh vegetables, and even fruit.) It's more importantant to heal than to stick to old ways of doing things or old eating habits. :(

chasbari Apprentice

I did a quick review but not all the way back on this. Have you tried a coconut kefir to help with gut flora? I know you want to/ have to stay pretty much vegan and don't tolerate many things but I wonder if, as I seemed to, you are not tolerating much because the gut flora is so out of whack. Soy hurt me worse than gluten. I think I probably suggested this already but Elaine Gottschall's book, "Breaking the Vicious Cycle" has a lot of good info past the whole specific carbohydrate diet angle and is a pretty fast read. It may not be the answer for you but might have some clues in there to help you get to the next step.

DianeSeekingInfo Rookie

I did a quick review but not all the way back on this. Have you tried a coconut kefir to help with gut flora? I know you want to/ have to stay pretty much vegan and don't tolerate many things but I wonder if, as I seemed to, you are not tolerating much because the gut flora is so out of whack. Soy hurt me worse than gluten. I think I probably suggested this already but Elaine Gottschall's book, "Breaking the Vicious Cycle" has a lot of good info past the whole specific carbohydrate diet angle and is a pretty fast read. It may not be the answer for you but might have some clues in there to help you get to the next step.

Thanks very much for these two new ideas. I agree the most important thing is to heal and move forward. Will keep trying, exploring and learning. Excellent advice, as always. You guys are so smart and helpful--thanks so much!!!!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Flash1970 replied to Ginger38's topic in Related Issues & Disorders
      7

      Shingles - Could It Be Related to Gluten/ Celiac

    2. - trents replied to Roses8721's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      GI DX celiac despite neg serology and no biopsy

    3. - Roses8721 replied to Roses8721's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      GI DX celiac despite neg serology and no biopsy

    4. - Ginger38 replied to Ginger38's topic in Related Issues & Disorders
      7

      Shingles - Could It Be Related to Gluten/ Celiac

    5. - Scott Adams replied to Silk tha Shocker's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Help


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,480
    • Most Online (within 30 mins)
      7,748

    Randi44
    Newest Member
    Randi44
    Joined

  • Celiac.com Sponsor (A20):



  • Celiac.com Sponsor (A22):




  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Flash1970
      You might try Heallix.  It's a silver solution with fulvic acid. I just put the solution on with a cotton ball.  It seemed to stop the nerve pain. Again,  not in your eyes or ears.   Go to heallix.com to read more about it and decide for yourself Also,  I do think nerve and celiac combined have a lot to do with your susceptibility to shingles breaking out. 
    • trents
      Celiac disease requires both genetic potential and a triggering stress event to activate the genes. Otherwise it remains dormant and only a potential problem. So having the genetic potential is not deterministic for celiac disease. Many more people have the genes than actually develop the disease. But if you don't have the genes, the symptoms are likely being caused by something else.
    • Roses8721
      Yes, i pulled raw ancetry data and saw i have 2/3 markers for DQ2.2 but have heard from friends in genetics that this raw data can be wildly innacurate
    • Ginger38
      Thanks, I’m still dealing with the pain and tingling and itching and feeling like bugs or something crawling around on my face and scalp. It’s been a miserable experience. I saw my eye doc last week, the eye itself was okay, so they didn’t do anything. I did take a 7 day course of an antiviral. I’m hoping for a turnaround soon! My life is full of stress but I have been on / off the gluten free diet for the last year , after being talked into going back on gluten to have a biopsy, that looked okay. But I do have positive antibody levels that have been responsive  to a gluten free diet. I can’t help but wonder if the last year has caused all this. 
    • Scott Adams
      I don't think any apps are up to date, which is exactly why this happened to you. Most of the data in such apps is years old, and it doesn't get updated in real time. Ultimately there is no substitution for learning to read labels. The following two lists are very helpful for anyone who is gluten sensitive and needs to avoid gluten when shopping. It's very important to learn to read labels and understand sources of hidden gluten, and to know some general information about product labelling--for example in the USA if wheat is a possible allergen it must be declared on a product's ingredient label like this: Allergens: Wheat.      
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.