Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Has Any Of The Older Member ?


Karl Otto

Recommended Posts

Karl Otto Explorer

Has any of the older members compared their younger photos of themselves with their current photo? The reason, I bring this up is to compare your original self with your current self.

Yesterday, with the help of my digital files, I collected my older photos in time sequences. When, I was 17, 18, 19, 20, 21, 22, etc... I have noticed how thin, I was back in those days. In some of the years, I was shocked at what I looked like back then. When, I was 22 years old, I was in the US Army on active duty. I was doing exercise each day and doing some weight lifting. I was eating right according to the US Army. I felt sick after every meal back then but, I got tired of the military clinical doctors telling me, I was ok. I was very thin, small chest, no muscle tone on my body, and very under weight all the time. 5 feet, 11 inches tall but, only weighed 125 lbs soaken wet. Now, here I am, 57 years old with a waist size of 31 - 32 and only weighing in at 124 lbs again. I am the same condition as I was back then, again. My picture at the age of 27 and 28 year old showed that my hair was almoste completely grey by the age of 28. To me the signs and symptoms have always been there but, again, no doctor had ever thought to give me a blood tests to find out what was going on over all these years. Doctors gave me, anxiety med, seizure med, heart meds, Kidney med, vitamins, but, none every though of give me a battery of blood tests. I just do not understand it ! Then, the doctors at the emergency room on my 50th birthday decided to give me a battery of blood tests. To determine, I had Celiac Disease and Hyperinsulinism Hypoglycemia. I do not know if I am going to be 60 year old or not. Too much damage has been done by this time in my life. I appriciated the diagnoses of Celiac Disease and Hyperinsulinism Hypoglycemia but, why does it take so long to find this out? I would never have passed this along to my children had I know this information at the age of 18. I would never have thought about having any children at all. I would not have wanted to pass these diseases on to innocent little children.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



tarnalberry Community Regular

I was overweight until I started getting regular exercise the last year in college. Then I've varied here and there, but not more than +/- 10 pounds. (Though t took a few months to get back to that after the baby.)

ravenwoodglass Mentor

Karl you can't fixate on the past and the what may have beens. You need to focus on going forward. There is no reason why if you follow the diet you can not return to a reasonably healthy condition and live to 60 or well beyond.

There are quite of few of us who were as sick or even more sick than you and have returned to health. Eat whole fresh foods, exercise at levels that you can even if it is only walking to the corner and back to start or lifting a 1 lb can 4 or 5 times. If you convince yourself that you will never recover then you won't. Let go of the past all it is doing is hurting you.

I hope you don't tell your children that 'if I knew I wouldn't have had kids' because that could hurt them deeply. Everyone has value no matter how differently abled they are.

Karl Otto Explorer

I agree with you. We shouldn't be looking back to the past. But, in my case the past is repeating itself. There it is relavent to this situation. I also agree that the Celiac Disease part of my life has done and is doing better. However, the Hyperinsulinism Hypglycenia is not doing well. The second disease can kill me before, I reach the age of 60 years old. Notice the list on my signature ?

chasbari Apprentice

I do understand why you are wanting to get some context by looking back. If I could suggest that you check out something that might be helpful I would say go look up Robb Wolf's Paleo site. They are doing some incredible things with blood sugar derangement issues. From where I was nearly four years ago to now, I would try to be encouraging to you. I was ready to be done back then. I have never felt better now. I am currently taking a break from having worked in the shop all day doing prep work to weld a prototype together. Four years ago all I could do was sit in a chair staring at the ceiling most days and could barely walk. I am very strict paleo and very low, low carb with lots of good fats. Things have been healing on me that doctors told me were irreversible. You, like all of us once properly diagnosed, are in glorious days of grace. I know it's a battle, especially when you look back and think what could have been if you had only known. I understand that completely. It takes time to heal body, mind and spirit. Be patiently impatient in these new found days of grace.

Karl Otto Explorer

I have almost forgot for, the last 5 years, I have not been able to tolerate fats. When ever, I try to boil chicken meat, breast, thighs, or drump sticks. The fat boil out of the meat but, I get really nausea if, I eat the meat. I found that whether the meat is pork, chicken, or beef. It oils or fats come out of it or, it is greasey, these fats and oils make me really sick.

Also, if any spices are used in preparing my food other than Iodine Salt, I also get really sick within minutes. My stomach becomes upset and burns. If I eat only bland foods, I have absolutely no problems at all. If I stay away from all oils and fats I am just fine. The only oil, my body wants or tolerates is Olive Oil only !

Any ideals what causes this?

chasbari Apprentice

Have you had your gall bladder function checked out?

I have a working theory on the whole gut flora damage thing going on in my head but am no researcher. I happen to think that disruption of a healthy gut flora may be a cause of many problems ultimately. Don't know where this fits for you. I know I wasn't digesting fats early on and had a problem with what now seems to be SIBO and yeast overgrowth. I had years of antibiotic overuse way back when and although I was able to live with it while not feeling great, it was a dose of antibiotics that really put me in a complete health tailspin back in 2004. I keep mentioning this to whoever I respond to but Elaine Gottschall's book "Breaking the vicious cycle" is a real eye opener and has helpful explanations of why you need to limit carbs while healing. I did some extraordinary things with some raw foods in order to get my gut flora healthier. It is hard to explain exactly what I did but all I know is that I have never felt this good and I am fifty. This was after a lifetime of always being the sick skinny little kid. Keep digging for the answers.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Karl Otto Explorer

I used to have a yeast like infection on the entire length of my tongue. I do not know how it got there since, I did not do anything nasty with it. I took some anti-biotics that the doctor gave me. It went away but, the antibiotics did make me so sick, I had to go to the emergecy room after 4 days of taking them. Today, 5/27/2011 I went into a Hypoglycemic state. My glucose levels dropped all the way down to 63 mg/dl. I was having all sorts of problems at that point. Celiac Disease was the furtherest from my mind at that moment.

However, I can and do tolerate Extra Virgin Olive Oil just fine. I put it on top of my food with every meal. 1 Table spoon full. So, it is not all oils that bother me. At lease, I can eat olive oil without problems.

ravenwoodglass Mentor

Sorry you had a hypo incident today although 63 is not dangerously low it may have been low enough to make you feel a bit off. Have you spoken with a dietian to help get a handle on the ups and lows? You should be able to get a referral from your doctor. I do know that with hypoglycemia you need to eat both carbs and protein frequently to keep things in balance. If you use insulin or other diabetic meds do ask for guidance as when and how to eat needs to be well regulated.

chasbari Apprentice

I used to have a yeast like infection on the entire length of my tongue. I do not know how it got there since, I did not do anything nasty with it. I took some anti-biotics that the doctor gave me. It went away but, the antibiotics did make me so sick, I had to go to the emergecy room after 4 days of taking them. Today, 5/27/2011 I went into a Hypoglycemic state. My glucose levels dropped all the way down to 63 mg/dl. I was having all sorts of problems at that point. Celiac Disease was the furtherest from my mind at that moment.

However, I can and do tolerate Extra Virgin Olive Oil just fine. I put it on top of my food with every meal. 1 Table spoon full. So, it is not all oils that bother me. At lease, I can eat olive oil without problems.

Yeast infections can be secondary to antibiotic use and are not limited to females. Much more common that I think most realize. Of course, this plays right into my theory of antibiotic overuse and its impact on the function of the gut flora. It's a potential origin for the breakdown of the function that may lead to many other complications. Hope you get to feeling better.

celiac-mommy Collaborator

I used to have a yeast like infection on the entire length of my tongue. I do not know how it got there since, I did not do anything nasty with it.

That is offensive. Please refrain.

cap6 Enthusiast

I sure hope we live past 60. I am 60 now, diagnosed at 59 and health is returning slowly but steadily. I will admit that I was so darn sick that I was scared I wouldn't make it to 60 so I stayed up till 12:01 on my b'day just to be sure! :rolleyes: I now feel so good that I intend to pack on quite a few more years doing what I love - hiking, camping & kayaking! Life is good. :)

mushroom Proficient

If we didn't I sure would be six feet under. :rolleyes:

cap6 Enthusiast

If we didn't I sure would be six feet under. :rolleyes:

lol. Cheers mushroom! Here's to old age. :D

mushroom Proficient

lol. Cheers mushroom! Here's to old age. :D

I didn't say anything about OLD!!! :P

navigator Apprentice

I'n 53, just newly diagnosed, with two terrific daughters. Being diagnosed earlier would not have affected my plan to have children. It would just have made me fight to have them tested when they were younger. One of my daughters was diagnosed just over two years ago following an admission into the intesive care ward as she was so bad. Two and a half years of strict gluten free (not only food but toiletries, make up etc) and she is a healthy vibrant young woman trying to start her own family. My other daughter has just been tested and we're waiting on results.

cap6 Enthusiast

I didn't say anything about OLD!!! :P

LOL !! :lol:

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,945
    • Most Online (within 30 mins)
      7,748

    Miyasato
    Newest Member
    Miyasato
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Mari
      Hi Jmartes71 That is so much like my story! You probably know where Laytonville is and that's where I was living just before my 60th birthday when the new Dr. suggested I could have Celiacs. I didn't go on a gluten challange diet before having the Celiac panel blood test drawn. The results came back as equivical as one antibody level was very high but another, tissue transaminasewas normal. Itdid show I was  allergic to cows milk and I think hot peppers. I immediately went gluten free but did not go in for an endoscopy. I found an online lab online that would do the test to show if I had a main celiac gene (enterolab.com). The report came back that I had inherited a main celiac gene, DQ8, from one parent and a D!6 from the other parent. That combination is knows to sym[tons of celiac worse than just inheriting one main celiac gene. With my version of celiac disease I was mostly constipated but after going gluten-free I would have diarrhea the few times I was glutened either by cross contamination or eating some food containing gluten. I have stayed gluten-free for almost 20 years now and knew within a few days that it was right for me although my recovery has been slow.   When I go to see a  medical provide and tell them I have celiacs they don't believe me. The same when I tell them that I carry a main celiac gene, the DQ8. It is only when I tell them that I get diarrhea after eating gluten that they realize that I might have celiac disease. Then they will order th Vitamin B12 and D3 that I need to monitor as my B12 levels can go down very fast if I'm not taking enough of it. Medical providers haven't been much help in my recovery. They are not well trained in this problem. I really hope this helps ypu. Take care.      
    • knitty kitty
    • DebJ14
    • knitty kitty
      @DebJ14, You said "husband has low platelets, bruises easily and gets bloody noses just from Fish Oil  He suggested he take Black Cumin Seed Oil for inflammation.  He discovered that by taking the Black Seed oil, he can eat carbs and not go into A Fib, since it does such a good job of reducing inflammation."   I don't think black seed oil is lowering inflammation.  It's lowering blood glucose levels. Black cumin seed lowers blood glucose levels.  There's a connection between high blood glucose levels and Afib.    Has your husband been checked for diabetes?   Must Read: Associations of high-normal blood pressure and impaired fasting glucose with atrial fibrillation https://pubmed.ncbi.nlm.nih.gov/36750354/  
    • knitty kitty
      Healthy Omega Three fats.  Olive oil or flaxseed oil, oily fish, fatty cuts of meat.   Our bodies run much better on burning fats as fuel.  Diets based on carbohydrates require an increased amount of thiamine to process the carbs into fuel for the body.  Unfortunately, thiamine mononitrate is used to enrich rice.  Thiamine mononitrate is relatively unusable in the body.  So a high carb diet can further decrease thiamine stores in the body.  Insufficient thiamine in the body causes the body to burn body fat and muscle for fuel, so weight loss and muscle wasting occurs.  Those extra carbohydrates can lead to Candida (often confused with mold toxicity) and SIBO (Small Intestinal Bacterial Overgrowth).   Losing weight quickly is a symptom of thiamine insufficiency.  Muscle wasting is a symptom of thiamine insufficiency.  I lost sixty pounds in a month.   Having difficulty putting weight on and keeping it on is a symptom of thiamine insufficiency.   The AIP diet works because it eliminates all grains and grasses, rice, quinoa, all the carbs.  Without the carbs, the Candida and SIBO get starved and die off.  Easy way to change your microbiome is to change what you feed it.  With the rowdy neighbors gone, the intestine can heal and absorb more nutrients.   Supplementing with essential vitamins and minerals is beneficial.  Talk to your doctor and nutritionist.  Benfotiamine is a form of thiamine that promotes intestinal healing.  The eight B vitamins are water soluble, so if you don't need them, they can be gotten rid of easily.   Night shades are excluded on the AIP diet.  Potatoes, tomatoes, peppers and eggplant are not allowed on the AIP diet.  They contain alkaloids that promote "a leaky gut".  Benfotiamine can help here. Sweet potatoes are avoided because they contain thiaminases, chemicals that break thiamine so that the body cannot use it.   The AIP diet has helped me.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.