Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Is It Possible To Test Negative Then Get A Positve

redheadsmom

Recommended Posts

redheadsmom Rookie
redheadsmom
Posted

The more research I have been doing over the last few weeks is all pointing to me having Celiac. I had blood tests done yesterday and am waiting for the results. I was tested for Celiac via blood work about 4-5 years ago and it was negative so I was wondering if it's possible to test negative and then a few years later test positive? I also had an endoscopy done about 5 years ago because I was having severe heartburn and was diagnosed with GERD and nothing was said about Celiac after the endoscopy. I'm actually hoping I test positive so everything I have been dealing with for 15 years makes sense!

Jessica

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


mushroom Proficient
mushroom
Posted

Yes it is completely possible to test negative earlier and positive later. The testing results are graded so that a small level of antibodies is negative, a moderate amount is mildly "positive" and everything over a certain number if positive. So you couldl have been in early stages when you were first tested and then become more reactive farther down the line, and hence now diagnosable. The testing process is not perfect by any means, and many gluten intolerants will never test positive to the current celiac tests but nevertheless cannot eat gluten. So even if your current tests are also negative, you should try eating gluten free and see if it works for you. :)

Roda Rising Star
Roda
Posted

Yes it is definately possible. My now 6 year old tested negative in Nov. 2008 after I was diagnosed. Fast forward two years and he tested positive in Nov. 2010.

Judy3 Contributor
Judy3
Posted

Raising hand... negative for years, positive in 2010

jemms Apprentice
jemms
Posted

Judy,

did you have to start eating gluten again for the results to show positive? Thanks!! :)

Judy3 Contributor
Judy3
Posted

Judy,

did you have to start eating gluten again for the results to show positive? Thanks!! :)

I didn't go gluten free until after the diagnosis in 2010, my initial tests still showed negative (not sure which ones) but my biopsies and genetic tests showed Celiac. So I went gluten free that day. In the past when they did the tests that came back negative I had been sick for a month or more and hadn't eaten much but cottage cheese and jello for a month so I was actually gluten free and didn't realize it.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,782
    • Most Online (within 30 mins)
      7,748
    BH1951
    Newest Member
    BH1951
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Who's Online (See full list)

    • There are no registered users currently online
  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • nanny marley
      Manitol and mri

      By nanny marley · Posted

      Hi I've been told I need a MRI on my bowels , I was booked for a colonoscopy, but because of my sever back issues and trapped nerve it can't be done , the nurse told me I will have to have a manitol drink a hour before the scan , I'm just a bit worried has I have issues with sweeteners like even a little,  I get a weird throat and ears and I've read it is a similar substance , not sure if anyone has had one of these scans or could give me some advise on the drink prep thanks in advance 😄
    • Colleen H
      Ibuprofen

      By Colleen H · Posted

      Ok thank you.  Me either 
    • Colleen H
      Celiac attack confusion and anxiety

      By Colleen H · Posted

      Hi all ! Can a celiac attack be so intense that it causes your entire body to work in reverse? Meaning really bad pain,  neuropathy and muscle,  jaw pain,  the stomach issues , Horrible anxiety and confusion??  I had a Tums and you would think I ate poison. My jaw and stomach did not like it . Not the norm for me. Things that are simple are just out of control. Anyone ever have this happen??  I'm trying to figure out what I ate or did to bring on a celiac like attack. I had an idea before but yesterday I didn't have any gluten unless it was in a medication ?! Any positive suggestions ??  Thank you 
    • Scott Adams
      Gluten free stuff

      By Scott Adams · Posted

      The following two lists are very helpful for anyone who is gluten sensitive and needs to avoid gluten when shopping. It's very important to learn to read labels and understand sources of hidden gluten, and to know some general information about product labelling--for example in the USA if wheat is a possible allergen it must be declared on a product's ingredient label like this: Allergens: Wheat.      
    • trents
      Gluten free stuff

      By trents · Posted

      Tammy, in the food industry, "gluten free" doesn't mean the same thing as "no gluten". As Scott explained, the FDA (Food and Drug Administration) allows food companies to use the "gluten-free" label as long as the product does not contain more than 20 ppm (parts per million) of gluten. This number is based on studies the FDA did years ago to determine the reaction threshold for those with celiac disease. And the 20 ppm figure works for the majority of celiacs. There are those who are more sensitive, however, who still react to that amount. There is another, stricter standard known as "Certified Gluten Free" which was developed by a third party organization known as GFCO which requires not more than 10 ppm of gluten. So, when you see "GFCO" or "Certified Gluten Free" labels on food items you know they are manufactured with a stricter standard concerning gluten content. Having said all that, even though you may read the disclaimer on a food item that says the spices may contain wheat, barley or rye (the gluten grains), you should be able to trust that the amount of gluten the spices may contain is so small it allows the total product to meet the requirements of gluten free or certified gluten free labeling. I hope this helps.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.