Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Hypothyroid


sweetpea

Recommended Posts

sweetpea Rookie

I've been gluten-free for 3 years. I also have a pituitary microadenoma and bloodwork shows me to be hyperthyroid. However,I've been either pregnant or nursing since July '08, and the endo says he's going to wait to look further into the hyperthyroid until I'm done nursing my 2nd daughter. My symptoms have gotten really bad though: tired, weak, easily winded, heat intolerant, losing my hair. The only symptom I don't have is weight loss, even though I'm overweight! Anyone else have a similar issue that can offer some advice? Thanks!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



rosetapper23 Explorer

Why is your doctor waiting to treat you? I'm sorry....but your health is very important, and being hyperthyroid is very serious. If it means weaning your daughter immediately, I think you should consider doing so. PLEASE, get the medical help you need NOW! I can't believe your doctor is waiting--this can very quickly become a very serious situation.

GFinDC Veteran

Hmm, which one is it, hypo-thyroid (low thyroid hormone levels) or hyper-thyroid (high thyroid hormone levels) ?

Weight gain can be a symptom of hypo-thyroid, but weight loss is more typical of hyper-thyroid.

With hyper-thyroid people can also have racing heart rates, nervousness, shakiness, high blood-pressure, excitability, anger, hot etc etc.

Hypo-thyroid symptoms include lethargy, low blood pressure, weight gain, mental confusion, tiredness, cold, insomnia (with both actually), etc, etc.

They are both serious conditions and you should get some treatment or adjust your diet if needed.

sweetpea Rookie

I haven't had any symptoms until the last two months, which is why he has been waiting - he doesn't even know that I've been having symptoms. (I plan to call him tomorrow.) Weaning isn't a simple thing when my daughter doesn't tolerate formula - even the $50 a can hypoallergenic kind. When we give her formula she vomits and gets dehydrated. My milk supply is a little low so we were giving her one bottle a day - which we had to switch to using donated breastmilk. But there's no way I could get enough donated breastmilk to feed her if I weaned. I'm hoping he can treat the thyroid while I breastfeed.

sweetpea Rookie

My hormone levels would indicate hyperthyroid. I believe my last TSH level was .27 but it's been as low as .07

I know weight loss is usually typical w/ it, but it's also usually typical w/ untreated celiac. I had weight gain before I knew I had celiac, so I have a history of having opposite symptoms.

rosetapper23 Explorer

Thyroid symptoms can be really strange. I get exactly the same symptoms whether I'm hyper- or hypothyroid, so I've always had to get tests to determine what was actually going on. Because I have Hashimoto's, it took about two years for the up-and-down thyroid situation to clear up. However, you are very brave to tolerate such horrible symptoms (been there!) and a good mother to place your baby's health above your own. Hopefully, your doctor will work with you to resolve your thyroid issues very soon. Good luck! And please let us know how things turn out, okay?

sweetpea Rookie

I'll let you know what the endo says.

Do you know how they test for Hashimoto's or Grave's disease. Is it a blood test?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



rosetapper23 Explorer

Yes, it's a simple blood test. Good luck!

Laura

  • 1 month later...
beachbirdie Contributor

I'll let you know what the endo says.

Do you know how they test for Hashimoto's or Grave's disease. Is it a blood test?

Yes, simple blood test, looking for antibodies. Hopefully they will also check your levels of free thyroid hormone, or else they are only getting part of the picture.

Are you currently on any thyroid meds?

You really need a good going over for this. A low TSH, by itself, does not necessarily indicate hyperthyroid. You have something going on with your pituitary, and in that case a low TSH could be unrelated to a thyroid condition. In Central Hypothyroidism, for example, your pituitary will produce very little TSH, which will cause the thyroid to produce very little hormone. But it is the pituitary that is off, not the thyroid.

In that case, you could be hypothyroid even with a low TSH.

Thyroid can be complicated. Both hyper- and hypothyroid have many crossover symptoms. For example, I had horrible anxiety and panic attacks, elevated heart rate, insomnia when I first started having problems. Turned out I was hypothyroid, NOT hyper.

Good luck to you.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to pothosqueen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      16

      Positive biopsy

    2. - knitty kitty replied to Jordan Carlson's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Fruits & Veggies

    3. - knitty kitty replied to pothosqueen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      16

      Positive biopsy

    4. - trents replied to pothosqueen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      16

      Positive biopsy

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,016
    • Most Online (within 30 mins)
      7,748

    HONEYSUCKLE
    Newest Member
    HONEYSUCKLE
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      In the study linked above, the little girl switched to a gluten free diet and gained enough weight that that fat pad was replenished and surgery was not needed.   Here's the full article link... Superior Mesenteric Artery Syndrome in a 6-Year-Old Girl with Final Diagnosis of Celiac Disease https://pmc.ncbi.nlm.nih.gov/articles/PMC6476019/
    • knitty kitty
      Hello, @Jordan Carlson, So glad you're feeling better.   Tecta is a proton pump inhibitor.  PPI's also interfere with the production of the intrinsic factor needed to absorb Vitamin B12.  Increasing the amount of B12 you supplement has helped overcome the lack of intrinsic factor needed to absorb B12. Proton pump inhibitors also reduce the production of digestive juices (stomach acids).  This results in foods not being digested thoroughly.  If foods are not digested sufficiently, the vitamins and other nutrients aren't released from the food, and the body cannot absorb them.  This sets up a vicious cycle. Acid reflux and Gerd are actually symptoms of producing too little stomach acid.  Insufficient stomach acid production is seen with Thiamine and Niacin deficiencies.  PPI's like Tecta also block the transporters that pull Thiamine into cells, preventing absorption of thiamine.  Other symptoms of Thiamine deficiency are difficulty swallowing, gagging, problems with food texture, dysphagia. Other symptoms of Thiamine deficiency are symptoms of ADHD and anxiety.  Vyvanse also blocks thiamine transporters contributing further to Thiamine deficiency.  Pristiq has been shown to work better if thiamine is supplemented at the same time because thiamine is needed to make serotonin.  Doctors don't recognize anxiety and depression and adult onset ADHD as early symptoms of Thiamine deficiency. Stomach acid is needed to digest Vitamin C (ascorbic acid) in fruits and vegetables.  Ascorbic acid left undigested can cause intestinal upsets, anxiety, and heart palpitations.   Yes, a child can be born with nutritional deficiencies if the parents were deficient.  Parents who are thiamine deficient have offspring with fewer thiamine transporters on cell surfaces, making thiamine deficiency easier to develop in the children.  A person can struggle along for years with subclinical vitamin deficiencies.  Been here, done this.  Please consider supplementing with Thiamine in the form TTFD (tetrahydrofurfuryl disulfide) which helps immensely with dysphagia and neurological symptoms like anxiety, depression, and ADHD symptoms.  Benfotiamine helps with improving intestinal health.  A B Complex and NeuroMag (a magnesium supplement), and Vitamin D are needed also.
    • knitty kitty
      @pothosqueen, Welcome to the tribe! You'll want to get checked for nutritional deficiencies and start on supplementation of B vitamins, especially Thiamine Vitamin B 1.   There's some scientific evidence that the fat pad that buffers the aorta which disappears in SMA is caused by deficiency in Thiamine.   In Thiamine deficiency, the body burns its stored fat as a source of fuel.  That fat pad between the aorta and digestive system gets used as fuel, too. Ask for an Erythrocyte Transketolace Activity test to look for thiamine deficiency.  Correction of thiamine deficiency can help restore that fat pad.   Best wishes for your recovery!   Interesting Reading: Superior Mesenteric Artery Syndrome in a 6-Year-Old Girl with Final Diagnosis of Celiac Disease https://pubmed.ncbi.nlm.nih.gov/31089433/#:~:text=Affiliations,tissue and results in SMAS.  
    • trents
      Wow! You're pretty young to have a diagnosis of SMA syndrome. But youth also has its advantages when it comes to healing, without a doubt. You might be surprised to find out how your health improves and how much better you feel once you eliminate gluten from your diet. Celiac disease is an autoimmune disorder that, when gluten is consumed, triggers an attack on the villous lining of the small bowel. This is the section of the intestines where all our nutrition is absorbed. It is made up of billions of tiny finger-like projections that create a tremendous surface area for absorbing nutrients. For the person with celiac disease, unchecked gluten consumption generates inflammation that wears down these fingers and, over time, greatly reduces the nutrient absorbing efficiency of the small bowel lining. This can generate a whole host of other nutrient deficiency related medical problems. We also now know that the autoimmune reaction to gluten is not necessarily limited to the lining of the small bowel such that celiac disease can damage other body systems and organs such as the liver and the joints and cause neurological problems.  It can take around two years for the villous lining to completely heal but most people start feeling better well before then. It's also important to realize that celiac disease can cause intolerance to some other foods whose protein structures are similar to gluten. Chief among them are dairy and oats but also eggs, corn and soy. Just keep that in mind.
    • pothosqueen
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.