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Retail Therapy - Celiac Style


Poppi

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Poppi Enthusiast

So I'm mildly peeved at my husband. His work is sending him away on a course and he's floating about the house all happy that he gets to spend a whole week in Ottawa in a nice hotel with $100 a day for food and entertainment. :angry: I'm insanely jealous. I want to get away from the kids and home too.

So in a fit of poutiness I just spent a bunch of money ordering cake mixes, cookies and donuts from Kinnikinnick. :huh: I probably shouldn't have done that. It's funny because a few months ago I would have spent that $100 on yarn or spinning fibre but now it's bread, donuts and cake mix. :lol:


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Strawberry-Jam Enthusiast

I know the feeling. Whenever I come across a new food I cannot eat--either when I discovered I couldn't have soy and had to give away/throw out 1/3 of my food, or whenever I discover a new thing that upsets my stomach for some reason--I go grocery shopping and spend at LEAST $50 on food that I CAN have. Doesn't stop the frustration of wasting money on food it ends up I can't have anyway, but it makes me feel a little better, anyway.

adab8ca Enthusiast

sometimes you just have to treat yourself!!!

Poppi Enthusiast

But I want to go to Ottawa. A whole week without kids or laundry. :angry: No fair.

K8ling Enthusiast

Oh man a whole week??? I'm only 3 months into a 9 month deployment and I keep wishing I had a DAY... man.. what would I do with a week by myself??

*swoon*

love2travel Mentor

My husband gets to go to places such as London, Paris and San Francisco for meetings for about ten days at a home with his job so I truly understand! Sometimes they invite spouses, too, which is wonderful. They get SPOILED at these things. In Paris next year they have rented the entire Palace of Versailles for dinner! We've been aboard aircraft carriers, in the Justice rooms in London, etc. Absolutely amazing. Plus the spouses get to go to castles, on garden and home tours, take cooking classes, go to vineyards...thankfully all that happened before I was diagnosed! But next year in Paris will be interesting with celiac disease, going to the best restaurants. Knowing their management and travel teams I will be very well taken care of.

Anyway, somehow I justify my deserving things when I have accomplished something or when I have bad fibromyalgia/herniated disc pain days (which is pretty much 24 hours a day) or when I am alone. When that happens, my husband orders me several books from my Amazon wishlist. He does this each time he goes away. He is too sweet! I don't really splurge on gluten-free stuff but I DO splurge on great artisan cheeses, decadent truffle dishes, fabulous sea salts, exotic spices... On the other hand, it does not take much to please me! I love the small things, too. :)

So, enjoy your treats because you really do deserve it! :P You must have at least two treats per day so that is 14 treats (or batches of treats!).

bbuster Explorer

So I'm mildly peeved at my husband. His work is sending him away on a course and he's floating about the house all happy that he gets to spend a whole week in Ottawa in a nice hotel with $100 a day for food and entertainment. :angry: I'm insanely jealous. I want to get away from the kids and home too.

So in a fit of poutiness I just spent a bunch of money ordering cake mixes, cookies and donuts from Kinnikinnick. :huh: I probably shouldn't have done that. It's funny because a few months ago I would have spent that $100 on yarn or spinning fibre but now it's bread, donuts and cake mix. :lol:

You go girl!!!

It's funny, my husband took the kids and they are all visiting his family for a week. So besides my regular work schedule (9-10 hrs M-F) what do you think I am doing? Mowing the lawn, pulling weeds, mulching trees, planting flowers, organizing and cleaning the pantry, drawers, closets; house painting projects, carpet cleaning, stocking up on groceries, laundry, various other cleaning projects, and doing all of the planning for our vacation. And of course reading up on forum topics! Well, I also called my mom, coordinated a family gift for an upcoming nephew's wedding, and collected and donated gluten-free items for tornado victims in Joplin (not too far away from here). So see, it's not ALL about me (LOL).


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    • GlorietaKaro
      Thanks to both of you for your responses!  Sadly, even after several years of very strict gluten avoidance, I remember the symptoms well enough that I am too frightened to risk a gluten challenge— heartbeat and breathing problems are scary— Scott, thank you for the specific information— I will call around in the new year to see if I can find anyone. In the meantime, I will carry on has I have been— it’s working! Thanks also for the validation— sometimes I just feel crushed by disbelief. Not enough to make me eat gluten though—
    • trents
      Welcome to the celiac.com community, @GlorietaKaro! As Scott indicated, without formal testing for celiac disease, which would require you to have been consuming generous amounts of gluten daily for weeks, it would be not be possible to distinguish whether you have celiac disease or NCGS (Non Celiac Gluten Sensitivity). Their symptoms overlap. The difference being that celiac disease is an autoimmune disorder that damages the lining of the small bowel. We actually no more about celiac disease than we do about NCGS, the mechanism of the latter being more difficult to classify. There are specific antibody tests for celiac disease diagnosis and there is also the endoscopy/biopsy of the small bowel lining. Currently, there are no tests to diagnose NCGS. Celiac disease must first ruled out. Researchers are working on developing testing methods to diagnose celiac disease that do not require a "gluten challenge" which is just out of the question for so many because it poses serious, even life-threatening, health risks. But we aren't there yet.
    • lalan45
      That’s really frustrating, I’m sorry you went through that. High fiber can definitely cause sudden stomach issues, especially if your body isn’t used to it yet, but accidental gluten exposure can feel similar. Keeping a simple food/symptom journal and introducing new foods one at a time can really help you spot patterns. You’re already doing the right things with cleaning and separating baking—also watch shared toasters, cutting boards, and labels like “may contain.”
    • Russ H
      I thought this might be of interest regarding anti-EMA testing. Some labs use donated umbilical cord instead of monkey oesophagus. Some labs just provide a +ve/-ve test result but others provide a grade by testing progressively diluted blood sample. https://www.aesku.com/index.php/ifu-download/1367-ema-instruction-manual-en-1/file Fluorescence-labelled anti-tTG2 autoantibodies bind to endomysium (the thin layer around muscle fibres) forming a characteristic honeycomb pattern under the microscope - this is highly specific to coeliac disease. The binding site is extracellular tTG2 bound to fibronectin and collagen. Human or monkey derived endomysium is necessary because tTG2 from other mammals does not provide the right binding epitope. https://www.mdpi.com/1422-0067/26/3/1012
    • Scott Adams
      First, please know that receiving two diagnoses at once, especially one you've never heard of, is undoubtedly overwhelming. You are not alone in this. Your understanding is correct: both celiac disease and Mesenteric Panniculitis (MP) are considered to have autoimmune components. While having both is not extremely common, they can co-occur, as chronic inflammation from one autoimmune condition can sometimes be linked to or trigger other inflammatory responses in the body. MP, which involves inflammation of the fat tissue in the mesentery (the membrane that holds your intestines in place), is often discovered incidentally on scans, exactly as in your case. The fact that your medical team is already planning follow-up with a DEXA scan (to check bone density, common after a celiac diagnosis) and a repeat CT is a very proactive and prudent approach to monitoring your health. Many find that adhering strictly to the gluten-free diet for celiac disease helps manage overall inflammation, which may positively impact MP over time. It's completely normal to feel uncertain right now. Your next steps are to take this one day at a time, focus on the gluten-free diet as your primary treatment for celiac, and use your upcoming appointments to ask all your questions about MP and what the monitoring plan entails. This dual diagnosis is a lot to process, but it is also the starting point for a managed path forward to better health. This article has some detailed information on how to be 100% gluten-free, so it may be helpful (be sure to also read the comments section.):    
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