Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

The Hospital Called And My Biopsy Is Booked Yay


Meg123

Recommended Posts

Meg123 Explorer

Following on from my last thread after seeing the Gi, on Wed, I said that Dr wanted me in for his next theatre day which is Wednesday week (was two weeks from my last appointment) but his schedule was booked and so I was going to have to wait 6 weeks since he was going on holiday.

Well, the Gi Dr told them to reschedule, :D:D and told them to book me in and so I'm in on Wed week. So relieved.

It's so expensive though, since I'm having to go Private and don't have hospital insurance (got other insurance, just not hospital) (different health system here in Aus) I could have gone public if I wanted to and it would have been free of charge, but I couldn't wait 8 to 18 months. But my lovely mother is loaning me the money and I'll pay her back.

I hope something comes of it, seems like a huge gamble or something doesn't it....

I'm not terribly nervous about it. Should I be? Is it bad?

It's just the endoscopy / 6 biopsys. I'm not good with anaesthesia, but never had twilight sedation. I hope it's not terrible. Do you have to drink any special solution or preparation? or is it just fasting?

I've convinced myself it's going to be negative now as in I don't even have it :rolleyes: , but last week I was convinced I had it. :blink: do I, or don't I, do I or don't I. Will it be a false negative? blah blah blah. Head insane, even dreaming about it, boring everyone in my life about it....

Glad it's going to be over one way or another.

Husband is upset about the money, and thinks I should just be gluten free and be done with it. I feel guilty about insisting on having it, but I feel I have to. I mean if it's not celiac disease, then they maybe they'll find what else is causing the malabsoption at least or the + ttg. If I don't do it now then I'll always wonder what they would have found, and not want to damage myself in the future.

So i feel a combination of happy it's nearly here, and guilty for spending so much money on myself.

Either way, it'll be behind me soon YAY, and I can move forward to a healthier me hopefully. Been so sick for so long, just want to be able to walk my children to and from school. I'm not reaching for the stars or anything.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



2johndeereboys Explorer

that is great news! I am so happy for you! I go for a EGD/Biopsy/Colonoscopy on Thursday. I am a bit nervous and apprehensive mostly about the colonoscopy (the prep mainly :unsure: ) but I know it will be fine and hopefully I will get some answers good, bad or inconclusive!

I know how you feel about spending all that money on yourself. The surgery center called me yesterday and I am responsible for about $600 of it.

WIshing you the best!!

:D

mushroom Proficient

I'm glad the doc was able to squeeze you in :) Believe me, the worst part of it is the worry you are putting yourself through. It is really a simple procedure and with the twilight sedation you will not remember any of it. When you come to you will asking "When are they going to do it?" :lol: I do hope you get some definitive answers.

Meg123 Explorer

Thanks Neroli, me too. I just hope it's accurate, either a true negative or positive.

Lisa, mine is costing us $1300 Australian :( , just thinking of it is enough to make me sick.....

ravenwoodglass Mentor

Glad they were able to get you in sooner. The day of the biopsy you can go ahead and get on the diet. You don't need to wait on the results. If you had a positive blood test you need the diet no matter what the biopsy results are. I also hope you get a clear answer but do keep in mind that damage can be patchy and a damaged place can be missed.

I do hope you are feeling better soon.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      IBS-D vs Celiac

    2. - Scott Adams replied to Amy Barnett's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Question

    3. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      8

      how much gluten do I need to eat before blood tests?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,321
    • Most Online (within 30 mins)
      7,748

    James Minton
    Newest Member
    James Minton
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • Scott Adams
      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that you carry HLA-DQ2.2 means celiac disease is absolutely possible, even if it’s less common than DQ2.5, and many people with DQ2.2 present later and are under-diagnosed. Your hesitation to reintroduce gluten is completely understandable — quality of life matters — and many people in your position choose to remain strictly gluten-free and treat it as medically necessary even without formal biopsy confirmation. If and when you’re ready, a physician can help you weigh options like limited gluten challenge, serology history, or documentation as “probable celiac.” What’s clear is that this wasn’t just random IBS — you identified the trigger, and your body has been very consistent in its response.
    • Scott Adams
      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid multivitamin with essential nutrients in a readily absorbable form. MaryRuth's Morning Multivitamin w/ Hair Growth – Adds beauty-supporting ingredients (biotin, B vitamins), also gluten-free and easy to take. New Chapter Liquid Multivitamin and New Chapter Liquid Multivitamin Orange Mango – Fermented liquid form with extra nutrients and good tolerability if you prefer a whole-food-based formula. Nature's Plus Source Of Life Gold Liquid – Premium option with a broad spectrum of vitamins and plant-based nutrients. Floradix Epresat Adult Liquid Multivitamin – Highly rated gluten-free German-made liquid, good choice if taste and natural ingredients matter. NOW Foods Liquid Multi Tropical Orange – Budget-friendly liquid multivitamin with solid nutrient coverage.
    • catnapt
      oh that's interesting... it's hard to say for sure but it has *seemed* like oats might be causing me some vague issues in the past few months. It's odd that I never really connect specific symptoms to foods, it's more of an all over feeling of unwellness after  eating them.  If it happens a few times after eating the same foods- I cut back or avoid them. for this reason I avoid dairy and eggs.  So far this has worked well for me.  oh, I have some of Bob's Red Mill Mighty Tasty Hot cereal and I love it! it's hard to find but I will be looking for more.  for the next few weeks I'm going to be concentrating on whole fresh fruits and veggies and beans and nuts and seeds. I'll have to find out if grains are truly necessary in our diet. I buy brown rice pasta but only eat that maybe once a month at most. Never liked quinoa. And all the other exotic sounding grains seem to be time consuming to prepare. Something to look at later. I love beans and to me they provide the heft and calories that make me feel full for a lot longer than a big bowl of broccoli or other veggies. I can't even tolerate the plant milks right now.  I have reached out to the endo for guidance regarding calcium intake - she wants me to consume 1000mgs from food daily and I'm not able to get to more than 600mgs right now.  not supposed to use a supplement until after my next round of testing for hyperparathyroidism.   thanks again- you seem to know quite a bit about celiac.  
    • trents
      Welcome to the celiac.com community, @SilkieFairy! You could also have NCGS (Non Celiac Gluten Sensitivity) as opposed to celiac disease. They share many of the same symptoms, especially the GI ones. There is no test for NCGS. Celiac disease must first be ruled out.
    • trents
      Under the circumstances, your decision to have the testing done on day 14 sounds very reasonable. But I think by now you know for certain that you either have celiac disease or NCGS and either way you absolutely need to eliminate gluten from your diet. I don't think you have to have an official diagnosis of celiac disease to leverage gluten free service in hospitals or institutional care and I'm guessing your physician would be willing to grant you a diagnosis of gluten sensitivity (NCGS) even if your celiac testing comes up negative. Also, you need to be aware that oats (even gluten free oats) is a common cross reactor in the celiac community. Oat protein (avenin) is similar to gluten. You might want to look at some other gluten free hot  breakfast cereal alternatives.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.