Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Uti's And Celiac Disease


Newtoitall

Recommended Posts

Newtoitall Enthusiast

Just out of a desperate curiosity, does anyone else suffer frequent UTI's? (Urinary Tract Infections)

I doubt it has anything to do with Celiac Disease, but I had to ask and see if anyone else was in the same boat.

I read it's common for them to come back once you have had it, and for some it's just everyday life for it to flare up randomly. (apparently) I can't imagine that but anywhoo.

Anyone know a good site to ask questions about UTI's and stuff regarding pain in private area's?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mushroom Proficient

UTI's are endemic to our family, starting with my late mother, and we her three daughters, two with admitted gluten problems (one has a diagnosed celiac daughter) and one with unadmitted gluten problems. I definitely think there is a relationship with celiac disease although I have no idea what it is. I don't get them randomly any more, but they are still lurking and any time I have to take an antibiotic (which is quite often because I am on an immunosuppressant) I get one, and then have to take another (different) antibiotic to get rid of that. It does get tiresome. Sometimes I can ward them off with cranberry tablets - othertimes not.

eatmeat4good Enthusiast

I was one of those who had frequent UTI's for years before I went gluten free. I definitely think they are related. I haven't had a single one in 8 months...the exact amount of time I have been gluten free. Before I would have one at least every month...sometimes weekly. I was on antibiotics for years for this. Absolutely miserable. Another pleasant surprise on going gluten free...they have completely resolved. I have read of other's on here with the same happy results. Good luck.

txplowgirl Enthusiast

Thank goodness that seems to be one good thing that went away fairly quickly. I use to have uti's at least once a year since I was about 14. I can happily say that I have not had 1 since going gluten free. That's been about 2 years now.

rosetapper23 Explorer

My mother and I (both celiacs) used to get them all the time. I was even on prophylactic antibiotics for years just to keep from getting them. However, after reading every study that had come out on how to avoid getting UTIs and trying every remedy on the face of the planet, I hit on the reason for mine. The study I read was very simple--it said that the ONLY difference between women/girls who get frequent UTIs and those that don't is that the women/girls with UTIs urinated less often. Yes, you read that correctly. I thought about my past bathroom habits and realized that my parents had always chastised all of us kids for wasting their time on outings by going to use a restroom. Using restrooms was discouraged from early childhood onward. Then when I started school, the older girls would taunt us younger girls by climbing atop the cubicles and laughing at us while we were using the toilet. At that point, I learned to stifle the urge to urinate, so when I started working, I'd stifle the urge every time because I felt I was too busy to take the time to run to the restroom. The study described how women really need to go to the restroom IMMEDIATELY upon feeling the first urge to urinate. Never stifle the urge to go! Yes, you'll be going more frequently, but I found that after a lifetime of frequent UTIs, I stopped getting them after adopting this practice. I really couldn't believe that it could be that easy....but it was. Of course, this may not be YOUR problem, but it's a cheap, easy solution if you want to try it. Just my two cents....

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,033
    • Most Online (within 30 mins)
      7,748

    davidvibezb
    Newest Member
    davidvibezb
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Jmartes71
      Thankyou so much for your words.Its a hard battle when a supposed well known hospital whose celiac " specialist " has down played me because my colon looks fine and put it in my medical and so pcp doesn't take seriously. In their eyes we all carry that gene.Im having alot of bad days trying to be positive because of it.
    • Scott Adams
      Your experience is both shocking and critically important for the community to hear, underscoring the terrifying reality that cross-contamination can extend into the most unexpected and invasive medical devices. It is absolutely devastating that you had to endure six months of sickness and ultimately sustain permanent vision loss because a doctor dismissed your legitimate, life-altering condition. Your relentless research and advocacy, from discovering the gluten in MMA acrylic to finding a compassionate prosthodontist, is a testament to your strength in a system that often fails celiac patients. While the scientific and medical consensus is that gluten cannot be absorbed through the skin or eyes (as the molecules are too large to pass through these barriers), your story highlights a terrifying gray area: what about a substance *permanently implanted inside the body*, where it could potentially shed microparticles or cause a localized immune reaction? Your powerful warning about acrylic lenses and the drastic difference with the silicone alternative is invaluable information. Thank you for sharing your harrowing journey and the specific, severe neurological symptoms you endure; it is a stark reminder that celiac is a systemic disease, and your advocacy is undoubtedly saving others from similar trauma.
    • Scott Adams
      Those are driving distance from me--I will try to check them out, thanks for sharing!
    • Scott Adams
      I am so sorry you're going through this bad experience--it's difficult when your own lived reality of cause and effect is dismissed by the very professionals meant to help you. You are absolutely right—your violent physical reactions are not "what you think," but undeniable data points, and it's a form of medical gaslighting to be told otherwise, especially when you have a positive HLA-DQ2 gene and a clear clinical picture. Since your current "celiac specialist" is not addressing the core issue or your related conditions like SIBO and chronic fatigue, it may be time for a strategic pivot. Instead of trying to "reprove" your celiac disease to unwilling ears, consider seeking out a new gastroenterologist or functional medicine doctor, and frame the conversation around managing the complications of a confirmed gluten-free diet for celiac disease. Go in and say, "I have celiac disease, am strictly gluten-free, but I am still suffering from these specific complications: SIBO, chronic fatigue, dermatological issues, and high blood pressure linked to pain. I need a partner to help me address these related conditions." This shifts the focus from a debate about your diagnosis to a collaborative plan for your current suffering, which is the help you truly need and deserve to work toward bouncing back.
    • NanCel
      Hello, no I had to have them re done and then used a liner over the top.  Many dentists are not aware of the celiac effects.  Best of luck.   There is other material, yet, very expensive.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.