Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Are These Symptoms Of Gluten Withdrawal?


ericsnow

Recommended Posts

ericsnow Rookie

It's been 4 days and I've been experiencing...

- Relentless hunger, literally eating 2 or 3 times as much as normal.

- Bloating

- Fatigued

- Anxiety

- Minor depression

- Irritability

- Brain fog

I'm going to an allergy doctor soon, are the tests they give 100% accurate?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ericsnow Rookie

Anyone?

kareng Grand Master

Have you tried using the Google search feature in the top right corner? I put in "gluten withdrawl" and got a lot of discussions about it that we have had before. Just keep an eye on the dates if they are recommending a product as the info on gluten-free status can change over the years.

ravenwoodglass Mentor

Yes it does sound like you are likely going through withdrawl. It should lift soon. Eat as much whole unprocessed food as you can for bit and be careful of cross contamination.

Do let the allergist know that you are celiac. Celiac isn't an allergy but some of us do have both celiac and wheat allergies.

The diet can take some getting used to and once the withdrawl lifts, which it should soon, you'll feel a lot better.

love2travel Mentor

It's been 4 days and I've been experiencing...

- Relentless hunger, literally eating 2 or 3 times as much as normal.

- Bloating

- Fatigued

- Anxiety

- Minor depression

- Irritability

- Brain fog

I'm going to an allergy doctor soon, are the tests they give 100% accurate?

That pretty much sums up the gluten withdrawal symptoms that I had. It lasted about two weeks then disappeared. Oh, I also had frequent headaches. Just hang in there - it doesn't last too long! :) You can do this.

ericsnow Rookie

That pretty much sums up the gluten withdrawal symptoms that I had. It lasted about two weeks then disappeared. Oh, I also had frequent headaches. Just hang in there - it doesn't last too long! :) You can do this.

Thanks!

How long do you think it will last? A few weeks?

ravenwoodglass Mentor

How long do you think it will last? A few weeks?

I think most are trough withdrawl within 2 to 4 weeks. Just be very careful with your diet as getting some accidental gluten may prolong the withdrawl.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ericsnow Rookie

I think most are trough withdrawl within 2 to 4 weeks. Just be very careful with your diet as getting some accidental gluten may prolong the withdrawl.

I'm being really careful, if I'm not sure about a food I'll call the company up and ask.

I'm also going casein free, is casein withdrawal similar to gluten withdrawal?

One more question... When I wake up in the morning my energy levels are close to normal but within about 30 minutes of eating breakfast I get very tired. It seems as though after eating something I always get more tired than I was before eating it. Is this normal?

ravenwoodglass Mentor

I'm being really careful, if I'm not sure about a food I'll call the company up and ask.

I'm also going casein free, is casein withdrawal similar to gluten withdrawal?

For some it might be. If you are also going casien free I personally would do it now and hopefully the withdrawl from the casien, if you have any, will be over in the same time frame. I just woke up one morning and the withdrawl was over and the world looked like a much brighter place.

The hardest thing for me was finding a butter replacement that didn't have casien in it. Then I found I also have to avoid soy so that made it even tougher. At first I used Ghee, which is clarified butter but then was clued in that butter is pretty much lactose and casien free and I have no issues with it. Coconut oil is also a really good replacement for cooking and baking. Do be aware that it has a low flash point so don't overheat it when using it to fry foods. Coconut shortening is great for using in gluten-free baked goods.

ravenwoodglass Mentor

One more question... When I wake up in the morning my energy levels are close to normal but within about 30 minutes of eating breakfast I get very tired. It seems as though after eating something I always get more tired than I was before eating it. Is this normal?

What are you having for breakfast?

ericsnow Rookie

What are you having for breakfast?

Today for example I had scrambled eggs and organic gluten free turkey hot dogs (sliced) fried up in organic extra virgin coconut oil and I got the tired feeling after eating it. But like I said I get the tired feeling after eating anything.

ravenwoodglass Mentor

Today for example I had scrambled eggs and organic gluten free turkey hot dogs (sliced) fried up in organic extra virgin coconut oil and I got the tired feeling after eating it. But like I said I get the tired feeling after eating anything.

It may just be that since you are so new to the diet that you are still healing and it may take a while before that effect goes away. That breakfast was almost all protein. Have you tried something like fruit with maybe a hardboiled egg and a slice of toast, made in your new dedicated toaster? That might be a little lighter to digest and help with the tired feeling. You can also try adding in a sublingual B12 tablet in the morning to see if that helps a bit with energy levels.

ericsnow Rookie

It may just be that since you are so new to the diet that you are still healing and it may take a while before that effect goes away. That breakfast was almost all protein. Have you tried something like fruit with maybe a hardboiled egg and a slice of toast, made in your new dedicated toaster? That might be a little lighter to digest and help with the tired feeling. You can also try adding in a sublingual B12 tablet in the morning to see if that helps a bit with energy levels.

I am eating some fruit (not usually with breakfast) and I'm taking a multi vitamin (which contains a lot of B12) and a fish oil supplement, both of these supplements are gluten free. I have some high quality aloe vera juice, is it true aloe vera can help heal the intestines?

ravenwoodglass Mentor

I am eating some fruit (not usually with breakfast) and I'm taking a multi vitamin (which contains a lot of B12) and a fish oil supplement, both of these supplements are gluten free. I have some high quality aloe vera juice, is it true aloe vera can help heal the intestines?

You might want to do a new thread to ask about the aloe. I don't know much about that. While your multi may have a lot of B12 while your digestive system is still healing you won't be able to absorb it from a swallowed pill. The sublingual goes right into the bloodstream from the mucous membranes in your mouth. Do read all ingredients on multis because some can have wheat and barley grass and still say gluten free on the label. You want to avoid those.

dreacakes Rookie

I had major withdrawal symptoms for about 2 months, and more mild ones for a year after.

I just mentioned this on another post, but I didn't really get better until I went on a Paleo diet and took a gut-healing supplement for awhile. I'd highly suggest giving the diet a shot! And the supplement I've had great success with is called RepairVite.

Aloe is great for your stomach. Eggs can irritate it. (I had no idea I was sensitive to eggs until I stopped eating them for a few weeks then eat one again... I got really nauseous from it)

Other great things to eat are coconuts, ginger, tumeric, and garlic. Stay away from sugar, caffeine, and alcohol for at least a few months.

And hang in there! I know the withdrawal period sucks... I had no idea it was going to happen to me and it hit like a ton of bricks! But I can tell you for a fact it WILL get better. :)

ericsnow Rookie

Did I have a gluten reaction to strawberry jelly yesterday evening? I ate a bowl of gluten free cereal with gluten free peanut butter and this 100% fruit strawberry jam mixed together. Within about 30-60 minutes of eating it I got 2 itchy bumps (hives?) on my right leg and I became super bloated. I also felt a little "out of it". And strangely enough the constant relentless hunger I've been experiencing the last week or so disappeared (temporarily I'm sure) after I ate that.

The jelly is this brand - Open Original Shared Link

The only ingredients are strawberries, pineapple juice, lemon juice, and fruit pectin.

I;m also pretty sure I have candida albicans. Yesterday I ate a lot of fruit and honey so I'm thinking I maybe overloaded my system with sugar and that's what caused this reaction?

bartfull Rising Star

Eric, you started one day before I did. I'm glad you started this thread because although I knew from what I had read here that I'd be feeling hungry, I didn't know about the headaches. I've had one since yesterday and the only ibuprifen I have is the store brand, which probably has gluten in it. Later today I will try to send someone to the store for me so I can get name brand Advil, which I gather is gluten free. I need to because this headache is making me GRUMPY! :angry::blink::lol:

Back when I was eating LOTS of gluten, I used to always get sleepy after I ate. The last three days I have not. Go figure. I guess that's why they say it's different for everyone.

I would like to congratulate BOTH of us for finding this place! Out of all the celiac sites I've seen, this is the best one by far.

And to all of you who are putting so much time, thought, and effort into helping all of us newbies, I say a resounding THANK YOU!!!

Poppi Enthusiast

I find that in the first week after I've been glutened (this would go for the withdrawl period as well) I have to be very gentle with my stomach. Lots of fruit, salmon, steamed veggies, tea and toast with honey. I have to avoid high fat, greasy, fried or heavy meals. I get very tired right after because my body is struggling to heal from the glutening and digesting a big meal is hard work.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Colleen H replied to Colleen H's topic in Coping with Celiac Disease
      2

      Gluten related ??

    2. - Jmartes71 replied to Jmartes71's topic in Coping with Celiac Disease
      4

      My only proof

    3. - AlwaysLearning replied to Jmartes71's topic in Coping with Celiac Disease
      4

      My only proof

    4. - AlwaysLearning replied to Colleen H's topic in Coping with Celiac Disease
      2

      Gluten related ??


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,076
    • Most Online (within 30 mins)
      7,748

    Deb baker
    Newest Member
    Deb baker
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Colleen H
      Thank you so much for your response  Yes it seems as though things get very painful as time goes on.  I'm not eating gluten as far as I know.  However, I'm not sure of cross contamination.  My system seems to weaken to hidden spices and other possibilities. ???  if cross contamination is possible...I am in a super sensitive mode of celiac disease.. Neuropathy from head to toes
    • Jmartes71
      EXACTLY! I was asked yesterday on my LAST video call with Standford and I stated exactly yes absolutely this is why I need the name! One, get proper care, two, not get worse.Im falling apart, stressed out, in pain and just opened email from Stanford stating I was rude ect.I want that video reviewed by higher ups and see if that women still has a job or not.Im saying this because I've been medically screwed and asking for help because bills don't pay itself. This could be malpratice siit but im not good at finding lawyers
    • AlwaysLearning
      We feel your pain. It took me 20+ years of regularly going to doctors desperate for answers only to be told there was nothing wrong with me … when I was 20 pounds underweight, suffering from severe nutritional deficiencies, and in a great deal of pain. I had to figure it out for myself. If you're in the U.S., not having an official diagnosis does mean you can't claim a tax deduction for the extra expense of gluten-free foods. But it can also be a good thing. Pre-existing conditions might be a reason why a health insurance company might reject your application or charge you more money. No official diagnosis means you don't have a pre-existing condition. I really hope you don't live in the U.S. and don't have these challenges. Do you need an official diagnosis for a specific reason? Else, I wouldn't worry about it. As long as you're diligent in remaining gluten free, your body should be healing as much as possible so there isn't much else you could do anyway. And there are plenty of us out here who never got that official diagnosis because we couldn't eat enough gluten to get tested. Now that the IL-2 test is available, I suppose I could take it, but I don't feel the need. Someone else not believing me really isn't my problem as long as I can stay in control of my own food.
    • AlwaysLearning
      If you're just starting out in being gluten free, I would expect it to take months before you learned enough about hidden sources of gluten before you stopped making major mistakes. Ice cream? Not safe unless they say it is gluten free. Spaghetti sauce? Not safe unless is says gluten-free. Natural ingredients? Who knows what's in there. You pretty much need to cook with whole ingredients yourself to avoid it completely. Most gluten-free products should be safe, but while you're in the hypersensitive phase right after going gluten free, you may notice that when something like a microwave meal seems to not be gluten-free … then you find out that it is produced in a shared facility where it can become contaminated. My reactions were much-more severe after going gluten free. The analogy that I use is that you had a whole army of soldiers waiting for some gluten to attack, and now that you took away their target, when the stragglers from the gluten army accidentally wander onto the battlefield, you still have your entire army going out and attacking them. Expect it to take two years before all of the training facilities that were producing your soldiers have fallen into disrepair and are no longer producing soldiers. But that is two years after you stop accidentally glutening yourself. Every time you do eat gluten, another training facility can be built and more soldiers will be waiting to attack. Good luck figuring things out.   
    • Russ H
      This treatment looks promising. Its aim is to provoke immune tolerance of gluten, possibly curing the disease. It passed the phase 2 trial with flying colours, and I came across a post on Reddit by one of the study volunteers. Apparently, the results were good enough that the company is applying for fast track approval.  Anokion Announces Positive Symptom Data from its Phase 2 Trial Evaluating KAN-101 for the Treatment of Celiac Disease https://www.reddit.com/r/Celiac/comments/1krx2wh/kan_101_trial_put_on_hold/
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.