Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Breathing Symptoms


SAVANNAH21

Recommended Posts

SAVANNAH21 Apprentice

Has anyone had difficulty breathing as a symptom for Celiac? My throat gets very tight and I feel like I can't take a deep breath. Almost like my throat muscles won't relax.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cdog7 Contributor

Has anyone had difficulty breathing as a symptom for Celiac? My throat gets very tight and I feel like I can't take a deep breath. Almost like my throat muscles won't relax.

Before going gluten-free, yes, I had some trouble breathing

rain Contributor

Yes, very definitely. I should add I am asthmatic. However, the shortness of breath would happen without wheezing and my inhaler was only marginally helpful. It was about 9 months after I went off gluten that the symptom went away and seems to be gone now. I am taking an inhaler but it's because in the course of examining my lungs she discovered my lower airways were not as open as they should be. This is from scarring of the pathways from childhood asthma. So there may be some connection between the scarred airways and the shortness of breath but it's not clear. Also since going off gluten my posture is better because I have better physical strength and energy. I'm sure that is helping open my airways as well.

IrishHeart Veteran

yes! I had a constant "clogged, sore throat", difficulty swallowing, and shortness of breath. Even my ribs feel sore and compressed. I had posture issues, too and now that my back/neck muscles are not so weak from malnutrition, I can stand a bit straighter.

I had to stop working out at the gym and swimming--even walking the length of my driveway seems like "labor" :blink: --yet I have no allergies, asthma, lung or heart problems (that anyone can uncover, anyway and I have been tested every which way)

It's gotten MUCH better in 5 mos. gluten-free, but not entirely gone as yet.

The doctor tells me it is inflammation from the celiac and to be patient. It will resolve. Hope so--I feel MUCH older than my 84 year old Mom! :huh:

jenngolightly Contributor

Has anyone had difficulty breathing as a symptom for Celiac? My throat gets very tight and I feel like I can't take a deep breath. Almost like my throat muscles won't relax.

I see that some posters have had this reaction as part of their normal Celiac intolerance, but to me it sounds quite like an allergic reaction. Are you sure you're not allergic to gluten wheat? Throat closing is a serious concern and you should definitely talk to your doctor about that.

IrishHeart Veteran

I see that some posters have had this reaction as part of their normal Celiac intolerance, but to me it sounds quite like an allergic reaction. Are you sure you're not allergic to gluten? Throat closing is a serious concern and you should definitely talk to your doctor about that.

Jenn makes a good point about checking with your doctor or an allergist maybe?

I do not believe you can be "allergic" to gluten --but you can be allergic to wheat, of course. But if you no longer ingesting wheat/gluten, that's not what's causing it.

You could have allergy testing done to rule out what may be causing the reaction or see an ear/nose/throat doctor. A lot of people have this "throat sensation" from inflammation from celiac, but you may want to just check it out.

Every doctor I saw for this sensation-allergist, etc (pre-diagnosis) said "Nope--nothing there"....and yet, I sure felt it just the same. :blink:

IrishHeart Veteran

Also, the "rock" in my throat has disappeared as well. :) We sure have some strange symptoms from celiac disease don't we?? :blink:


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



jenngolightly Contributor

I do not believe you can be "allergic" to gluten --but you can be allergic to wheat, of course.

Good catch! Yes, I meant an allergic reaction to wheat. B)

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - cristiana replied to KathyR37's topic in Coping with Celiac Disease
      4

      New here

    2. - trents replied to KathyR37's topic in Coping with Celiac Disease
      4

      New here

    3. - Theresa2407 replied to Theresa2407's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Probiotics

    4. - KathyR37 replied to KathyR37's topic in Coping with Celiac Disease
      4

      New here

    5. - Scott Adams replied to KathyR37's topic in Coping with Celiac Disease
      4

      New here


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,814
    • Most Online (within 30 mins)
      7,748

    ColbyBowlin
    Newest Member
    ColbyBowlin
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):




  • Who's Online (See full list)


  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • cristiana
      Hi @KathyR37 and a very warm welcome here.  I am so very sorry that you are going through all of this. I just wanted to check, have you ever been tested for any other gastrointestinal conditions? Cristiana  
    • trents
      @KathyR37, I would suspect that in addition to gluten intolerance, you have other food intolerances/sensitivities. This is very common in the celiac community. The most common offenders are oats, dairy, soy, corn and eggs with dairy and oats being the big two. Have you considered this? Have you tried keeping a food diary to detect patterns?
    • Theresa2407
      thank you for your advice.   I have always taken them and I use Stonehedge because they are in a glass bottle, but don't have to be refrigerated.  I also like they are 3rd party tested and state gluten free. But you never know if something better has come alone over the years.
    • KathyR37
      Thank you for your response. I have already learned about the info you sent but i appreciate your effort. I am the only one in my family cursed by this disease. I have to cook for them too. I make sure that my utensils are free of gluten and clean after using them for other food. I use non-porous pots and pans and  gloves when cooking for them. One huge problem I have is a gag reflex out of this world and if something doesn't taste good it is not going down. Most commercially made breads and such taste like old cardboard.Pastas are about the same. I did find one flour that I like and use it regularly, but it is so expensive! All gluten free food is way more expensive. I only eat twice a day because I cannot afford to buy all that. We live on a very low income so my food purchases are quite limited.
    • Scott Adams
      What you've described—the severe weight loss, the cycle of medications making things worse, and the profound fear of eating before leaving the house—is a heavy burden to carry for 15 years. It is absolutely not your fault. While everyone's journey with celiac is different, the struggles with the learning curve, social isolation, and dietary grief are feelings many in the community know all too well. Your question about whether you should just eat what you want and manage the symptoms is a heartbreaking one, born from years of frustration. It's crucial to know that the diarrhea is a sign of ongoing damage to your small intestine from gluten, and simply managing the symptom with Imodium doesn't stop that internal harm or the risk of other complications. The fact that you are still getting sick within an hour of eating, even while trying to be gluten-free, is a huge red flag that something isn't right. This could be due to cross-contamination in your kitchen (e.g., using a shared toaster, colander, or condiment jars), hidden gluten in foods, or the possibility of another concurrent condition like refractory celiac disease. Don't give up!  This article has some detailed information on how to be 100% gluten-free, so it may be helpful (be sure to also read the comments section.):    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.