Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Kicking In My Sleep


Fire Fairy

Recommended Posts

Fire Fairy Enthusiast

It used to happen fairly frequently before I went gluten-free but honestly I can't remember it happening since the 1st few weeks gluten-free. I am now 7 months gluten-free and the past 2 nights I've woke myself up kicking my right leg uncontrollably. I'm guessing it's Restless Leg Syndrome. Any ideas? Should I be worried?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Judy3 Contributor

It used to happen fairly frequently before I went gluten-free but honestly I can't remember it happening since the 1st few weeks gluten-free. I am now 7 months gluten-free and the past 2 nights I've woke myself up kicking my right leg uncontrollably. I'm guessing it's Restless Leg Syndrome. Any ideas? Should I be worried?

I don't know if you need to be worried, it's more annoying than harmful I think. Don't know what causes it. I've had that same thing for my whole life and then was put on strong medication for it but now I'm off of that and doing fine thanks to a new chiropractor in my life. :) I can't contribute mine to gluten but who knows. The gluten seems to have affected everything else!!

Good Luck

kareng Grand Master

I don't know what causes this. My hub has it occcasionally so he has read about it a little. Seems it could be a vitamin deficiency (potassium?) or a lack of exercise or s sypmtom of mental illness. For him, exercise seems to help.

domesticactivist Collaborator

My partner had this problem. She also improved gluten-free then it came back. We're pretty sure it's due to mg deficiency. It resolves when she remembers to take her concentrace mineral drops.

domesticactivist Collaborator

Potassium and calcium deficiencies can also relate to muscle spasms

yorkieluv Newbie

It sounds like restless leg which can be caused by a low iron. I was having really bad restless leg and my iron was extremely low but once my iron started coming up it got better. My doctor is the one who said it can but not always can be because of a low iron.

Hope this helps!

Fire Fairy Enthusiast

Hmmm I think it is the Iron. At least it would make a lot of sense.

Thanks everyone.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • 4 weeks later...
Neshema1 Newbie

Pls read my post under darn forgot!

Neshema1 Newbie

On thread "hope this helps"

Korwyn Explorer

It used to happen fairly frequently before I went gluten-free but honestly I can't remember it happening since the 1st few weeks gluten-free. I am now 7 months gluten-free and the past 2 nights I've woke myself up kicking my right leg uncontrollably. I'm guessing it's Restless Leg Syndrome. Any ideas? Should I be worried?

Both soy and gluten will trigger my RLS. By the way, I know the author of your signature quote: my mother! :blink: :blink:

tarnalberry Community Regular

It's worth being evaluated to see if it's actually restless leg, if you try other things and they don't help. I have RLS (though it's 90% ok right now). If it's a nutritional deficiency, it most often is low iron (but you do not want to supplement without checking your levels first - high iron is a problem too), but magnesium, calcium, and potassium often play a role. Potassium deficient leg cramping is different from RLS (feels different), but I'm not sure how I'd describe the senstaions if you haven't experienced them.

bartfull Rising Star

This is going to sound crazy but please try it! Put a bar of soap under the bottom sheet near your legs. Your restless legs will rest! I heard about this on a show called "The People's Pharmacy" on National Public Radio. As a matter of fact, they have mentioned this topic several times and all of the folks who call in to the show, and even the hosts of the show, swear it works.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,202
    • Most Online (within 30 mins)
      7,748

    PatBurnham
    Newest Member
    PatBurnham
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
    • Scott Adams
      I will assume you did the gluten challenge properly and were eating a lot of gluten daily for 6-8 weeks before your test, but if not, that could be the issue. You can still have celiac disease with negative blood test results, although it's not as common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
    • Xravith
      I'm very confused... My blood test came out negative, I checked all antibodies. I suppose my Total IgA levels are normal (132 mg/dl), so the test should be reliable. Still, I'm not relieved as I can't tolerate even a single biscuit. I need to talk to my doctor about whether a duodenal biopsy is necessary. But it is really possible to have intestinal damage despite having a seronegative results? I have really strong symptoms, and I don't want to keep skipping university lectures or being bedridden at home.
    • Scott Adams
      They may want to also eliminate other possible causes for your symptoms/issues and are doing additional tests.  Here is info about blood tests for celiac disease--if positive an endoscopy where biopsies of your intestinal villi are taken to confirm is the typical follow up.    
    • Scott Adams
      In the Europe the new protocol for making a celiac disease diagnosis in children is if their tTg-IgA (tissue transglutaminase IgA) levels are 10 times or above the positive level for celiac disease--and you are above that level. According to the latest research, if the blood test results are at certain high levels that range between 5-10 times the reference range for a positive celiac disease diagnosis, it may not be necessary to confirm the results using an endoscopy/biopsy: Blood Test Alone Can Diagnose Celiac Disease in Most Children and Adults TGA-IgA at or Above Five Times Normal Limit in Kids Indicates Celiac Disease in Nearly All Cases No More Biopsies to Diagnose Celiac Disease in Children! May I ask why you've had so many past tTg-IgA tests done, and many of them seem to have been done 3 times during short time intervals?    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.