Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Eyesight Problems


MikeyG

Recommended Posts

MikeyG Newbie

Hi,

Hope someone can answer this from personal experience. Last December my regular doc ran some blood tests because I was having bloating problems, the results said boderline celiac. She advised me to cut our the gluten and see how I felt. I did just that, eliminated all gluten from my diet, basically just ate meats and vegetable, didn't seem so bad. The bloating never really went away, but I stayed on the diet until last week. I went to a GI doc to see what he could do and he said he wanted to do an endoscopy, but I would have to go back to eating gluten for a few weeks for it to be accurate, so we made an appointment to have the endoscopy a month from now and I started eating gluten again.

About 4 days after I started, I began to have vision problems in one eye. Blurred vision, at any distance. Up until now, I have never had any vision problems and never needed glasses for any distance. I made an appointment with an opthomologist, he ran all the tests including sending me for an MRI, all good. He gave me some drops and said give it a week. I am doing just that, but now, my other eye is causing me problems, not as bad, but not normal. All of a sudden it comes to me, maybe the gluten I am eating now is causing this problem. Perhaps, now that I have been clean for several months, I am more susceptible to it than I used to be. It seems from reading posts of others, that they became more sensitive after stopping. Anyone run across something like this. I am thinking of stopping the gluten again and see what happens in a few days or so. Any ideas? Thanks.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Nova Scotian Celiac Newbie

Hi MickeyG,

Others with long term experience with Celiac may have more to add but here is my take on it:

I'm only newly diagnosed, however, I had been experiencing the same vision problems. Before learning of my diagnosis I couldn't understand why my vision would constantly go blurry - night time, morning - depended on the day. I was concerned and saw my optometrist who assured me that my eye sight had not changed AT ALL.

Clearly I wasn't dreaming the vision problems. Fast forward to my first meeting with my nutritionist, post diagnosis and BINGO! She confirmed that as a symptom of malnurishment, the vision problems were due to my body's (villi) inability to absorb vitamin A. So my guess is that upon reintroducing gluten into your system, your body is having a difficult time absorbing vit A....

captaincrab55 Collaborator

Hi,

good. He gave me some drops and said give it a week. I am doing just that, but now, my other eye is causing me problems, not as bad, but not normal. All of a sudden it comes to me, maybe the gluten I am eating now is causing this problem. Perhaps, now that I have been clean for several months, I am more susceptible to it than I used to be. It seems from reading posts of others, that they became more sensitive after stopping. Anyone run across something like this. I am thinking of stopping the gluten again and see what happens in a few days or so. Any ideas? Thanks.

MikeyG, Have you had your blood sugar checked lately??? One may also have a gi issue with dairy, H PYLORI or both...

Good Luck

MikeyG Newbie

Hi MickeyG,

Others with long term experience with Celiac may have more to add but here is my take on it:

I'm only newly diagnosed, however, I had been experiencing the same vision problems. Before learning of my diagnosis I couldn't understand why my vision would constantly go blurry - night time, morning - depended on the day. I was concerned and saw my optometrist who assured me that my eye sight had not changed AT ALL.

Clearly I wasn't dreaming the vision problems. Fast forward to my first meeting with my nutritionist, post diagnosis and BINGO! She confirmed that as a symptom of malnurishment, the vision problems were due to my body's (villi) inability to absorb vitamin A. So my guess is that upon reintroducing gluten into your system, your body is having a difficult time absorbing vit A....

I really doubt this, vitamin A is stored in the body and I have been eating carrots every day as part of my vegetables, so not having them for a few days would not cause a deficiency, though long term it could be a possibility. Thanks for the reply.

MikeyG Newbie

MikeyG, Have you had your blood sugar checked lately??? One may also have a gi issue with dairy, H PYLORI or both...

Good Luck

Last blood test, my glucose was 80, same as it always is. We tested for pylori, but it was negative. Dont't really have much in the way of dairy, not recently anymore. Thank you for replying!

captaincrab55 Collaborator

Dont't really have much in the way of dairy, not recently anymore. Thank you for replying!

Dairy is in many processed foods....

MikeyG Newbie

Dairy is in many processed foods....

I haven't eaten processed foods since last year.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cassP Contributor

i dont know... but i'll just share that eye problems seem to be common in Autoimmune Disease.. of course we know that MS, and Diabetes can affect the eyes. i dont know about Celiac, but i also have Hashimoto's Thyroiditis, and Grave's Hyperthyroid- BOTH can put pressure on the eyes- which i suffered a lot from before meds. GLUTEN also aggravates Hashi & Graves.

AND, one of my close friends just visited and he has Anklosing Spondylitis (sp?), an Autoimmune Arthritic Disease- anyways, his doc advised him to avoid gluten & dairy. and my friend said when he "eats bad" his eyes swell up, and there's pressure

so maybe there's a connection between Gluten, MANY Autoimmune Disease and the eyes- but please check with your doc- to cover everything

MikeyG Newbie

Thank you for providing this information. I have been checking several of the older posts on this forums and there have been other members that have made reference to visual problems due to gluten. It's funny I did not have it before stopping gluten and now that I add it in again, I have the problem. I am just going to stop the gluten again and see what happens, can't hurt.

cassP Contributor

Thank you for providing this information. I have been checking several of the older posts on this forums and there have been other members that have made reference to visual problems due to gluten. It's funny I did not have it before stopping gluten and now that I add it in again, I have the problem. I am just going to stop the gluten again and see what happens, can't hurt.

ya- many of us can relate to the stronger reactions you're talking about. i think the immune system becomes more vigilant when you take it out... someone smarter than me on here wrote about a certain type of cell that the immune system starts making when we go gluten free- so the reactions will be more amped up.

i honestly think without having the medical knowledge to explain it, that our immune systems have been beated down for so long that they dont work right. you know- like when you're an infant- and brand new to this world- when you have your first foods that you're not designed to eat- like wheat or dairy- you may projectile vomit, or get crazy sick (i had a tonsilectomy & innumerous ear infections).... then your immune system just kinda gets "dumbed down"... so when we go gluten free- our body gets more fine tuned again- and realizes much quicker when it sees an enemy.

that's how i see it

GFinDC Veteran

I got glutened not long aog and my vision got worse. It is getting back to normal now but it has been 6 weeks since the glutening. I was having a hard time focusing and reading the computer screen.

I noticed that in the past also, that gluten affected my vision. I got tri-focals a couple years ago and the doc told me I would need new ones in 6 months. But I am still wearing that first pair. Seems like my eyes are stable as long as I stay gluten-free.

NoodleUnit Apprentice

Mikey

I had problems focussing when I was really bad before I figured it all out. One of the things I had was a rapid vibration in my right eye. Are you getting any neuro issues? I.e. burning sensations behind the eye etc.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Sarah Grace's topic in Related Issues & Disorders
      21

      Headaches / Migraines and Hypoglycaemia

    2. - Jmartes71 posted a topic in Coping with Celiac Disease
      0

      Related issues

    3. - trents replied to Sarah Grace's topic in Related Issues & Disorders
      21

      Headaches / Migraines and Hypoglycaemia

    4. - Scott Adams replied to jessicafreya's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Tamale ingredients

    5. - Wheatwacked replied to Roses8721's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      GI DX celiac despite neg serology and no biopsy


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,144
    • Most Online (within 30 mins)
      7,748

    Jenny0384
    Newest Member
    Jenny0384
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • knitty kitty
      @Sarah Grace,  Thank you for the update!  It's so good to hear from you!  I'm glad Thiamine, B Complex and magnesium have helped you.  Yes, it's important to take all three together.    I had to quit eating cheese and nuts a long time ago because they triggered migraines in me, too.  They are high in tyrosine, an amino acid, found also in fermented foods like sauerkraut and red wine.   I found taking Tryptophan very helpful with migraines.  Tryptophan is a precursor of serotonin and people with migraines are often low in serotonin.  (Don't take tryptophan if you're taking an SSRI.)     This recent study shows tryptophan really helps. The association between dietary tryptophan intake and migraine https://pubmed.ncbi.nlm.nih.gov/31254181/   For immediate respite from a migraine, try smiling REALLY BIG, mouth closed, tongue pressed against roof of mouth, and crinkle up your eyes like you just heard or saw the funniest thing...  This causes an endorphin release in the brain.  Usually it's the funny event, then the endorphin release and then the smile.  Smiling first makes the endorphin center think it missed something and it catches up quickly by releasing endorphins after the big crinkle eyed smile.  Must make crinkly eyes with smile or it won't work.  If you do this too frequently within a short time frame (several hours), you can deplete your endorphins, but you'll make more in a couple of hours, so no worries. Get your thyroid checked, too.  Migraines are also seen in low thyroid function (Hashimoto's or hypothyroidism).  Celiac and thyroid problems go hand in hand.   Vitamin D helps, too.  Low Vitamin D is found in migraine.   I'm so glad you're doing better.  
    • Jmartes71
      Its been a complete nightmare dealing with all these health issues one thing after another and being told many different things.I am looking for a new primary care physician considering when I told my past doctor of 25 years I was diagnosed before any foods eliminated from my diet and now this year at age 54 no longer able to push considering Im always exhausted, leg pain , stomach,skin and eye issues,high blood pressure to name a few all worsen because I was a  school bus driver and few years until my immune system went to hell and was fired because of it.Im still struggling now, Im sibo positive and been told im not celiac and that I am.I have a hernia and dealing with menopause. Its exhausting and is causing depression because of non medical help. Today I saw another gastrointestinalist and he said everything im feeling doesn't add up to celiac disease since my ITg levels are normal so celiac disease is under control and it's something else. I for got I had Barrett's esophagus diagnosed in 2007 because recent doctors down played it just like my celiac disease. Im currently looking for a pcp in my area because it is affecting me personally and professionally. Im told since celiac looks under control it's IBS and I need to see a therapist to control it. Gastrointestinalist around here think only food consumption and if ITG looks normal its bit celiac disease it's something else. Is this right? This is what im being told. I want medical help but told its IBS.Im feel lost by " medical team "
    • trents
      My migraines generally have their onset during the early morning hours as well. Presently, I am under siege with them, having headaches all but two days so far this month. I have looked at all the things reported to be common triggers (foods, sleep patterns, weather patterns, stress, etc.). Every time I think I start to see a pattern it proves not to pan out in the long run. I'm not sure it's any one thing but may, instead, be a combination of things that coalesce at certain times. It's very frustrating. The medication (sumatriptan or "Imatrix") is effective and is the only thing that will quell the pain. NSAIDs, Tylenol, even hydrocodone doesn't touch it. But they only give you 9 does of sumatriptan a month. And it doesn't help that medical science doesn't really know what causes migraines. They know some things about it but the root cause is still a mystery.
    • Scott Adams
      These are labeled gluten-free: https://www.amazon.com/Corn-Husks-Tamales-Authentic-Flavorful/dp/B01MDSHUTM/
    • Wheatwacked
      Just a gluten free diet is not enough.  Now you have to identify and replenish your malnutrition.  Celiac disease is co-morbid with malabsorption syndrome.  Low vitamin D, Low Thiamine caused Gastointeston Beriberi, low choline, low iodine are common the general population, and in newly diagnosed Celiacs in the western culture its is more likely.  It takes time to heal and you need to focus on vitamins and minerals.  Gluten free foods are not fortified like regular processed foods.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.