Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Another Location ?!

Hopeful1950

Recommended Posts

Hopeful1950 Explorer
Hopeful1950
Posted

I recently had a breakout. Just a few blisters in a couple of places, but one alarming new place.

Has anyone ever gotten a breakout on their genital area?

I went to the gynecologist and she ruled out everything else and said the thinks it is probably DH.

This is really disturbing, not to mention extremely uncomfotable. Why did I think this area was safe? :o

If anyone has had this experience, any suggestions for relief would be much appreciated.

  • 2 weeks later...
Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Jenniferxgfx Contributor
Jenniferxgfx
Posted

I get spots absolutely everywhere. Nothing is sacred :/

ravenwoodglass Mentor
ravenwoodglass
Posted

Yea that is to me the most uncomfortable place for the breakouts. It is not like we can scratch there when it itches. :(

I found cool compresses to be the most helpful when that happens. I also stopped using scented panty liners for that reason as I seemed to get blisters from some of them.

Newsy Rookie
Newsy
Posted

I have to watch out for any G containg (paper) products, even one placed "down there"!

One might think a paper product would be safe but apparantly not, as I broke out all over from changing dryer sheets recently...made by the following co...

Here is a quote from their manufacturers site:

Our(maxi) pads are made of a combination of absorbent materials, polyolefins, adhesives, and a silicone-coated paper. The top layer is a non-woven polyolefin cover sheet. The absorbent materials consist of chlorine free wood pulp, and Lysorb, an absorbent gel. Lysorb, also known as SNAP (super absorbent natural polymer), is a polysaccharide derived from wheat. Polysaccharides are complex sugars found in many natural substances, like the fibers of cotton, wood, and wheat.

I don't care who says G can't be absorbed thru the skin. I know I have Celiac and DH, and I can't be in the same ZIPCODE as gluten. :angry:

salexander421 Enthusiast
salexander421
Posted

I have to watch out for any G containg (paper) products, even one placed "down there"!

One might think a paper product would be safe but apparantly not, as I broke out all over from changing dryer sheets recently...made by the following co...

Here is a quote from their manufacturers site:

Our(maxi) pads are made of a combination of absorbent materials, polyolefins, adhesives, and a silicone-coated paper. The top layer is a non-woven polyolefin cover sheet. The absorbent materials consist of chlorine free wood pulp, and Lysorb, an absorbent gel. Lysorb, also known as SNAP (super absorbent natural polymer), is a polysaccharide derived from wheat. Polysaccharides are complex sugars found in many natural substances, like the fibers of cotton, wood, and wheat.

I don't care who says G can't be absorbed thru the skin. I know I have Celiac and DH, and I can't be in the same ZIPCODE as gluten. :angry:

That's so crazy! I used to get really itchy from using pads, I started using cloth pads about a year ago and they don't make me itchy at all. Kinda makes me wonder! Thanks for sharing :)

  • 1 month later...
schelbo Newbie
schelbo
Posted

OH YEAH! I have it from front to back. What's worse is I have a chronic cough (diagnosed as asthma, not so sure now)and a very weak bladder. Imagine peeing on yourself every few minutes and now I'm finding the reason it's so bad down there is because of the PADS!!!!!!! OMG!!!!! It literally hurts to use the bathroom. Can this get any worse?

I'm embarrassed to go to my OBGYN! And I'm not gonna let my Derm look at my girlie parts. I won't even let my husband look. HELL, I DON"T WANNA LOOK MYSELF!!!!!

Is GOD trying me? I have contemplated suicide in the past, but I have a 10 yr old daughter and I would NEVER leave her!

I was self diagnosed a few days ago. Decided to use a flush from the health foods and stay away from G as best I can.

Looking back, I think I've had this since I was about 13. I'm now 40 and just figuring it out. My Derm diagnosed me with DH a few years ago but she didn't explain it. Went home, googled it and saw that it mentioned iodine, which is in all shellfish and I knew I was allergic to that, so I fugured I would stay away from seafood. NOT WORKING! A few nights ago it was so bad, I got up and googled the DH again and read in depth. A lightbulb went off when I found this site.

So many of my symptoms matched the test.

Two miscarriages in the past 8 month, gas (all my life), DH, fatigue, irritability (who wouldn't be?), constipation and unexplained sudden bouts of joint pain.

There should be laws demanding gluten be labeled as such!

Good luck to you. Please wish me luck too.

pricklypear1971 Community Regular
pricklypear1971
Posted

Sorry to hear you have it down there Schelbo. My suspected DH (supposed to have it biopsied but doubting my strength to purposely gluten myself) is under my arms - so my lymph glands swell, i get pit b/o when the scans form, I can't wear a bra without aggravating it and causing pain...and since I'm a D cup that limits my life quite a bit during flares.

Do you notice that friction aggravates your DH? I've just gotten to the point where I know what it is and got it into remission and then accidentally glutened myself...so I haven't been able to test the friction theory.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. knitty kitty
      - knitty kitty commented on Scott Adams's article in Multiple Sclerosis and Celiac Disease
      3

      Gluten-Free Diet Linked to Reduced Inflammation and Improved Outcomes in Multiple Sclerosis (+Video)

      I worried at one point on my journey whether I had MS, having many of the symptoms myself. However, my symptoms improved dramatically with high dose thiamine hydrochloride, Benfotiamine, and Thiamine TTFD. Thiamine deficiency symptoms overlap with MS symptoms, including changes on brain MRIs. Thiamine deficiency affected my eyes (light sensitivity),...
    2. trents
      - trents replied to Matthias's topic in Coping with Celiac Disease
      1

      Unexpected gluten exposure risk from cultivated mushrooms

      Welcome to the celiac.com communiuty, @Matthias! Yes, we have been aware that this can be an issue with mushrooms but as long as they are rinsed thoroughly it should not be a problem since the mushrooms don't actually incorporate the gluten into their cellular structure. For the same reason, one needs to be careful when buying aged cheeses and products...
    3. Matthias
      - Matthias posted a topic in Coping with Celiac Disease
      1

      Unexpected gluten exposure risk from cultivated mushrooms

      The one kind of food I had been buying and eating without any worry for hidden gluten were unprocessed veggies. Well, yesterday I discovered yet another pitfall: cultivated mushrooms. I tried some new ones, Shimeji to be precise (used in many asian soup and rice dishes). Later, at home, I was taking a closer look at the product: the mushrooms were growing...
    4. trents
      - trents replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      how much gluten do I need to eat before blood tests?

      I might suggest you consider buckwheat groats. https://www.amazon.com/Anthonys-Organic-Hulled-Buckwheat-Groats/dp/B0D15QDVW7/ref=sr_1_4_pp?crid=GOFG11A8ZUMU&dib=eyJ2IjoiMSJ9.bk-hCrXgLpHqKS8QJnfKJLKbKzm2BS9tIFv3P9HjJ5swL1-02C3V819UZ845_kAwnxTUM8Qa69hKl0DfHAucO827k_rh7ZclIOPtAA9KjvEEYtaeUV06FJQyCoi5dwcfXRt8dx3cJ6ctEn2VIPaaFd0nOye2TkASgSRtdtKgvXEEXknFVYURBjXen...
    5. Scott Adams
      - Scott Adams replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      IBS-D vs Celiac

      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that y...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,328
    • Most Online (within 30 mins)
      7,748
    VerafromNJ
    Newest Member
    VerafromNJ
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • trents
      Unexpected gluten exposure risk from cultivated mushrooms

      By trents · Posted

      Welcome to the celiac.com communiuty, @Matthias! Yes, we have been aware that this can be an issue with mushrooms but as long as they are rinsed thoroughly it should not be a problem since the mushrooms don't actually incorporate the gluten into their cellular structure. For the same reason, one needs to be careful when buying aged cheeses and products containing yeast because of the fact that they are sometimes cultured on gluten-containing substrate.
    • Matthias
      Unexpected gluten exposure risk from cultivated mushrooms

      By Matthias · Posted

      The one kind of food I had been buying and eating without any worry for hidden gluten were unprocessed veggies. Well, yesterday I discovered yet another pitfall: cultivated mushrooms. I tried some new ones, Shimeji to be precise (used in many asian soup and rice dishes). Later, at home, I was taking a closer look at the product: the mushrooms were growing from a visible layer of shredded cereals that had not been removed. After a quick web research I learned that these mushrooms are commonly cultivated on a cereal-based medium like wheat bran. I hope that info his helpful to someone.
    • trents
      how much gluten do I need to eat before blood tests?

      By trents · Posted

      I might suggest you consider buckwheat groats. https://www.amazon.com/Anthonys-Organic-Hulled-Buckwheat-Groats/dp/B0D15QDVW7/ref=sr_1_4_pp?crid=GOFG11A8ZUMU&dib=eyJ2IjoiMSJ9.bk-hCrXgLpHqKS8QJnfKJLKbKzm2BS9tIFv3P9HjJ5swL1-02C3V819UZ845_kAwnxTUM8Qa69hKl0DfHAucO827k_rh7ZclIOPtAA9KjvEEYtaeUV06FJQyCoi5dwcfXRt8dx3cJ6ctEn2VIPaaFd0nOye2TkASgSRtdtKgvXEEXknFVYURBjXen1Nc7EtAlJyJbU8EhB89ElCGFPRavEQkTFHv9V2Zh1EMAPRno7UajBpLCQ-1JfC5jKUyzfgsf7jN5L6yfZSgjhnwEbg6KKwWrKeghga8W_CAhEEw9N0.eDBrhYWsjgEFud6ZE03iun0-AEaGfNS1q4ILLjZz7Fs&dib_tag=se&keywords=buckwheat%2Bgroats&qid=1769980587&s=grocery&sprefix=buchwheat%2Bgroats%2Cgrocery%2C249&sr=1-4&th=1 Takes about 10 minutes to cook. Incidentally, I don't like quinoa either. Reminds me and smells to me like wet grass seed. When its not washed before cooking it makes me ill because of saponins in the seed coat. Yes, it can be difficult to get much dietary calcium without dairy. But in many cases, it's not the amount of calcium in the diet that is the problem but the poor uptake of it. And too much calcium supplementation can interfere with the absorption of vitamins and minerals in general because it raises gut pH.
    • Scott Adams
      IBS-D vs Celiac

      By Scott Adams · Posted

      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that you carry HLA-DQ2.2 means celiac disease is absolutely possible, even if it’s less common than DQ2.5, and many people with DQ2.2 present later and are under-diagnosed. Your hesitation to reintroduce gluten is completely understandable — quality of life matters — and many people in your position choose to remain strictly gluten-free and treat it as medically necessary even without formal biopsy confirmation. If and when you’re ready, a physician can help you weigh options like limited gluten challenge, serology history, or documentation as “probable celiac.” What’s clear is that this wasn’t just random IBS — you identified the trigger, and your body has been very consistent in its response.
    • Scott Adams
      Question

      By Scott Adams · Posted

      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid multivitamin with essential nutrients in a readily absorbable form. MaryRuth's Morning Multivitamin w/ Hair Growth – Adds beauty-supporting ingredients (biotin, B vitamins), also gluten-free and easy to take. New Chapter Liquid Multivitamin and New Chapter Liquid Multivitamin Orange Mango – Fermented liquid form with extra nutrients and good tolerability if you prefer a whole-food-based formula. Nature's Plus Source Of Life Gold Liquid – Premium option with a broad spectrum of vitamins and plant-based nutrients. Floradix Epresat Adult Liquid Multivitamin – Highly rated gluten-free German-made liquid, good choice if taste and natural ingredients matter. NOW Foods Liquid Multi Tropical Orange – Budget-friendly liquid multivitamin with solid nutrient coverage.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.