Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Oh For The Love Of Mike

NoodleUnit

Recommended Posts

NoodleUnit Apprentice
NoodleUnit
Posted

Massive rookie error just now. Fancied an easy meal tonight, so I picked some Uncle Ben's Sweet and Sour. Felt the symptoms come on before I'd finished the plate :( It had no mention of anything gluten wise at all, but on their website it's rather confusingly indicated as not gluten free. The only thing I can imagine that contains gluten in the ingredients is the vinegar.

I'd been doing okay today too. Now I have a night of neurological hell ahead of me, not to mention the next few days. I've been having trouble with other things like dairy and nightshades, but this is the first time in weeks I've been glutened. Have I just reset the healing process to square one?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


GFreeMO Proficient
GFreeMO
Posted

Just a minor setback. No biggie. We all make mistakes. Back in the saddle! ;)

For me, I notice that if I do get glutened on accident, the worst thing that I can do is stress about it. It makes things worse.

Feel better!

kareng Grand Master
kareng
Posted

I have not heard of Uncle Ben's Sweet & Sour. In the US vinegar is apple based unless it says malt. Are you in another country? If it lists soy sauce, that could have wheat in it...Just looked at the UK website and the Sweet & sour sauce clearly lists wheat twice.

NoodleUnit Apprentice
NoodleUnit
Posted
  • Author

Can you point me to the link kareng? The ingredients on the bottle make no mention of wheat all, in any form.

NoodleUnit Apprentice
NoodleUnit
Posted
  • Author

Actually, found it. Open Original Shared Link

The sauce I had ( original ) has no mention of wheat, spicy does though.

lynnelise Apprentice
lynnelise
Posted
Open Original Shared Link
NoodleUnit Apprentice
NoodleUnit
Posted
  • Author

Thanks :)

The spicy one does list wheat, my one doesn't, yet if you go here:

Open Original Shared Link

... then the sauce is listed as not gluten free. All I know is I have very definitely been glutened. Even the back of my eye is burning.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


kareng Grand Master
kareng
Posted

Can you point me to the link kareng? The ingredients on the bottle make no mention of wheat all, in any form.

Your right that was the spicy. My old eyes didn't see that tiny print. The regular doesn't list wheat. Odd. You would think they were the same except for some extra peppers.

bartfull Rising Star
bartfull
Posted

Probably made in the same vat as the spicy. Cross contamination.

NoodleUnit Apprentice
NoodleUnit
Posted
  • Author

Probably made in the same vat as the spicy. Cross contamination.

Makes sense to me. Would explain why they don't check that gluten free box, for sure.

Thanks for the replies folks :)

  • 1 month later...
NoodleUnit Apprentice
NoodleUnit
Posted
  • Author

:(

I got done again today. Was assured by the waitress that the chef had said a sausage on my breakfast plate was gluten-free ( the rest of it couldn't have had gluten ), within 20 minutes I was starting to feel glutened, hours later I'm in a fairly bad way with GI symptoms, can't feel two fingers on my right hand ( it's almost as if my pinky and the next finger are taped together ), feel nauseous, extremely agitated ( like I've had waaay too much coffee - anyone else get that? ) and simply can't think straight.

Worse, my partner, probably rightly, thinks I was stupid to have the sausage in the first place, so now I'm in the dog house. I just can't seem to get my head round the idea that I really do have this condition.

Brooksbelle Newbie
Brooksbelle
Posted

Newbie here too!

My mistakes have been (in chronological order) Rice Krispies (malt!), Fried Green Tomatoes (breading--DUH!), Modified Food Starch (tricky).

The learning curve is steep--but I'm getting there. Reading a little bit every night to educate myself. Conclusion? Gluten is in about 95% of processed foods. :blink:

ravenwoodglass Mentor
ravenwoodglass
Posted

:(

I got done again today. Was assured by the waitress that the chef had said a sausage on my breakfast plate was gluten-free ( the rest of it couldn't have had gluten ), within 20 minutes I was starting to feel glutened, hours later I'm in a fairly bad way with GI symptoms, can't feel two fingers on my right hand ( it's almost as if my pinky and the next finger are taped together ), feel nauseous, extremely agitated ( like I've had waaay too much coffee - anyone else get that? ) and simply can't think straight.

Worse, my partner, probably rightly, thinks I was stupid to have the sausage in the first place, so now I'm in the dog house. I just can't seem to get my head round the idea that I really do have this condition.

Most sausages are gluten free. Perhaps there are some with gluten but I don't know of any offhand. The problem was more likely, IMHO cross contamination from the grill. Many places cook eggs, pancakes, french toast, bacon and sausage all on the same grill. Even though the grill is usually scraped that would not be enough to prevent CC. It is best if we ask that our food be cooked in a seperate clean pan. There are also some places that add a bit of pancake batter to their scrambled eggs to make them fluffier so if you should order scrambled eggs someplace make sure they don't do that.

kareng Grand Master
kareng
Posted

Most sausages are gluten free. Perhaps there are some with gluten but I don't know of any offhand. The problem was more likely, IMHO cross contamination from the grill. Many places cook eggs, pancakes, french toast, bacon and sausage all on the same grill. Even though the grill is usually scraped that would not be enough to prevent CC. It is best if we ask that our food be cooked in a seperate clean pan. There are also some places that add a bit of pancake batter to their scrambled eggs to make them fluffier so if you should order scrambled eggs someplace make sure they don't do that.

Actually, I have heard from people in the UK that many sausages are not gluten-free. In the States they almost always are gluten-free.

NoodleUnit Apprentice
NoodleUnit
Posted
  • Author

Yeah, unfortunately in the UK you have to be very careful, most sausages are padded out with wheat in some way. There are specific Free From varieties, but otherwise best to avoid it. Which is why I'm annoyed that the chef obviously wasn't switched on. I've been there before and they've always done me right, but this time it was a new chef.

Fairy Dancer Contributor
Fairy Dancer
Posted

You'd be surprised what they stick gluten in in the UK including the humble banger! Fortunately I rarely consume sausages whether I am eating gluten free or not as I prefer my meat to look as meat should...like err..meat...

kareng Grand Master
kareng
Posted

gluten free or not as I prefer my meat to look as meat should...like err..meat...

:lol:

Fillers in sausage or hot dogs Is considered cheap and poor quality here in the US.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,917
    • Most Online (within 30 mins)
      7,748
    tiffanygosci
    Newest Member
    tiffanygosci
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • tiffanygosci
      Does anyone here also have Afib

      By tiffanygosci · Posted

      Hi! I had my first episode of AFib last May when I was 30 (I have had some heart stuff my whole life but nothing this extreme). I was not diagnosed with celiac until the beginning of this month in October of 2025. I was in the early stages of celiac, so I'm not sure if they were related (maybe!) All of my heart tests came back normal except for my electrolytes (potassium and magnesium) that were low when the AFib occurred. I also became pregnant with our third and last baby a couple weeks after I came back from that hospital stay. I had no heart complications after that whole thing. And I still haven't over a year later. It was definitely scary and I hope it doesn't happen again. I drink an electrolyte drink mix about every day, and I'm sure being on a gluten-free diet will help my body even more! I will pray for you in this. Taking care of our bodies is so challenging but Jesus is with us every step of the way. He cares and He sees you!
    • knitty kitty
      Help I’m cross contaminating myself,

      By knitty kitty · Posted

      I followed the Autoimmune Protocol Diet which is really strict for a while, but later other foods can be added back into your diet.  Following the AIP diet strictly allows you digestive system to heal and the inflammation to calm down.  Sort of like feeding a sick baby easy to digest food instead of spicy pizza.   It's important to get the inflammation down because chronic inflammation leads to other health problems.  Histamine is released as part of the autoimmune response to gluten.  High histamine levels make you feel bad and can cause breathing problems (worsening asthma), cardiovascular problems (tachycardia), and other autoimmune diseases (Hashimoto's thyroiditis, diabetes) and even mental health problems. Following the low histamine version of the AIP diet allows the body to clear the histamine from our bodies.  Some foods are high in histamine.  Avoiding these makes it easier for our bodies to clear the histamine released after a gluten exposure.   Vitamin D helps regulate the immune system and calm it down.  Vitamin D is frequently low in Celiacs.  The B Complex vitamins and Vitamin C are needed to clear histamine.   Supplementing with essential vitamins and minerals boosts your intestines' ability to absorb them while healing.   Keep in mind that gluten-free facsimile foods, like gluten-free bread, are not enriched with added vitamins like their gluten containing counterparts are.   They are empty calories, no nutritional value, which use up your B vitamins in order to turn the calories into fuel for the body to function.   Talk to your doctor or nutritionist about supplementing while healing.  Take a good B Complex and extra Thiamine in the form Benfotiamine (shown to promote gut health).  Most B Complex vitamins contain thiamine mononitrate which the body cannot utilize.  Meats and liver are good sources of B vitamins.   Dr. Sarah Ballantyne wrote the book, the Paleo Approach.  She's a Celiac herself.  Her book explains a lot.   I'm so glad you're feeling better and finding your balance!
    • klmgarland
      Help I’m cross contaminating myself,

      By klmgarland · Posted

      So I should not eat my gluten free bread?  I will try the vitamins.  Thank you all so very much for your ideas and understanding.  I'm feeling better today and have gathered back my composure!
    • knitty kitty
      Taking Probiotics but Still Getting Sick After Gluten – Advice?

      By knitty kitty · Posted

      Some people prefer eating gluten before bed, then sleeping through the worst symptoms at night.  You might want to try that and see if that makes any difference.   Several slices of toast for breakfast sounds okay.  Just try to work up to the Ten grams of gluten.  Cookies might only have a half of a gram of gluten.  The weight of the whole cookie is not the same as the amount of gluten in it.  So do try to eat bread things with big bubbles, like cinnamon rolls.   Yeah, I'm familiar with the "death warmed over" feeling.  I hope you get the genetic test results quickly.  I despise how we have to make ourselves sick to get a diagnosis.  Hang in there, sweetie, the tribe is supporting you.  
    • Clear2me
      Gluten free nuts

      By Clear2me · Posted

      Thank you, a little expensive but glad to have this source. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.