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I was diagnosed with Celiac


kim-11

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kim-11 Newbie

I was diagnosed with Celiac and I have Heart Problems and I have other issues H pyloria that can not get rid of at all! I have a lot of questions but First is how do you deal with the swelling of the stomach all the time and diarrhea all the time and the joint pain and now they are checking me for lupus.

Also the doc. said that at times you have to be checked to see the damage of the sm. intestine.

They told me I have to eat Gluten Free (Expensive) and no species of Wheat no barley

Does anyone know or have a list of the foods I can eat or not eat. I am supposed to go to a nutritionist but the appointment has not been made.

They told me if left untreated it can cause all kinds of problems and that some of my health problems maybe related to this Celiac.

Help I have NO Clue about this disease


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psawyer Proficient

This should help you get started.

Unsafe ingredients: https://www.celiac.com/articles/182/1/Unsaf...ents/Page1.html

Safe ingredients: https://www.celiac.com/articles/181/1/Safe-...ents/Page1.html

A list of companies that has a clear gluten policy. If you don't see "wheat, rye, barley, barley malt, oats" on the labels, its not there, or hidden in "flavors, starches, etc." Open Original Shared Link This makes shopping MUCH easier.

FDA foods are required to list wheat - it cannot be hidden.

Rule #1: Never eat anything without reading the label first.

Rule #2: Consistently check labels, even of your favorite products, as product formulations can change.

Rule #3: If you are unsure of an ingredient, or the company's policy on labeling, call the phone number on the back of the product or email the company.

Hope this helps.

Coinkey Apprentice

Peter has given you a great start. As for keeping gluten free not as expensive, try to stick with shopping on the "outskirts" of the store. In essence this means - meat, fruit, veg, dairy and rice. All of which are not so expensive (like gluten-free breads etc). For the first month or so it's actually better to avoid the replacement foods because your stomach can be fooled into a reaction and your taste buds will reject the change in texture and flavor (in a few months they will "forget" the taste of gluten).

kledford Rookie

Hi Kim, I too am new to this, diagnosed in May and still have a lot to learn....I know that if you go to walmart or publix online they offer a shopping list of all the gluten free items in their store. Also, Publix has a gluten-free on the shelf label where the price is and that is helpful. I know that eating out is hard, I know I can have a couple of things at Wendy's (chili, uncut baked potatoe,frosty) just get a smartphone and google anything you have a question about before you eat/buy it... Hope this helps.

Skylark Collaborator

Those lists Peter linked are great. You absolutely have to stick to the diet strictly and you may get a lot healthier over the next few months. Avoid everything made from wheat, rye, or barley, plus some celiacs react to oats so avoid those too at first.

Gluten-free is only expensive if you buy a lot of the overpriced specialty foods. Rice and potatoes are cheap, and you'll be pretty much eating the same meat and vegetables as before. Have store brand ice cream for dessert (check for wheat ingredients like crushed cookies) instead of overpriced gluten-free cookies. You do have to cook a little more, but there are also popular brands like Progresso making gluten-free soups that aren't overpriced.

The only meal that's tricky is breakfast, but you can make hash browns or have gluten-free Rice Chex if you want "normal" foods. I do tend to keep a loaf of gluten-free bread around for breakfast if I've been too lazy to do any gluten-free baking.

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      EXACTLY! I was asked yesterday on my LAST video call with Standford and I stated exactly yes absolutely this is why I need the name! One, get proper care, two, not get worse.Im falling apart, stressed out, in pain and just opened email from Stanford stating I was rude ect.I want that video reviewed by higher ups and see if that women still has a job or not.Im saying this because I've been medically screwed and asking for help because bills don't pay itself. This could be malpratice siit but im not good at finding lawyers
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      We feel your pain. It took me 20+ years of regularly going to doctors desperate for answers only to be told there was nothing wrong with me … when I was 20 pounds underweight, suffering from severe nutritional deficiencies, and in a great deal of pain. I had to figure it out for myself. If you're in the U.S., not having an official diagnosis does mean you can't claim a tax deduction for the extra expense of gluten-free foods. But it can also be a good thing. Pre-existing conditions might be a reason why a health insurance company might reject your application or charge you more money. No official diagnosis means you don't have a pre-existing condition. I really hope you don't live in the U.S. and don't have these challenges. Do you need an official diagnosis for a specific reason? Else, I wouldn't worry about it. As long as you're diligent in remaining gluten free, your body should be healing as much as possible so there isn't much else you could do anyway. And there are plenty of us out here who never got that official diagnosis because we couldn't eat enough gluten to get tested. Now that the IL-2 test is available, I suppose I could take it, but I don't feel the need. Someone else not believing me really isn't my problem as long as I can stay in control of my own food.
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