Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I was diagnosed with Celiac


kim-11

Recommended Posts

kim-11 Newbie

I was diagnosed with Celiac and I have Heart Problems and I have other issues H pyloria that can not get rid of at all! I have a lot of questions but First is how do you deal with the swelling of the stomach all the time and diarrhea all the time and the joint pain and now they are checking me for lupus.

Also the doc. said that at times you have to be checked to see the damage of the sm. intestine.

They told me I have to eat Gluten Free (Expensive) and no species of Wheat no barley

Does anyone know or have a list of the foods I can eat or not eat. I am supposed to go to a nutritionist but the appointment has not been made.

They told me if left untreated it can cause all kinds of problems and that some of my health problems maybe related to this Celiac.

Help I have NO Clue about this disease


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



psawyer Proficient

This should help you get started.

Unsafe ingredients: https://www.celiac.com/articles/182/1/Unsaf...ents/Page1.html

Safe ingredients: https://www.celiac.com/articles/181/1/Safe-...ents/Page1.html

A list of companies that has a clear gluten policy. If you don't see "wheat, rye, barley, barley malt, oats" on the labels, its not there, or hidden in "flavors, starches, etc." Open Original Shared Link This makes shopping MUCH easier.

FDA foods are required to list wheat - it cannot be hidden.

Rule #1: Never eat anything without reading the label first.

Rule #2: Consistently check labels, even of your favorite products, as product formulations can change.

Rule #3: If you are unsure of an ingredient, or the company's policy on labeling, call the phone number on the back of the product or email the company.

Hope this helps.

Coinkey Apprentice

Peter has given you a great start. As for keeping gluten free not as expensive, try to stick with shopping on the "outskirts" of the store. In essence this means - meat, fruit, veg, dairy and rice. All of which are not so expensive (like gluten-free breads etc). For the first month or so it's actually better to avoid the replacement foods because your stomach can be fooled into a reaction and your taste buds will reject the change in texture and flavor (in a few months they will "forget" the taste of gluten).

kledford Rookie

Hi Kim, I too am new to this, diagnosed in May and still have a lot to learn....I know that if you go to walmart or publix online they offer a shopping list of all the gluten free items in their store. Also, Publix has a gluten-free on the shelf label where the price is and that is helpful. I know that eating out is hard, I know I can have a couple of things at Wendy's (chili, uncut baked potatoe,frosty) just get a smartphone and google anything you have a question about before you eat/buy it... Hope this helps.

Skylark Collaborator

Those lists Peter linked are great. You absolutely have to stick to the diet strictly and you may get a lot healthier over the next few months. Avoid everything made from wheat, rye, or barley, plus some celiacs react to oats so avoid those too at first.

Gluten-free is only expensive if you buy a lot of the overpriced specialty foods. Rice and potatoes are cheap, and you'll be pretty much eating the same meat and vegetables as before. Have store brand ice cream for dessert (check for wheat ingredients like crushed cookies) instead of overpriced gluten-free cookies. You do have to cook a little more, but there are also popular brands like Progresso making gluten-free soups that aren't overpriced.

The only meal that's tricky is breakfast, but you can make hash browns or have gluten-free Rice Chex if you want "normal" foods. I do tend to keep a loaf of gluten-free bread around for breakfast if I've been too lazy to do any gluten-free baking.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,202
    • Most Online (within 30 mins)
      7,748

    PatBurnham
    Newest Member
    PatBurnham
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
    • Scott Adams
      I will assume you did the gluten challenge properly and were eating a lot of gluten daily for 6-8 weeks before your test, but if not, that could be the issue. You can still have celiac disease with negative blood test results, although it's not as common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
    • Xravith
      I'm very confused... My blood test came out negative, I checked all antibodies. I suppose my Total IgA levels are normal (132 mg/dl), so the test should be reliable. Still, I'm not relieved as I can't tolerate even a single biscuit. I need to talk to my doctor about whether a duodenal biopsy is necessary. But it is really possible to have intestinal damage despite having a seronegative results? I have really strong symptoms, and I don't want to keep skipping university lectures or being bedridden at home.
    • Scott Adams
      They may want to also eliminate other possible causes for your symptoms/issues and are doing additional tests.  Here is info about blood tests for celiac disease--if positive an endoscopy where biopsies of your intestinal villi are taken to confirm is the typical follow up.    
    • Scott Adams
      In the Europe the new protocol for making a celiac disease diagnosis in children is if their tTg-IgA (tissue transglutaminase IgA) levels are 10 times or above the positive level for celiac disease--and you are above that level. According to the latest research, if the blood test results are at certain high levels that range between 5-10 times the reference range for a positive celiac disease diagnosis, it may not be necessary to confirm the results using an endoscopy/biopsy: Blood Test Alone Can Diagnose Celiac Disease in Most Children and Adults TGA-IgA at or Above Five Times Normal Limit in Kids Indicates Celiac Disease in Nearly All Cases No More Biopsies to Diagnose Celiac Disease in Children! May I ask why you've had so many past tTg-IgA tests done, and many of them seem to have been done 3 times during short time intervals?    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.