Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Food Intolerance Question ?

glutenfreegirl

Recommended Posts

glutenfreegirl Enthusiast
glutenfreegirl
Posted

Hi, can anyone tell me, do you think our individual food intolerance is because of our damaged intestine or because of our blood type? I just read a book called eat right for your blood type and I am now more confussed than ever??...advice and opinions please

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


burdee Enthusiast
burdee
Posted

Hi, can anyone tell me, do you think our individual food intolerance is because of our damaged intestine or because of our blood type? I just read a book called eat right for your blood type and I am now more confussed than ever??...advice and opinions please

I vote for damaged intestines, which allowed undigested proteins to leak into my blood and form antibodies. I suspect I had undiagnosed celiac over 30 years. I know I didn't have all these allergies/intolerances when I was in my 20s. The food sensitivities got worse over the years, while I had undiagnosed celiac disease. After my celiac disease diagnosis and then diagnoses of 6 other food allergy/intolerances, I have not developed any new food sensitivities. So I suspect abstaining from gluten and letting my gut heal prevented development of new allergies.

glutenfreegirl Enthusiast
glutenfreegirl
Posted
  • Author

I vote for damaged intestines, I suspect I had undiagnosed celiac over 30 years. I know I didn't have all these allergies/intolerances when I was in my 20s.

Ahhh, good point... Never looked at it that way....thank you

mushroom Proficient
mushroom
Posted

I vote for leaky gut syndrome, the leaky gut being caused by gluten. It lets through larger molecules of partially digested food which our bodies do not recognize and the autoimmune system attacks them as non-self. The food(s) you become intolerant to tend to be those you eat the most of. Healing the leaky gut prevents these undigested foods from getting through and setting off the autoimmune reactions. Sometimes we can again eat those foods that we were formerly intolerant of in their partially digested state.

Harpgirl Explorer
Harpgirl
Posted

I read somewhere this week (though exactly where escapes me) that the villi in the small intestine that are blunted by a gluten diet if you celiac have issues with digesting other things such as dairy. The tips of the villi is where lactase is absorbed and if it can't do that because the villi are blunted, well, that's how you become lactose intolerant. It made so much sense to me because twice in my life, I've been lactose intolerant (severely), but then it went away. While lactose intolerant I would avoid even bread because it was made with dairy and cause my belly to knot up. I probably avoided enough gluten that my intestine had a chance to heal enough for me to eat dairy again.

Bear in mind that I haven't been officially diagnosed with Celiac yet, so this is all speculation anyway.

cassP Contributor
cassP
Posted

i vote both. plus i bet there are even more reasons for additional food intolerance.... like SIBO, a recent H Pylori infection, LOW Stomach acid, etc...

i recently learned this week that Hypothyroid patients tend to have LOW stomach acid- which makes perfect sense now- with all the problems with digestion my mother and i have had. and my Endo prescribed me prescription strenth Zantac :huh:

jerseyangel Proficient
jerseyangel
Posted

I vote for leaky gut syndrome, the leaky gut being caused by gluten. It lets through larger molecules of partially digested food which our bodies do not recognize and the autoimmune system attacks them as non-self. The food(s) you become intolerant to tend to be those you eat the most of. Healing the leaky gut prevents these undigested foods from getting through and setting off the autoimmune reactions. Sometimes we can again eat those foods that we were formerly intolerant of in their partially digested state.

Yes, this is it exactly.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


glutenfreegirl Enthusiast
glutenfreegirl
Posted
  • Author

i vote both. plus i bet there are even more reasons for additional food intolerance.... like SIBO, a recent H Pylori infection, LOW Stomach acid, etc...

i recently learned this week that Hypothyroid patients tend to have LOW stomach acid- which makes perfect sense now- with all the problems with digestion my mother and i have had. and my Endo prescribed me prescription strenth Zantac :huh:

Ahha, I too have hashi and did nt know that...I have had terrible stomach pain and bloat this week!! Thanks for that info...

Thank you all for your thoughts ....

cassP Contributor
cassP
Posted

Ahha, I too have hashi and did nt know that...I have had terrible stomach pain and bloat this week!! Thanks for that info...

Thank you all for your thoughts ....

ahhh, then u might want to look into helping your stomach with the acid problem... you could start with just a little Betaine HCI w/ Pepsin, and Digestive Enzymes. start with just 1 of the Betaine HCI, (you wanna proceed with caution- as these are almost identical to stomach acid.

some people cannot tolerate the Betaine at all- so they are encouraged to try Apple Cider vinegar

maybe if you get your stomach working properly, some of these additional intolerances will disappear. ??

glutenfreegirl Enthusiast
glutenfreegirl
Posted
  • Author

ahhh, then u might want to look into helping your stomach with the acid problem... you could start with just a little Betaine HCI w/ Pepsin, and Digestive Enzymes. start with just 1 of the Betaine HCI, (you wanna proceed with caution- as these are almost identical to stomach acid.

some people cannot tolerate the Betaine at all- so they are encouraged to try Apple Cider vinegar

maybe if you get your stomach working properly, some of these additional intolerances will disappear. ??

I have been reading up since I read your post....it sounds like me and all my symptoms...but it said low acid and high acid have the same symptoms..I wonder how we know the difference ...my GP gave me antacids the other day I have not yet taken them, maybe I shouldn't...

cassP Contributor
cassP
Posted

I have been reading up since I read your post....it sounds like me and all my symptoms...but it said low acid and high acid have the same symptoms..I wonder how we know the difference ...my GP gave me antacids the other day I have not yet taken them, maybe I shouldn't...

its so complicated. i think we get acid reflux with LOW stomach acid- because that esophageal sphincter may loosen when you have LOW stomach acid- and then the little acid you have escapes up into the esophagus. in theory- if the stomach has adequate stomach acid- then that sphincter would naturally clamp down to keep the acid inside. does that make sense? it IS 3:30 in the mrning :/

there is a test- but it's like over 300$. i had it years ago. the Heidelberg test. it measures your stomach acid, and emptying time.

i, personally would never take an antacid unless i was in the middle of an ulcer- especially at night.

also- i read that melatonin helps to strengthen that sphincter so it will stay "shut". ??

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. catnapt
      - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      results from 13 day gluten challenge - does this mean I can't have celiac?

      so do you have celiac or not? 🤔 why are your vision issues undiagnosed? 😢 what does your ophthalmologist say? do you have a serious vit A deficiency? what do you take for it? how long have you had celiac disease and how long did it take to get a diagnosis? if you are legally blind there are adaptive devices that will help ...
    2. knitty kitty
      - knitty kitty replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      results from 13 day gluten challenge - does this mean I can't have celiac?

      @catnapt, I apologize. Obviously I've confused you with someone else. I have vision problems due to undiagnosed Celiac complications. Being legally blind, y'all look the same from here. You still have not said which new medication you started taking. Parathyroid disorders can affect antibody production. Bone Loss Correlated with Parathyroid...
    3. catnapt
      - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      results from 13 day gluten challenge - does this mean I can't have celiac?

      during the gluten challenge I did not consume any wheat germ the wheat germ is TOASTED - it's the only way it is sold now afiak doesn't matter I consume vast amounts of lectin containing foods PROPERLY prepared and have for well over a decade. They do not bother me in the least. no anemia however the endo who ordered...
    4. knitty kitty
      - knitty kitty replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      results from 13 day gluten challenge - does this mean I can't have celiac?

      @catnapt, I'm sorry you're having such a rough time. How much wheat germ and how much gluten were you eating? Lectins in beans can be broken down by pressure cooking them. Do you pressure cook your beans? Were you pressure cooking your wheat germ? What drugs are you taking? Some immunosuppressive drugs affect IgA production. Do...
    5. catnapt
      - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      results from 13 day gluten challenge - does this mean I can't have celiac?

      oops my gluten challenge was only 12 days It started Jan 21s and ended Feb 1st worst 12 days of my life Does not help that I also started on a thiazide-like drug for rule in/out renal calcium leak at the exact same time No clue if that could have been symptoms worse 🤔
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,368
    • Most Online (within 30 mins)
      7,748
    Helen1984
    Newest Member
    Helen1984
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • catnapt
      results from 13 day gluten challenge - does this mean I can't have celiac?

      By catnapt · Posted

      so do you have celiac or not? 🤔 why are your vision issues undiagnosed? 😢 what does your ophthalmologist say?  do you have a serious vit A deficiency? what do you take for it? how long have you had celiac disease and how long did  it take to get a diagnosis?   if you are legally blind there are adaptive devices that will help you. I have vision difficulties as well but did not qualify (at least not yet)   do you have a vit A deficiency? why are you undiagnosed? what does your ophthalmologist say? I have a retinal specialist and he tells me my eye condition can not be fixed- until/unless it gets to the point of where surgery is safer since the surgery can leave me actually blind... so you want to wait til it gets really bad 🤪     I hope you find what works for you.    PS   the medication I started at the same time as the gluten challenge is obvious from the condition it's trying to treat. you can google it 😉 it is not an for any auto immune condition.   
    • knitty kitty
      results from 13 day gluten challenge - does this mean I can't have celiac?

      By knitty kitty · Posted

      @catnapt,  I apologize.  Obviously I've confused you with someone else.  I have vision problems due to undiagnosed Celiac complications.  Being legally blind, y'all look the same from here.   You still have not said which new medication you started taking.  Parathyroid disorders can affect antibody production.  Bone Loss Correlated with Parathyroid Hormone Levels in Adult Celiac Patients https://pubmed.ncbi.nlm.nih.gov/36619734/ Effect of vitamin B1 supplementation on bone turnover markers in adults: an exploratory single-arm pilot study https://pmc.ncbi.nlm.nih.gov/articles/PMC12075007/
    • catnapt
      results from 13 day gluten challenge - does this mean I can't have celiac?

      By catnapt · Posted

      during the gluten challenge I did not consume any wheat germ   the wheat germ is TOASTED - it's the only way it is sold now afiak doesn't matter I consume vast amounts of lectin containing foods PROPERLY prepared and have for well over a decade. They do not bother me in the least.    no anemia however the endo who ordered the celiac panel is the one who suggested the 2 week gluten challenge of eating at least 2 slices of bread per day or a serving of pasta- ALSO put me on a new drug at the same time (not a good idea)  I ate 4 slices because they were thin, or 2 English muffins, and just once some lasagna that someone else made since I stopped eating wheat pasta years ago. The English muffins caused some of the worst symptoms but that pc of lasagna almost killed me ( not literally but the pain was extreme) during those 12 days there were at least 3 times I considered going to Urgent Care.   This entire process was a waste of time TBH due to being on that new drug at the exact same time. it is impossible to tell if the drug I am taking for the possible renal calcium leak is working or not- given the dramatic response to the gluten challenge and resulting nausea (no vomiting) and eventually a loss of appetite and lower intake of foods so now I have a dangerously low potassium level   I don't have a simple case of celiac or no- I have an extremely complicated case with multiple variables I am seeing an endocrinologist for a problem with the calcium sensing glands - that system is very complicated and she has been unable to give me a firm diagnosis after many tests with confusing and often alarming results. She also appears to be inexperienced and unsure of herself. but I don't have the luxury of finding a new endo due to multiple issues of insurance, lack of drs in my area, money and transportation. so I'm stuck with her At least she hasn't given up    in any case I can assure you that lectins are not and never were the problem. I know they are a favorite villain in some circles to point to, but I have ZERO symptoms from my NORMAL diet which DOES NOT contain gluten. The longer I went without bread or foods with wheat like raisin bran cereal, the better I have felt. my body had been telling me for several years that wheat was the problem- or maybe specifically gluten, that remains to be seen- and stopping eating it was the best thing I could have done   I almost had unnecessary MAJOR SURGERY due to joint pain that I ONLY have if I am eating bread or related products I assumed it was the refined grains - never really suspected gluten but it does not matter I won't put that poison in my body ever again not that it is literally poison but it is def toxic to me        
    • knitty kitty
      results from 13 day gluten challenge - does this mean I can't have celiac?

      By knitty kitty · Posted

      @catnapt,  I'm sorry you're having such a rough time.   How much wheat germ and how much gluten were you eating? Lectins in beans can be broken down by pressure cooking them.  Do you pressure cook your beans?  Were you pressure cooking your wheat germ? What drugs are you taking?  Some immunosuppressive drugs affect IgA production.  Do you have anemia?
    • catnapt
      results from 13 day gluten challenge - does this mean I can't have celiac?

      By catnapt · Posted

      oops my gluten challenge was only 12 days It started Jan 21s and ended Feb 1st   worst 12 days of my life   Does not help that I also started on a thiazide-like drug for rule in/out renal calcium leak at the exact same time No clue if that could have been symptoms worse 🤔
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.