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Help With Healing


milkmommy

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milkmommy Apprentice

Depite being gluten free for 2.5 months I am still unwell. I'm hoping to get some advice for what I can take to get my body healing better/faster.

The only nutrient deficiency i have been tested for is ferritin which is low at 10 and is dropping my hgb abit to 112. But the dr says there is no point taking supplements because I won't absorb them till I'm healed.

I'm sick of being sick and appreciate any advice no matter how small.


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Marilyn R Community Regular

Welcome to the forum, Milkmommy :)

Many members have found that eliminiating soy and dairy for the first 2-3 months helps with the recovery process. Despite the information you received from your doctor (if any), some of the alternative grains can also be problematic while you are healing.

What are you eating? List what you've eaten for the past 3 days and I bet somebody on the forum will be able to give you good advice.

Many of us have found that just eating simple root vegetables and meats or seafoods are best at first. I haven't had a problem with fresh fruits, but some members have a fructose intolerance. Good luck, you will feel better when you figure out what's bugging you, and everyone wants to help. :D

T.H. Community Regular

Some other information that might help us folks here see what we can brainstorm with would be:

Are you living in a household with other gluten eaters?

Are you dating or married to someone who eats gluten?

Do you have pets? What are they fed?

Do you work in the food industry where gluten is around?

Do you work in construction?

Did you buy any new equipment/pots and pans/cutting boards and such?

What do you do to avoid cross-contamination of gluten with your food?

Do you eat out much?

Have you been tested for food allergies?

Have you been tested for any intolerances?

Do you wash your produce with soap and water?

And...that's all I can think of, at the moment, LOL

milkmommy Apprentice

thank you for responding.

To Marilyn

The last few days I have eaten enjoy life berry cereal with yogurt every morning, pineapple, plain bbq chicken, broccoli, ice cream, baked sweet potatoes, baked white potato, sour cream, chives, sunbutter snack bars, havarti cheese, orange juice, vitamin water, chex cereal, apples, homemade cheeseburger.

To T.H.

Are you living in a household with other gluten eaters? Yes, my husband and 2 yr old daughter

Are you dating or married to someone who eats gluten? Yes

Do you have pets? What are they fed? Dog is allergic to all grains - eats duck/potato food, cat eats hills celiac disease diet

Do you work in the food industry where gluten is around? NO

Do you work in construction? no

Did you buy any new equipment/pots and pans/cutting boards and such? no, cant afford to at the moment(dont use the toaster though)

What do you do to avoid cross-contamination of gluten with your food? I dont let my food touch surfaces that havent been washed

Do you eat out much? Ate out once - had the cardboard pizza they call gluten free

Have you been tested for food allergies?Have you been tested for any intolerances? the dr didnt bring it up and when i asked said i didnt need it, althought I would like to be tested. Should I ask again? do I ask my family dr or gi? neither are very helpful. The didnt even check my vitamin levels or bone scan after diagnoses like i thought they were supposed to. Only check ferritin

Do you wash your produce with soap and water? Sometimes....when I eat apples but not if im baking the produce such as potatoes. I just use water for them.

hopefully these answers spark some ideas. Im getting very frustrated with no one to talk to and feeling ill all the time. I thought since I was diagnosed the drs were going to take me seriously but I guess that was a dream.

Poppi Enthusiast

The 2 year old is probably keeping you sick. I have a 2 year old daughter (as well as 6, 16, 17 and 20 year old kids in the house) and she is the #1 cause of my glutenings. In fact the whole house is now 100% gluten free to keep me healthy.

Little ones just aren't good at containing their crumbs. She would eat a sandwich, spread crumbs all over the table and her clothes, drop some on the floor, touch all over the back of her chair, run her hands through her hair and then she'd run off and sit on the couch or touch the bathroom door handle or even go in the bathroom and decide to use my toothbrush. Then of course she wants to hug and kiss me and stick her fingers in my mouth or take a drink of my tea when I'm not looking. I get flare ups of pain from non-visible amount of gluten so having her contaminating every surface was a disaster. I wiped counters and washed my hands until they bled and it didn't help.

I would sit down and talk to your husband about the whole family being gluten free in the house at least. I know it's expensive, I am now figuring out how to feed a family of 7 gluten free! It's important though.

milkmommy Apprentice

The 2 year old is probably keeping you sick. I have a 2 year old daughter (as well as 6, 16, 17 and 20 year old kids in the house) and she is the #1 cause of my glutenings. In fact the whole house is now 100% gluten free to keep me healthy.

Little ones just aren't good at containing their crumbs. She would eat a sandwich, spread crumbs all over the table and her clothes, drop some on the floor, touch all over the back of her chair, run her hands through her hair and then she'd run off and sit on the couch or touch the bathroom door handle or even go in the bathroom and decide to use my toothbrush. Then of course she wants to hug and kiss me and stick her fingers in my mouth or take a drink of my tea when I'm not looking. I get flare ups of pain from non-visible amount of gluten so having her contaminating every surface was a disaster. I wiped counters and washed my hands until they bled and it didn't help.

I would sit down and talk to your husband about the whole family being gluten free in the house at least. I know it's expensive, I am now figuring out how to feed a family of 7 gluten free! It's important though.

I think you are right about the 2 year old. She puts her food everywhere. I tried making her gluten free but she only eats a few foods and she wasnt getting enough to eat. I am wondering if she has celiac - her ttg and iga came back normal but her igg was off the charts. about the contamination - she spills cheerios and pasta freequently and even puts it on me. We are very close so she is also climbing all over me with food on her face and hands before i can clean it.

My husband leaves crumbs on the counter and puts pizza in the mocrowave without a plate, and many other contaminating things. I try hard to clean up after them both and he does sometimes but most of the time i just seem like a nag so he rolls his eyes.

ps poppi - you look very familiar

Poppi Enthusiast

I think you are right about the 2 year old. She puts her food everywhere. I tried making her gluten free but she only eats a few foods and she wasnt getting enough to eat. I am wondering if she has celiac - her ttg and iga came back normal but her igg was off the charts. about the contamination - she spills cheerios and pasta freequently and even puts it on me. We are very close so she is also climbing all over me with food on her face and hands before i can clean it.

My husband leaves crumbs on the counter and puts pizza in the mocrowave without a plate, and many other contaminating things. I try hard to clean up after them both and he does sometimes but most of the time i just seem like a nag so he rolls his eyes.

ps poppi - you look very familiar

Your husband needs to be on board. I would sit him down and be very frank with him. Let him know that you want more than anything to be happy and healthy but you can't do it without his cooperation. It's a hard adjustment and it took a month or two for my husband to really get the difference between me feeling great and me feeling awful. He likes happy, healthy, energetic me much better than the me that lays on the couch with a heating pad. It was ultimately his idea to make the whole house gluten free. We have an extra kitchen downstairs and we will probably allow the 3 teenagers to make themselves gluten lunches down there during the school year as long as they clean up well and never bring the food upstairs.

Your 2 year old will adjust. They are stubborn as heck at that age but ultimately fairly malleable. She'll whine about her cheerios but honey nut rice chex are pretty awesome. Lily misses her Campbell's chicken noodle soup pretty bad but she loves yogurt and blueberries, white cheddar popcorn and the pancakes I make with Pamela's baking mix (I cook these in cast iron to get more iron into her). I make up any deficiencies in her diet with protein shakes and smoothies with Vega whole food smoothie infusion powder.

If your daughter likes oatmeal you can switch over to steel cut oats from Only Oats or Bob's Red Mill (buy the ones marked gluten free). More fiber and good stuff than regular oatmeal and safe for you too. I put 1 cup of steel cut oats in a pot, add 4 cups of water, bring to a boil, turn off the heat, put on a lid and leave it overnight. The next morning just stir and reheat.

I've never been further east than Winnipeg so unless you're originally from the Island we've probably never met.


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milkmommy Apprentice

I'll try having another talk with him.

My little girl won't eat smoothies or oatmeal. :(

She has a hard time with textures and taste of different foods and will only eat cheerios, banana/rice baby cereal, broccoli, artichokes, bananas, pasta, rice, and cheese. She is still breastfed to help fill the nutritional gaps.

Im beginning to wonder if I am allergic to alot of foods in addition to gluten.

Ive never been out west so I guess I've never met you.

Poppi Enthusiast

Well out of that list the only thing that is really hard to replace is cheerios. Everything else is safe and you can use any of the gluten free pastas. Mrs. Leeper's makes a package that is fun shapes like cars and elephants.

Give the rice chex a try if you find them. She won't starve. I'm not saying it's easy. My daughter lives on fruit, yogurt, oatmeal and the occasional muffin or pancake. She misses her chicken noodle soup but at the end of the day my health (and yours) takes precedent over a 2 year old being picky and stubborn.

It says in your signature that you have SEVERE damage. Your husband needs to take this seriously. This is where those "sickness and health" vows come into play. He promised to take care of you and now he gets to stand up to that promise, nobody said it was going to be fun or easy.

For example - My husband had to have a vasectomy because of a blood disorder I have. Being pregnant is very dangerous for me, I can have a stroke before I even know I'm pregnant. I'm also allergic to latex and the only reasonable solution to the problem was for him to get snipped. He didn't like it but ultimately it was that or celibacy.

Kim69 Apprentice

Hi guys. We made half of the best kitchen bench gluten free. I feel so much safer now that I have my bench which I keep clean. The rest of the family leave bread crumbs (poison as I call it) all over the rest of the kitchen agh!

My husband and 2 teenagers refuse to go gluten-free. My son even suggested I get my own apartment! Teenagers! I am not sure if he was joking.

I got all the blood tests, fructose and lactose breath tests and the bone density test. The bone density test shows I have osteopenia. I am positive for both fructose and lactose. Iron vit d calcium and zinc are my supplements based on blood tests. B vit group is another you might like to get done.

Onion, apples and pears are the worst things to eat if you are fructose malabsorbent. I also have problems with legumes so I have given up on being vegetarian :(

milkmommy Apprentice

Hi guys. We made half of the best kitchen bench gluten free. I feel so much safer now that I have my bench which I keep clean. The rest of the family leave bread crumbs (poison as I call it) all over the rest of the kitchen agh!

My husband and 2 teenagers refuse to go gluten-free. My son even suggested I get my own apartment! Teenagers! I am not sure if he was joking.

I got all the blood tests, fructose and lactose breath tests and the bone density test. The bone density test shows I have osteopenia. I am positive for both fructose and lactose. Iron vit d calcium and zinc are my supplements based on blood tests. B vit group is another you might like to get done.

Onion, apples and pears are the worst things to eat if you are fructose malabsorbent. I also have problems with legumes so I have given up on being vegetarian :(

Today I came down to the kitchen and my husband left a half eaten piece of bread on the counter surrounded by crumbs!!!! POISON. And that was the counter I asked to be gluten free!!! He knows better but I can't get him to comply. He just doesn't think of it when he does these things, I guess.

I will try to get further testing done if the dr with go for it

Marilyn R Community Regular

Sound like it's time to have the "Come to Jesus" talk with your husband. This is a disease, it isn't a choice. celiac disease can lead to a number of serious medical problems if you continually get glutened by his carelessness. He needs to step up to the plate and help, not hinder.

He needs to have his toast on a paper plate or towel, and throw what's left over in the trash. He needs to make sure that your utensil drawer is closed when he's buttering his toast.

My mom used to make white rice. When it was done, she'd add brown sugar, butter and plumped raisins. She served it warm for breakfast or dessert. It was delicious, inexpensive and I loved it. Do you think your toddler would go for that? (Like for two cups cooked rice, 1/3 cup brown sugar, 2 T. butter and 1/3 cup plumped raisins.)

I would ask to have my Vitamin D and B-12 levels checked. And I'd try eliminating dary for 1 weeek to see if you improve. (You can use coconut oil or canola oil vs. butter.) Good luck, wish you well! P.S.

Nursing can't help. Are you taking calcium supplements?

Poppi Enthusiast

Today I came down to the kitchen and my husband left a half eaten piece of bread on the counter surrounded by crumbs!!!! POISON. And that was the counter I asked to be gluten free!!! He knows better but I can't get him to comply. He just doesn't think of it when he does these things, I guess.

I will try to get further testing done if the dr with go for it

Hell no. This is no different than blowing cigarette smoke in your face or taking the seatbelts out of your car. You have positive blood and biopsy results. Continual gluten exposure will likely shorten your life span, his carelessness won't kill you today or tomorrow but the long term effects are nothing to mess around with. This disease can kill you, it just takes a long time and cripples you first.

I would be raising hell if I were you. If he can't be meticulous about his preparation and clean up of gluten foods then you have every right to ban them from your home.

I am generally not one for being passive aggressive or nasty but if I were in your situation I would just clean out the kitchen when he was at work and toss every single gluten food. If he bought more I'd toss that too. This is important and if he can't understand that and make this a team effort then I'd be prepared to stand up and fight for your health and safety.

It may seem like I'm over reacting here but for me a single crumb in my peanut butter jar can make me sick for 2 weeks. With your severe damage I suspect you are the same.

milkmommy Apprentice

My mom used to make white rice. When it was done, she'd add brown sugar, butter and plumped raisins. She served it warm for breakfast or dessert. It was delicious, inexpensive and I loved it. Do you think your toddler would go for that? (Like for two cups cooked rice, 1/3 cup brown sugar, 2 T. butter and 1/3 cup plumped raisins.)

I would ask to have my Vitamin D and B-12 levels checked. And I'd try eliminating dary for 1 weeek to see if you improve. (You can use coconut oil or canola oil vs. butter.) Good luck, wish you well! P.S.

Nursing can't help. Are you taking calcium supplements?

I can try the rice recipe, ill try anything at this point. I even tried a cereal that looks just like cheerios but she just wouldnt eat it.

Im not on any supplements, i was told I wouldnt absorb them until I was healed. I am going to go and get some though because even if i only absorb a small amount its better than nothing. Despite eating lots of broccoli, meat and beans my iron is still dropping. Gotta push to get other levels tested.

Hell no. This is no different than blowing cigarette smoke in your face or taking the seatbelts out of your car. You have positive blood and biopsy results. Continual gluten exposure will likely shorten your life span, his carelessness won't kill you today or tomorrow but the long term effects are nothing to mess around with. This disease can kill you, it just takes a long time and cripples you first.

I would be raising hell if I were you. If he can't be meticulous about his preparation and clean up of gluten foods then you have every right to ban them from your home.

I am generally not one for being passive aggressive or nasty but if I were in your situation I would just clean out the kitchen when he was at work and toss every single gluten food. If he bought more I'd toss that too. This is important and if he can't understand that and make this a team effort then I'd be prepared to stand up and fight for your health and safety.

It may seem like I'm over reacting here but for me a single crumb in my peanut butter jar can make me sick for 2 weeks. With your severe damage I suspect you are the same.

OH YA!!! I couldnt believe it!! I feel so defeated in this battle. He just laughed like it was funny as he apologized!!! so disrespectful. I do all the shopping and most of the cooking so I told him I wouldnt buy any more bread until he learned to clean up after himself. And I did groceries today and didnt buy it just like I said. I know it seems mean but I dont know what else to do.

Poppi Enthusiast

OH YA!!! I couldnt believe it!! I feel so defeated in this battle. He just laughed like it was funny as he apologized!!! so disrespectful. I do all the shopping and most of the cooking so I told him I wouldnt buy any more bread until he learned to clean up after himself. And I did groceries today and didnt buy it just like I said. I know it seems mean but I dont know what else to do.

It's not mean. You are protecting yourself. I cannot believe he laughed! I'm so angry on your behalf.

GlutenFreeManna Rising Star

OH YA!!! I couldnt believe it!! I feel so defeated in this battle. He just laughed like it was funny as he apologized!!! so disrespectful. I do all the shopping and most of the cooking so I told him I wouldnt buy any more bread until he learned to clean up after himself. And I did groceries today and didnt buy it just like I said. I know it seems mean but I dont know what else to do.

It sounds like you just need to start cooking EVERYTHING gluten free. If you do the shopping and the cooking this should not be too hard. He will adjust so long as you have lots of food on hand. Don't break down and buy anythign with gluten. If he's a hearty eater like my husband then make lots of heavy satisfying (AKA "manly") foods like chili, steak and potatoes, tacos, grilled BBQ chicken, pork chops, etc. For snacks he can do nachos, popcorn, tortilla chips and salsa, potato chips, some types of Doritos (ranch is gluten-free I hear), snickers bars, ice cream, and tons of other junk food that just happens to already be gluten-free. There are lots of normal gluten-free meals that don't have gluten. He will adjust. Seriously. This is for your health. You're not doing it to be mean. In fact, your hubby is being pretty mean by leaving out poisin and laughing about it. Ask him if he would like it if you smeared the counters with baby poop and just left it like that and laughed. Would he laugh if you left an open box of rat poision on the floor where your baby could get it and eat it? Would he ever smear raw meat all over the counters and not wash his hands or not wash the counter top surface? Hopefully not. Hopefully he knows that raw meat can give people salmenella or e.coli AKA FOOD POISONING! What he is doing is the equivalent of giving you food poisioning everytime he prepares gluten food and does not clean up. You must also have him brush his teeth before he kisses you if he is goign to eat gluten. Do NOT underestimate the power of that one quick kiss to make you sick.

GFinDC Veteran

Maybe hubby doesn't really understand the seriousness of celiac disease. Men on very rare, once in a phtalo blue moon occasions can be a tad dense. I should know, I is one! :)

But a little education can go a long way too. There is a whole long list of associated conditions and related diseases that celiacs are more prone to get when they are not gluten-free. Have him read through the link list below, it will only take a day or so to review.

Celiac Disease Research: Associated Diseases and Disorders

My guess at this point is cross contamination. There are other possible food intolerances, like nightshades, dairy, and soy to consider also. However, until you get the CC under control, you are fighting a losing battle. Your immune system has a very important job to do, protecting you from tiny, invisible germs that could kill you. It doesn't overlook what by comparison are enormous mountains of gluten (crumbs) that are accidently ingested. Also, your immune system doesn't stop working/attacking on a dime. It can continue making antibodies for weeks or possibly months after an exposure. And it always keeps that memory of how to make antibodies to an invader handy for any small future incursion. That's what we call "immunity" our immune system being at the ready to produce an army of antibodies on a moments notice. Our bodies treat gluten as an invader and send antibodies to attack it. In the process those antibodies attack our own tissue also and that's where the non-fun starts. Hubby may not understand, I sure didn't at first until read a lot of stuff. Maybe tell him you are in an auto-immunity war, men like that kind of talk.

milkmommy Apprentice

He seems to understand celiac disease in theory and why I can't be contaminated but when it comes to real life he doesn't think when he does things.

I only cook gluten free meals because I'm refuse to make 2. sometimes I will make my daughter gluten food and I do buy things my hubby can quickly heat up like pizza pocket,etc because he tends to eat frequently. I am slowly finding alternatives for them without gluten like the gluten free ice cream cones, rice instead of pasta.

It may be to soon but I think I am one of the super sensitive ones so my goal is no gluten in the house.

And yes, he would leave meat contamination everywhere if I weren't nagging at him not too!! I'm a nurse so I am very cautious about food poisoning but he thinks nothing of touching raw meat and not washing his hands or counter!! He is getting better with it but I have to nag. I hate being a nag !!!!!

Im going to talk to him about setting some rules up as you all have mentioned,( like cleaning up any gluten mess, washing hands/ teeth before coming in contact with me) I'm afraid he will either say yes to stop my "nagging" and notput them into practice.

Thanks for the link to more information. I will be checking it out and forward it to him.

GlutenFreeManna Rising Star

He seems to understand celiac disease in theory and why I can't be contaminated but when it comes to real life he doesn't think when he does things.

I only cook gluten free meals because I'm refuse to make 2. sometimes I will make my daughter gluten food and I do buy things my hubby can quickly heat up like pizza pocket,etc because he tends to eat frequently. I am slowly finding alternatives for them without gluten like the gluten free ice cream cones, rice instead of pasta.

It may be to soon but I think I am one of the super sensitive ones so my goal is no gluten in the house.

And yes, he would leave meat contamination everywhere if I weren't nagging at him not too!! I'm a nurse so I am very cautious about food poisoning but he thinks nothing of touching raw meat and not washing his hands or counter!! He is getting better with it but I have to nag. I hate being a nag !!!!!

Im going to talk to him about setting some rules up as you all have mentioned,( like cleaning up any gluten mess, washing hands/ teeth before coming in contact with me) I'm afraid he will either say yes to stop my "nagging" and notput them into practice.

Thanks for the link to more information. I will be checking it out and forward it to him.

Perhaps you need to look into "once a month" or "feed the freezer" cooking. Take a weekend or whenever you have a day off and make up a bunch of meals that can be frozen in individual portions. Label them well so he knows what they are. Then he can pull out a container to reheat in the microwave when he wants something and you are not there. It will take some extra work but it will be more economical than buying gluten-free frozen meals and safer for you if you can make it work. Not to mention a lot of the gluten-free frozen meals taste aweful. If you can learn to make some good tasting gluten-free meals at home then he's less likely to get upset about the changes. He'll be eating healthier too and may even lose weight (if he needs to). My husband lost 2 inches from his waistline in the first year we were gluten-free. Everyone comments to him how good he looks and he wants to keep it off so he doesn't eat gluteny junk outside of the house as often anymore.

Marilyn R Community Regular

And yes, he would leave meat contamination everywhere if I weren't nagging at him not too!! I'm a nurse so I am very cautious about food poisoning but he thinks nothing of touching raw meat and not washing his hands or counter!! He is getting better with it but I have to nag. I hate being a nag !!!!!

You're living with Dennis the Menace. You have to nag! (I know, because I live with one too.)

My Dennis gets aggravated with me, but I have hounded him (not in my nature, I swear) and he gets huffy and I feel bad, but not nearly as bad as when I get zapped by gluten.

We're at 14 months gluten-free now. He finally gets it. I still watch though, and remind. (Sometime's not cheerfully.)

GFinDC Veteran

Maybe it would help to put up some reminder signs around the kitchen. Like those signs in restaraunts, "wash hands before returning to work". That kind of thing. You could also do something like the grocery stores do. Some of them put a green gluten-free tag on their store shelves for gluten-free foods. So maybe a big green self sticky dot from Staples on the backsplash behind the gluten-free section of the counter, or on the gluten-free condiments would help. Just a reminder. You could get his attention by putting green stickies on his beer and then telling him it is off limits for him now. :ph34r::D

Marilyn R Community Regular

Maybe it would help to put up some reminder signs around the kitchen. Like those signs in restaraunts, "wash hands before returning to work". That kind of thing. You could also do something like the grocery stores do. Some of them put a green gluten-free tag on their store shelves for gluten-free foods. So maybe a big green self sticky dot from Staples on the backsplash behind the gluten-free section of the counter, or on the gluten-free condiments would help. Just a reminder. You could get his attention by putting green stickies on his beer and then telling him it is off limits for him now. :ph34r::D

That's a great idea! I'm thinking I need signs that say "Wash Your Hands Now or submit to vebal abuse from the gluten-free wench." "Her knives and tongue are sharp!"

GFinDC Veteran

Ha Ha ! That should do it! :D

milkmommy Apprentice

Haha. It's worth a try!!

Ive talked to him everyday about this issue and even still he stood in the kitchen eating a sandwich spilling crumbs on the counter and floor. Then didn't wash his hands and opened the fridge, the bottle of pop and the baby gate. Then today he made a pizza and the leftovers have been sitting on the counter for 3 hrs with crumbs in the oven, stove top, counter. I'm too tired of it to keep cleaning up after him.

I really feel like I have lost this battle. I might just have to give up because it's ruining our marriage. I nag, he gets mad at me nagging, I say I wouldn't have to nag if he would learn, we both get so frustrated. Then he gets mad because im too sick to go out anywhere.

Sorry, just venting I guess.

It really upsets me, I remember 2 months ago when I was diagnosed he said he would go gluten free with me. :(

I'm seriously getting to a point where I want to give up this diet. I have been very cautious what I eat and am sicker than ever. My house is completely contaminated anyway.

GlutenFreeManna Rising Star

Haha. It's worth a try!!

Ive talked to him everyday about this issue and even still he stood in the kitchen eating a sandwich spilling crumbs on the counter and floor. Then didn't wash his hands and opened the fridge, the bottle of pop and the baby gate. Then today he made a pizza and the leftovers have been sitting on the counter for 3 hrs with crumbs in the oven, stove top, counter. I'm too tired of it to keep cleaning up after him.

I really feel like I have lost this battle. I might just have to give up because it's ruining our marriage. I nag, he gets mad at me nagging, I say I wouldn't have to nag if he would learn, we both get so frustrated. Then he gets mad because im too sick to go out anywhere.

Sorry, just venting I guess.

It really upsets me, I remember 2 months ago when I was diagnosed he said he would go gluten free with me. :(

I'm seriously getting to a point where I want to give up this diet. I have been very cautious what I eat and am sicker than ever. My house is completely contaminated anyway.

Go to counseling. Seriously. Someone that really loves you will realize his habits are making you sick and at least make an effort. You have NO choice but to be gluten-free. You had positve biopsy results that are MARSH 3! He may just need to hear this from someone else and not you. At the moment your request to him to make changes are not getting through to his brain. You either need to take your entire household gluten free (which is a losing battle swince he won't comply) or you need to set up your own gluten-free kitchen in another room of the house that he doesn't ever go in. Really, if you want to get better you cannot keep living like this. Ask him to go to counseling so that you can have a chance to save your marriage. If my husband were doing this to me and I had positive biopsy I would be living at my parents house until he promised to go to counseling or change. Or if my parents were not able to take me in I would be kicking him out of the bedroom (he can sleep on the couch) and that would become my "kitchen" with a mini fridge and microwave.

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    • knitty kitty
      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
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