Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

More Questoins About Possible Rheumatoid...


NorthernElf

Recommended Posts

NorthernElf Enthusiast

I had asked about arthritis issues a few months ago. I deal with cold Canadian winters...starting around New Year's I began to have symptoms of hand/wrist/elbow pain...deep ache...one shoulder...it recurred every 2-3 weeks, got real bad in March when we went down to Vancouver island (very wet, rainy weather)...and then abated, went away.

Fast forward to now - we have been on rainfall warnings, up to 70 mm the last couple of days, imminent flooding, etc. My joints are aching so bad ! I can't believe it - I have been feeling "normal" but now my hands, elbows, knees & ankles ache. I am a very active person, very active - maybe I have been ignoring discomfort, blaming it on my activity but that deep ache is not consistent with what I do (I teach fitness too). Yesterday I went for a run & my HANDS really hurt....makes no sense.

I am tired too - wanna lie down & curl up in a ball...blame the weather right ? But what gives ? I did have a blood test back in January - RA negative. My knuckles on my hands - first 2 - swell a little, worse on my right hand (dominant hand). Had an xray in January - looked normal. I *think* my index finger is starting to bend in...hard to tell.

Anyway....wanna know if anyone else has a similar issue. I thought the whole thing went away...but wow, back witha vengence...pain is weird - can handle it for awhile but then it grates...gets very upsetting....

Any input is greatly appreciated.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



txplowgirl Enthusiast

Hi Northernelf,

I'm sorry you feel so bad. I have RA and I know what you're going through. Have you eliminated the nightshade vegetables? They are not good for anyone who has arthritis issues and you definitley sound like you do.

Please take them out for a few weeks and see how you feel. Potatoes, tomatoes, all bell peppers, eggplant, tobasco sauce, tomatillos, okra. I hope this helps.

fairydust81 Rookie

Hi there,

I'm a scientist researching RA and even though your bloods are negative it's still possible to have "seronegative" RA. but there is a classification system that rheumatologists follow to aid in a diagnosis. This includes morning stiffness, multiple joint swelling, changes on xrays, presence of nodules, positive rf factor in the blood etc. You have to fulfil so many of the points and been suffering constantly for 6 months at least.

There is another condition that has similar symptoms to RA but doesn't cause the joint damage and it also flares and goes periodically. It's called palindromic rheumatism (a condition I was diagnosed with in January). I get all the joint pain and swelling in flares and I also have visible arthritis on my xrays. I'm now taking anti rheumatic drugs to help

  • 2 weeks later...
Neshema1 Newbie

Dxd w/ celiac at abt 13 mos, juvenile RA at age 9, later sjogrens syndrome & raynauds (related to RA), & then neuropathy, & then u name it.. Now dysautonomia (neurological). BUT, was of gluten-free diet most of my life after docs decided at around age 4 it was pancreatic enzyme deficiency (trypsin) which now know can happen secondary to celiac disease, so been poisoned by gluten for most of my life. Antibodies came out neg being in immmune suppressant drugs for RA. I was RF neg.high sed rates. Many ppl are seronegative. Ive had it so long & was active in arthritis foundation & saw it all the time. My ANA SSA/ssb recently was worst ever, pos for lupus AND sjogrens. Get a good rheumatologist who believes u, know relationship between gluten & RA & knows tests don't always tell the story until later, if ever. Good luck!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty commented on Scott Adams's article in Multiple Sclerosis and Celiac Disease
      3

      Gluten-Free Diet Linked to Reduced Inflammation and Improved Outcomes in Multiple Sclerosis (+Video)

    2. - trents replied to Matthias's topic in Coping with Celiac Disease
      1

      Unexpected gluten exposure risk from cultivated mushrooms

    3. - Matthias posted a topic in Coping with Celiac Disease
      1

      Unexpected gluten exposure risk from cultivated mushrooms

    4. - trents replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      how much gluten do I need to eat before blood tests?

    5. - Scott Adams replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      IBS-D vs Celiac

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,328
    • Most Online (within 30 mins)
      7,748

    VerafromNJ
    Newest Member
    VerafromNJ
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      Welcome to the celiac.com communiuty, @Matthias! Yes, we have been aware that this can be an issue with mushrooms but as long as they are rinsed thoroughly it should not be a problem since the mushrooms don't actually incorporate the gluten into their cellular structure. For the same reason, one needs to be careful when buying aged cheeses and products containing yeast because of the fact that they are sometimes cultured on gluten-containing substrate.
    • Matthias
      The one kind of food I had been buying and eating without any worry for hidden gluten were unprocessed veggies. Well, yesterday I discovered yet another pitfall: cultivated mushrooms. I tried some new ones, Shimeji to be precise (used in many asian soup and rice dishes). Later, at home, I was taking a closer look at the product: the mushrooms were growing from a visible layer of shredded cereals that had not been removed. After a quick web research I learned that these mushrooms are commonly cultivated on a cereal-based medium like wheat bran. I hope that info his helpful to someone.
    • trents
      I might suggest you consider buckwheat groats. https://www.amazon.com/Anthonys-Organic-Hulled-Buckwheat-Groats/dp/B0D15QDVW7/ref=sr_1_4_pp?crid=GOFG11A8ZUMU&dib=eyJ2IjoiMSJ9.bk-hCrXgLpHqKS8QJnfKJLKbKzm2BS9tIFv3P9HjJ5swL1-02C3V819UZ845_kAwnxTUM8Qa69hKl0DfHAucO827k_rh7ZclIOPtAA9KjvEEYtaeUV06FJQyCoi5dwcfXRt8dx3cJ6ctEn2VIPaaFd0nOye2TkASgSRtdtKgvXEEXknFVYURBjXen1Nc7EtAlJyJbU8EhB89ElCGFPRavEQkTFHv9V2Zh1EMAPRno7UajBpLCQ-1JfC5jKUyzfgsf7jN5L6yfZSgjhnwEbg6KKwWrKeghga8W_CAhEEw9N0.eDBrhYWsjgEFud6ZE03iun0-AEaGfNS1q4ILLjZz7Fs&dib_tag=se&keywords=buckwheat%2Bgroats&qid=1769980587&s=grocery&sprefix=buchwheat%2Bgroats%2Cgrocery%2C249&sr=1-4&th=1 Takes about 10 minutes to cook. Incidentally, I don't like quinoa either. Reminds me and smells to me like wet grass seed. When its not washed before cooking it makes me ill because of saponins in the seed coat. Yes, it can be difficult to get much dietary calcium without dairy. But in many cases, it's not the amount of calcium in the diet that is the problem but the poor uptake of it. And too much calcium supplementation can interfere with the absorption of vitamins and minerals in general because it raises gut pH.
    • Scott Adams
      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that you carry HLA-DQ2.2 means celiac disease is absolutely possible, even if it’s less common than DQ2.5, and many people with DQ2.2 present later and are under-diagnosed. Your hesitation to reintroduce gluten is completely understandable — quality of life matters — and many people in your position choose to remain strictly gluten-free and treat it as medically necessary even without formal biopsy confirmation. If and when you’re ready, a physician can help you weigh options like limited gluten challenge, serology history, or documentation as “probable celiac.” What’s clear is that this wasn’t just random IBS — you identified the trigger, and your body has been very consistent in its response.
    • Scott Adams
      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid multivitamin with essential nutrients in a readily absorbable form. MaryRuth's Morning Multivitamin w/ Hair Growth – Adds beauty-supporting ingredients (biotin, B vitamins), also gluten-free and easy to take. New Chapter Liquid Multivitamin and New Chapter Liquid Multivitamin Orange Mango – Fermented liquid form with extra nutrients and good tolerability if you prefer a whole-food-based formula. Nature's Plus Source Of Life Gold Liquid – Premium option with a broad spectrum of vitamins and plant-based nutrients. Floradix Epresat Adult Liquid Multivitamin – Highly rated gluten-free German-made liquid, good choice if taste and natural ingredients matter. NOW Foods Liquid Multi Tropical Orange – Budget-friendly liquid multivitamin with solid nutrient coverage.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.