Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

More Questoins About Possible Rheumatoid...


NorthernElf

Recommended Posts

NorthernElf Enthusiast

I had asked about arthritis issues a few months ago. I deal with cold Canadian winters...starting around New Year's I began to have symptoms of hand/wrist/elbow pain...deep ache...one shoulder...it recurred every 2-3 weeks, got real bad in March when we went down to Vancouver island (very wet, rainy weather)...and then abated, went away.

Fast forward to now - we have been on rainfall warnings, up to 70 mm the last couple of days, imminent flooding, etc. My joints are aching so bad ! I can't believe it - I have been feeling "normal" but now my hands, elbows, knees & ankles ache. I am a very active person, very active - maybe I have been ignoring discomfort, blaming it on my activity but that deep ache is not consistent with what I do (I teach fitness too). Yesterday I went for a run & my HANDS really hurt....makes no sense.

I am tired too - wanna lie down & curl up in a ball...blame the weather right ? But what gives ? I did have a blood test back in January - RA negative. My knuckles on my hands - first 2 - swell a little, worse on my right hand (dominant hand). Had an xray in January - looked normal. I *think* my index finger is starting to bend in...hard to tell.

Anyway....wanna know if anyone else has a similar issue. I thought the whole thing went away...but wow, back witha vengence...pain is weird - can handle it for awhile but then it grates...gets very upsetting....

Any input is greatly appreciated.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



txplowgirl Enthusiast

Hi Northernelf,

I'm sorry you feel so bad. I have RA and I know what you're going through. Have you eliminated the nightshade vegetables? They are not good for anyone who has arthritis issues and you definitley sound like you do.

Please take them out for a few weeks and see how you feel. Potatoes, tomatoes, all bell peppers, eggplant, tobasco sauce, tomatillos, okra. I hope this helps.

fairydust81 Rookie

Hi there,

I'm a scientist researching RA and even though your bloods are negative it's still possible to have "seronegative" RA. but there is a classification system that rheumatologists follow to aid in a diagnosis. This includes morning stiffness, multiple joint swelling, changes on xrays, presence of nodules, positive rf factor in the blood etc. You have to fulfil so many of the points and been suffering constantly for 6 months at least.

There is another condition that has similar symptoms to RA but doesn't cause the joint damage and it also flares and goes periodically. It's called palindromic rheumatism (a condition I was diagnosed with in January). I get all the joint pain and swelling in flares and I also have visible arthritis on my xrays. I'm now taking anti rheumatic drugs to help

  • 2 weeks later...
Neshema1 Newbie

Dxd w/ celiac at abt 13 mos, juvenile RA at age 9, later sjogrens syndrome & raynauds (related to RA), & then neuropathy, & then u name it.. Now dysautonomia (neurological). BUT, was of gluten-free diet most of my life after docs decided at around age 4 it was pancreatic enzyme deficiency (trypsin) which now know can happen secondary to celiac disease, so been poisoned by gluten for most of my life. Antibodies came out neg being in immmune suppressant drugs for RA. I was RF neg.high sed rates. Many ppl are seronegative. Ive had it so long & was active in arthritis foundation & saw it all the time. My ANA SSA/ssb recently was worst ever, pos for lupus AND sjogrens. Get a good rheumatologist who believes u, know relationship between gluten & RA & knows tests don't always tell the story until later, if ever. Good luck!

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,561
    • Most Online (within 30 mins)
      7,748

    lamps
    Newest Member
    lamps
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):




  • Who's Online (See full list)

    • There are no registered users currently online

  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • petitojou
      Thank you so much for sharing your experience and I found myself giggling with happiness as I read how your body reached such spring! And I hope that your current journey is also successful!! Definitely starting the food diary! So many amazing advices. And it’s very scary. It really hits all our soft spots as well as our confidence system. Most doctors I went thought I was underage despite being in my late 20s. Right now I look like am I twelve, but is also this body that’s taking so much, so I might as well love it too! Going to make the necessary changes and stay in this path. Thank you again! 🫶
    • petitojou
      Thank you so much for the information and kind message! Reading this transformed how I’ve been viewing my efforts and progress. Guess there’s still a lot to celebrate and also heal 😌  Yes, I’ve been taking it! Just recently started taking a multivitamin supplement and separated vitamin D! I also took chewable Iron polymaltose for ferritin deficiency 2 months ago but was unable to absorb any of it.  Thank you again! Hearing such gentle words from the community makes my body and heart more patient and excited for the future. 
    • ckeyser88
      I am looking for a roomie in Chicago, Denver or Nashville! 
    • Scott Adams
      Your post demonstrates the profound frustration and isolation that so many in the Celiac community feel, and I want to thank you for channeling that experience into advocacy. The medical gaslighting you endured for decades is an unacceptable and, sadly, a common story, and the fact that you now have to "school" your own GI specialist speaks volumes about the critical lack of consistent and updated education. Your idea to make Celiac Disease a reportable condition to public health authorities is a compelling and strategic one. This single action would force the system to formally acknowledge the prevalence and seriousness of the disease, creating a concrete dataset that could drive better research funding, shape medical school curricula, and validate the patient experience in a way that individual stories alone often cannot. It is an uphill battle, but contacting representatives, as you have done with Adam Gray, is exactly how change begins. By framing it as a public health necessity—a matter of patient safety and protection from misdiagnosis and neglect—you are building a powerful case. Your voice and your perseverance, forged through thirty years of struggle, are exactly what this community needs to ensure that no one else has to fight so hard just to be believed and properly cared for.
    • Scott Adams
      I had no idea there is a "Louisville" in Colorado!😉 I thought it was a typo because I always think of the Kentucky city--but good luck!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.