Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

More Questoins About Possible Rheumatoid...


NorthernElf

Recommended Posts

NorthernElf Enthusiast

I had asked about arthritis issues a few months ago. I deal with cold Canadian winters...starting around New Year's I began to have symptoms of hand/wrist/elbow pain...deep ache...one shoulder...it recurred every 2-3 weeks, got real bad in March when we went down to Vancouver island (very wet, rainy weather)...and then abated, went away.

Fast forward to now - we have been on rainfall warnings, up to 70 mm the last couple of days, imminent flooding, etc. My joints are aching so bad ! I can't believe it - I have been feeling "normal" but now my hands, elbows, knees & ankles ache. I am a very active person, very active - maybe I have been ignoring discomfort, blaming it on my activity but that deep ache is not consistent with what I do (I teach fitness too). Yesterday I went for a run & my HANDS really hurt....makes no sense.

I am tired too - wanna lie down & curl up in a ball...blame the weather right ? But what gives ? I did have a blood test back in January - RA negative. My knuckles on my hands - first 2 - swell a little, worse on my right hand (dominant hand). Had an xray in January - looked normal. I *think* my index finger is starting to bend in...hard to tell.

Anyway....wanna know if anyone else has a similar issue. I thought the whole thing went away...but wow, back witha vengence...pain is weird - can handle it for awhile but then it grates...gets very upsetting....

Any input is greatly appreciated.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



txplowgirl Enthusiast

Hi Northernelf,

I'm sorry you feel so bad. I have RA and I know what you're going through. Have you eliminated the nightshade vegetables? They are not good for anyone who has arthritis issues and you definitley sound like you do.

Please take them out for a few weeks and see how you feel. Potatoes, tomatoes, all bell peppers, eggplant, tobasco sauce, tomatillos, okra. I hope this helps.

fairydust81 Rookie

Hi there,

I'm a scientist researching RA and even though your bloods are negative it's still possible to have "seronegative" RA. but there is a classification system that rheumatologists follow to aid in a diagnosis. This includes morning stiffness, multiple joint swelling, changes on xrays, presence of nodules, positive rf factor in the blood etc. You have to fulfil so many of the points and been suffering constantly for 6 months at least.

There is another condition that has similar symptoms to RA but doesn't cause the joint damage and it also flares and goes periodically. It's called palindromic rheumatism (a condition I was diagnosed with in January). I get all the joint pain and swelling in flares and I also have visible arthritis on my xrays. I'm now taking anti rheumatic drugs to help

  • 2 weeks later...
Neshema1 Newbie

Dxd w/ celiac at abt 13 mos, juvenile RA at age 9, later sjogrens syndrome & raynauds (related to RA), & then neuropathy, & then u name it.. Now dysautonomia (neurological). BUT, was of gluten-free diet most of my life after docs decided at around age 4 it was pancreatic enzyme deficiency (trypsin) which now know can happen secondary to celiac disease, so been poisoned by gluten for most of my life. Antibodies came out neg being in immmune suppressant drugs for RA. I was RF neg.high sed rates. Many ppl are seronegative. Ive had it so long & was active in arthritis foundation & saw it all the time. My ANA SSA/ssb recently was worst ever, pos for lupus AND sjogrens. Get a good rheumatologist who believes u, know relationship between gluten & RA & knows tests don't always tell the story until later, if ever. Good luck!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Yaya replied to Jhona's topic in Introduce Yourself / Share Stuff
      29

      Does anyone here also have Afib

    2. - larc replied to Jhona's topic in Introduce Yourself / Share Stuff
      29

      Does anyone here also have Afib

    3. - klmgarland replied to klmgarland's topic in Dermatitis Herpetiformis
      7

      Help I’m cross contaminating myself,

    4. - tiffanygosci replied to Jhona's topic in Introduce Yourself / Share Stuff
      29

      Does anyone here also have Afib

    5. - knitty kitty replied to klmgarland's topic in Dermatitis Herpetiformis
      7

      Help I’m cross contaminating myself,


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,917
    • Most Online (within 30 mins)
      7,748

    tiffanygosci
    Newest Member
    tiffanygosci
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Yaya
      Thank you for responding and for prayers.  So sorry for your struggles, I will keep you in mine.  You are so young to have so many struggles, mine are mild by comparison.  I didn't have Celiac Disease (celiac disease) until I had my gallbladder removed 13 years ago; at least nothing I was aware of.  Following surgery: multiple symptoms/oddities appeared including ridges on fingernails, eczema, hair falling out in patches, dry eyes, upset stomach constantly and other weird symptoms that I don't really remember.  Gastro did tests and endoscopy and verified celiac disease. Re heart: I was born with Mitral Valve Prolapse (MVP) and an irregular heartbeat, yet heart was extremely strong.  It was difficult to pick up the irregular heartbeat on the EKG per cardiologist.  I had Covid at 77, recovered in 10 days and 2 weeks later developed long Covid. What the doctors and nurses called the "kickoff to long Covid, was A-fib.  I didn't know what was going on with my heart and had ignored early symptoms as some kind of passing aftereffect stemming from Covid.  I was right about where it came from, but wrong on it being "passing".  I have A-fib as my permanent reminder of Covid and take Flecainide every morning and night and will for the rest of my life to stabilize my heartbeat.   
    • larc
      When I accidentally consume gluten it compromises the well-being of my heart and arteries. Last time I had a significant exposure, about six months ago, I had AFib for about ten days. It came on every day around dinner time. After the ten days or so it went away and hasn't come back.  My cardiologist offered me a collection of pharmaceuticals at the time.  But I passed on them. 
    • klmgarland
      So I should not eat my gluten free bread?  I will try the vitamins.  Thank you all so very much for your ideas and understanding.  I'm feeling better today and have gathered back my composure! Thank you kitty kitty   I am going to look this diet up right away.  And read the paleo diet and really see if I can make this a better situation then it currently is.  
    • tiffanygosci
      Hi! I had my first episode of AFib last May when I was 30 (I have had some heart stuff my whole life but nothing this extreme). I was not diagnosed with celiac until the beginning of this month in October of 2025. I was in the early stages of celiac, so I'm not sure if they were related (maybe!) All of my heart tests came back normal except for my electrolytes (potassium and magnesium) that were low when the AFib occurred. I also became pregnant with our third and last baby a couple weeks after I came back from that hospital stay. I had no heart complications after that whole thing. And I still haven't over a year later. It was definitely scary and I hope it doesn't happen again. I drink an electrolyte drink mix about every day, and I'm sure being on a gluten-free diet will help my body even more! I will pray for you in this. Taking care of our bodies is so challenging but Jesus is with us every step of the way. He cares and He sees you!
    • knitty kitty
      I followed the Autoimmune Protocol Diet which is really strict for a while, but later other foods can be added back into your diet.  Following the AIP diet strictly allows you digestive system to heal and the inflammation to calm down.  Sort of like feeding a sick baby easy to digest food instead of spicy pizza.   It's important to get the inflammation down because chronic inflammation leads to other health problems.  Histamine is released as part of the autoimmune response to gluten.  High histamine levels make you feel bad and can cause breathing problems (worsening asthma), cardiovascular problems (tachycardia), and other autoimmune diseases (Hashimoto's thyroiditis, diabetes) and even mental health problems. Following the low histamine version of the AIP diet allows the body to clear the histamine from our bodies.  Some foods are high in histamine.  Avoiding these makes it easier for our bodies to clear the histamine released after a gluten exposure.   Vitamin D helps regulate the immune system and calm it down.  Vitamin D is frequently low in Celiacs.  The B Complex vitamins and Vitamin C are needed to clear histamine.   Supplementing with essential vitamins and minerals boosts your intestines' ability to absorb them while healing.   Keep in mind that gluten-free facsimile foods, like gluten-free bread, are not enriched with added vitamins like their gluten containing counterparts are.   They are empty calories, no nutritional value, which use up your B vitamins in order to turn the calories into fuel for the body to function.   Talk to your doctor or nutritionist about supplementing while healing.  Take a good B Complex and extra Thiamine in the form Benfotiamine (shown to promote gut health).  Most B Complex vitamins contain thiamine mononitrate which the body cannot utilize.  Meats and liver are good sources of B vitamins.   Dr. Sarah Ballantyne wrote the book, the Paleo Approach.  She's a Celiac herself.  Her book explains a lot.   I'm so glad you're feeling better and finding your balance!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.