Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Pelvic Pain


xxkristin

Recommended Posts

xxkristin Apprentice

I was diagnosed with celiac disease in this past March, and my symptoms have slowly been getting better. However, for the past week to 2 weeks, I've been having some pelvic pain, mainly on the left side, but sometimes on the right side too. I wouldn't say it's all that painful, it's more of just a dull ache, and in no way debilitating. It would come and go, except today, it's been there pretty much all day.

I was just wondering if anyone else experienced any pelvic pain after going gluten free. Could it possibly be gluten related?

I know that pelvic pain could be caused by a bunch of different things, so if it doesn't go away in a week or so, I'll go to the doctor and have it checked out.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Looking for answers Contributor

I went through that a while ago, and the episode lasted nearly two months. I thought I had an ovarian cyst, but an ultrasound came up clean. Oddly enough, I figured out it was coconut causing it. I stopped eating and it went away. When I started eating it again, it came back. I'm not sure what exactly was going on (sorry, I can't be more helpful), but I hope you resolve your issue soon. It was pretty annoying and I began to wonder if something more serious was wrong.

anewlife Apprentice

I have pelvic pain and it was diagnosed as Interstitial cystitis - inflammation in the bladder. It is related to several autoimmune diseases including celiac disease. I was diagnosed by an Urologist but my gynecologist first did an ultrasound of the pelvic region to rule out other issues. Hope you can get to the bottom of it. I know it can be so uncomfortable! I like using a heating pad when it is most uncomfortable.

Take care

xxkristin Apprentice

I went through that a while ago, and the episode lasted nearly two months. I thought I had an ovarian cyst, but an ultrasound came up clean. Oddly enough, I figured out it was coconut causing it. I stopped eating and it went away. When I started eating it again, it came back. I'm not sure what exactly was going on (sorry, I can't be more helpful), but I hope you resolve your issue soon. It was pretty annoying and I began to wonder if something more serious was wrong.

Thanks. This is really frustrating. I'm a hypochondriac, so I always assume the worst whenever I get weird symptoms. I'm trying to convince myself that I don't have ovarian cancer or something serious like that. It's just frustrating that the symptoms are almost exactly the same as those of celiac. I know deep down that most likely, I don't have cancer or anything serious, but I can't help it lol.

I'm going to go strictly whole foods only for a while and hopefully it goes away. Maybe I'm just eating something that has gluten in it. If it doesn't soon though, then I'll go to the doctor.

CarolinaKip Community Regular

I went whole foods and it helped me a lot! It really helped me figure out foods that I cannot eat. Corn is one of my biggest problem foods. I ate very basic with only adding or taking away one food at a time. The longer you're gluten-free, you'll understand your body more. Well, that was so for me. I can now tell if I get CC or a food that I cannot digest well. I happen to have an overian cyst now and something wrong with my uterus(DX by ultrasound)

A year ago I probably could not have told you if it was gluten or what. Now I understand my body's reactions so much better. Hang in there!

Looking for answers Contributor

Thanks. This is really frustrating. I'm a hypochondriac, so I always assume the worst whenever I get weird symptoms. I'm trying to convince myself that I don't have ovarian cancer or something serious like that. It's just frustrating that the symptoms are almost exactly the same as those of celiac. I know deep down that most likely, I don't have cancer or anything serious, but I can't help it lol.

I'm going to go strictly whole foods only for a while and hopefully it goes away. Maybe I'm just eating something that has gluten in it. If it doesn't soon though, then I'll go to the doctor.

I completely understand...I always assume the worse too. My theory as to what was going on is that the coconut was causing inflammation in my colon. I have no idea if that at all possible, but this in my crazy self-diagnosis. :rolleyes:

JSegura226 Apprentice

I went through that a while ago, and the episode lasted nearly two months. I thought I had an ovarian cyst, but an ultrasound came up clean. Oddly enough, I figured out it was coconut causing it. I stopped eating and it went away. When I started eating it again, it came back. I'm not sure what exactly was going on (sorry, I can't be more helpful), but I hope you resolve your issue soon. It was pretty annoying and I began to wonder if something more serious was wrong.

This is interesting... I too have been experiencing pelvis pain and what feels like colon spasms on my lower left side for the last 2 weeks. My appetite has also dropped off dramatically. Coconut never even crossed my mind! I introduced coconut oil into my diet around the same time the pain started up <_< . Guess I will cut the oil out and see if my pain disappears.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cvll Apprentice

Every month at ovulation time, I have really bad pains. Everything in there tightens/spasms, and it hurts a lot. It makes me constipated until it goes away (lasts maybe around 5 days or so), and then I get very loose stools. I'm thinking of making a dr appt just to check it out. I am always thinking the worst too. I wonder if there's a huge tumor in there and at ovulation time, just gets bigger.

I was diagnosed with celiac disease in this past March, and my symptoms have slowly been getting better. However, for the past week to 2 weeks, I've been having some pelvic pain, mainly on the left side, but sometimes on the right side too. I wouldn't say it's all that painful, it's more of just a dull ache, and in no way debilitating. It would come and go, except today, it's been there pretty much all day.

I was just wondering if anyone else experienced any pelvic pain after going gluten free. Could it possibly be gluten related?

I know that pelvic pain could be caused by a bunch of different things, so if it doesn't go away in a week or so, I'll go to the doctor and have it checked out.

  • 1 month later...
xxkristin Apprentice

I've determined that it's probably just constipation due to not enough fibre. I started taking Metamucil and after a few, when the Metamucil started working, the pelvic pain went. I stopped taking the Metamucil for a few weeks and the pain and constipation came back. So I started taking Metamucil again, and once again, after a few days, it all went away. I guess I'm just going to have to take Metamucil everyday from now on. Oh well, at least I'm pretty sure I've figured it out.

  • 3 weeks later...
CR5442 Contributor

I've been gluten free now for four weeks and am experiencing the most horrendous ovulation pain. I usually only get it for a few hours on the right hand side, but this time i have had it on the left hand side and it has lasted for nearly two days with no sign of abating. In addition I feel quite constipated, like the swelling there is stopping everything from moving! Luckily I have a doctor's appoint at the end of the week to see if he will allow me to take the Genova diagnostics Celiac panel as the IgA TTG showed up negative.

mommyto2kids Collaborator

My uterine problems started at the same time as the celiac. Who knows why. I'm 5 weeks out of a hysterectomy. For me it was good. Hystersisters is a very good forum if you need help with pelvic issues, not just hysterectomys.

livelifelarge24 Enthusiast

I get the same thing and that's usually a sure sign I've veen glutened. However I get ovarian cysts from time to tine too and those cause a similar pain. Whichever the cause a heating pad works wonders!

livelifelarge24 Enthusiast

And don't feel bad about being "a bit of a hypochondriac" I think all of us that battled celiac for a long time before diagnosis were almost forced into that. For me it was a desperate search for what the heck was making me sick all the time. Celiac is the great mimicker and there are literally hundreds of symptoms it can have.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,857
    • Most Online (within 30 mins)
      7,748

    LowellFrancis
    Newest Member
    LowellFrancis
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Rogol72
      Some interesting articles regarding the use of Zinc Carnosine to help heal gastric ulcers, gastritis and intestinal permeability. I would consult a medical professional about it's use. https://www.nature.com/articles/ncpgasthep0778 https://www.rupahealth.com/post/clinical-applications-of-zinc-carnosine---evidence-review https://pmc.ncbi.nlm.nih.gov/articles/PMC7146259/ https://www.fallbrookmedicalcenter.com/zinc-l-carnosine-benefits-dosage-and-safety/
    • Jillian83
      He is. Which makes everything even more difficult. I’m not a believer in “staying for the kids” but I have nowhere to go and it’s not just me, it’s me plus my babies. We live in a beautiful place, lots of land in the country and me and the kids love the place we’ve called home for their entire lives. But Im seeing that he’ll never change, that my kids deserve a happy healthy Momma, and that staying in this as is will be the early death of me. Then I look at the scars covering my entire body…this disease and the chronic stress I’ve been enduring for years that tell me I’m no longer beautiful and no one will ever look at me with interest again. I try self care, try to give myself grace so I can just start loving myself enough to gain strength but the slightest sparkle in my eye and skip in my step attracts his wrath and it all comes crashing ten fold. Life is just absolutely railing me from every single direction leaving me wanting to wave that white flag bc I don’t feel like there’s much hope no matter what happens. 
    • trents
    • Jillian83
      Hi, I was recently diagnosed with Celiac and dermatitis herpetiformis after years of suffering without answers. I lost my mind. I lost my job. I lost so much time. I lost Me. Conventional doctors are opulent come near me and the one who did sat across the room, misdiagnosed me, pumped me full of steroids which collapsed my entire hip for 6 months. So without answers I began my holistic journey. Fast forward a couple of years and still struggling with a mysterious whole body itchy, crawling “skin hell”, perfect teeth now deteriorating, thick hair now thinning rapidly and no more than a day or 2 at most relief….An acquaintance opened up a functional medicine practice. Cash only, I found a way. Within a month tests clearly showing my off the charts gluten allergy/sensitivity as well as the depletion of vital nutrients due to leaky gut and intestinal damage. dermatitis herpetiformis was more than likely what I was experiencing with my skin. I was happy. I thought this is easy, eat healthy Whole Foods, follow the diet restrictions and I finally get to heal and feel confident and like myself again very soon! 😔 Supplements are very pricey but I got them and began my healing. Which leads to the other major issue: not working, stay at home Mom of young kids, entirely financially dependent on my man of 7 plus years. He’s never been supportive of anything I’ve ever done or been thru. He controls everything. I’m not given much money ever at a time and when he does leave money it’s only enough to possibly get gas. His excuse is that I’ll spend it on other things. So my “allowance” is inconsistent and has conditions. He withholds money from me as punishment for anything he wants. Since being diagnosed, he’s gained a new control tactic to use as punishment. He now is in control of when I get to eat. He asked for proof of my diagnosis and diet bc he said I made it up just to be able to eat expensive organic foods. Then after I sent him my file from my doctor he then said she wasn’t a real doctor. 😡. I go days upon days starving, sometimes breaking down and eating things I shouldn’t bc I’m so sick then I pay horribly while he gets annoyed and angry bc I’m not keeping up with all the duties I’m supposed to be doing. His abuse turns full on when I’m down and it’s in these desperate times when I need his support and care the most that I’m punished with silence, being starved, ignored, belittled. He will create more of a mess just bc I’m unable to get up and clean so that when I am better, I’m so overwhelmed with chores to catch up that the stress causes me to go right back into a flare from hell and the cycle repeats. I’m punished for being sick. I’m belittled for starving and asking for healthy clean water. I’m purposely left out of his life. He won’t even tell me he’s going to the grocery or to get dinner bc he doesn’t want me to ask him for anything. I have no one. I have nothing. Im not better. My supplements ran out and I desperately need Vitamin D3 and a methylated B complex at the very minimal just to function….he stares at me blankly…no, a slight smirk, no words. He’s happiest when im miserable and I am miserable.  this is so long and im condensing as much as I can but this situation is so complicated and disgusting. And it’s currently my life. The “IT” girl, the healthy, beautiful, perfect skin, perfect teeth, thick and curly locks for days, creative and talented IT girl….now I won’t even leave this house bc Im ashamed of what this has dont to my body, my skin. Im disgusted. The stress is keeping me from healing and I think he knows that and that’s why he continues to keep me in that state. He doesn’t want me confident or successful. He doesn’t want me healed and healthy bc then how would he put the blame of all his problems on me? This journey has been hell and I’ve been in Hell before. I’ve been killed by an ex, I’ve been raped, robbed, held hostage, abused beyond nightmares but the cruelty I’ve experienced from him bc of this disease is the coldest I’ve ever experienced. I’ve wanted to give up. Starving and in tears, desperate…I found a local food pantry in our small town so I reached out just saying I had Celiac and was on hard times. This woman is blessing me daily with prepared gluten free meals, donations, educational info, people who know this disease and how they manage life and the blessings just keep coming. But it’s overwhelming and I feel like I don’t deserve it at all. He just glared and I know he’s going to sabotage it somehow. I don’t even know what to do anymore. I’m so broken and just want peace and healing. 
    • cristiana
      @Colleen H   I am just curious,  when you were tested for coeliac disease, did the doctors find out if you had any deficiencies? Sometimes muscle pain can be caused by certain deficiencies, for example, magnesium, vitamin D, calcium, and potassium.   Might be worth looking into having some more tests.  Pins and needles can be neuropathy, again caused by deficiencies, such as iron and B12,  which can be reversed if these deficiencies are addressed. In the UK where I live we are usually only tested for iron, B12 and vitamin D deficiencies at diagnosis.   I was very iron anemic and supplementation made a big difference.  B12 was low normal, but in other countries the UK's low normal would be considered a deficiency.  My vitamin D was low normal, and I've been supplementing ever since (when I remember to take it!) My pins and needles definitely started to improve when my known deficiencies were addressed.  My nutritionist also gave me a broad spectrum supplement which really helped, because I suspect I wasn't just deficient in what I mention above but in many other vitamins and minerals.  But a word of warning, don't take iron unless blood tests reveal you actually need it, and if you are taking it your levels must be regularly monitored because too much can make you ill.  (And if you are currently taking iron, that might actually be making your stomach sore - it did mine, so my GP changed my iron supplementation to a gentler form, ferrous gluconate). Lastly, have you been trying to take anything to lessen the pain in your gut?  I get a sore stomach periodically, usually when I've had too much rich food, or when I have had to take an aspirin or certain antibiotics, or after glutening.  When this happens, I take for just a few days a small daily dose of OTC omeprazole.  I also follow a reflux or gastritis diet. There are lots online but the common denominators to these diets is you need to cut out caffeine, alcohol, rich, spicy, acidic food etc and eat small regularly spaced meals.   When I get a sore stomach, I also find it helpful to drink lots of water.  I also find hot water with a few slices of ginger very soothing to sip, or camomile tea.  A wedge pillow at night is good for reflux. Also,  best not to eat a meal 2-3 hours before going to bed. If the stomach pain is getting worse, though, it would be wise to see the doctor again. I hope some of this helps. Cristiana    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.