Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Two Test Questions---Any Help Please?


coryjmclaughlin

Recommended Posts

coryjmclaughlin Newbie

I've had severe diahrea since March and have had a colonscopy and been put on antibiotics, Librax and Nexium. Nothing has worked. I also have Lupus and recently had my prednisone increased which slightly helped my diahrea but now that I am tapering down the diahrea is back again. My GI doctor says I need to just live with it as everything is "normal" so I decided to go for a second opinion. I picked up my records today and two things made me a little uneasy. My fecal fat test was Positive and my IgA serum was low at 73. Could either of this be indicative of Celiac's? I also get bloating and very uncomfortable after eating.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



sb2178 Enthusiast

It could. Keep in mind that you need to be eating a full gluten diet for any testing to be valid (3-4 slices bread or equivalent per day).

Testing is generally a good idea if you have access; just make sure you go in with a list of the full panel. Often, they'll only run one or two tests on the panel and it sounds like you need to have the IgG versions of the tests run. If you have IgA levels below normal, the most common celiac tests are not valid. If your tests are positive, equivocal, or your MD thinks you likely have it, you may be referred for an endoscopy (through the mouth to the intestines).

I don't know how or if prednisone would affect any testing.

After you are done with testing, you can also try a strict elimination diet to see if that helps your symptoms. Read and ask questions!

beachbirdie Contributor

I've had severe diahrea since March and have had a colonscopy and been put on antibiotics, Librax and Nexium. Nothing has worked. I also have Lupus and recently had my prednisone increased which slightly helped my diahrea but now that I am tapering down the diahrea is back again. My GI doctor says I need to just live with it as everything is "normal" so I decided to go for a second opinion. I picked up my records today and two things made me a little uneasy. My fecal fat test was Positive and my IgA serum was low at 73. Could either of this be indicative of Celiac's? I also get bloating and very uncomfortable after eating.

You have lupus. There is a genetic connection between that and other autoimmune conditions like autoimmune thyroid (Grave's and Hashimoto's) and celiac.

I would see about getting genetic test and endoscopic biopsy done, it is in the realm of possibility that you have a gluten issue. You do need to have been eating gluten for a while to get a "real" result. If they just do blood tests, you might get a skewed result as your IgA is low. Is there a possibility you could see a different GI? Do you have anyone in your family with gluten or other autoimmune conditions?

I am a Hashimoto's sufferer myself, I am making the choice to go gluten free. I think if I had lupus I would do the same. After testing you can try the gluten free diet and see if you feel better.

Best,

beachbirdie

coryjmclaughlin Newbie

You have lupus. There is a genetic connection between that and other autoimmune conditions like autoimmune thyroid (Grave's and Hashimoto's) and celiac.

I would see about getting genetic test and endoscopic biopsy done, it is in the realm of possibility that you have a gluten issue. You do need to have been eating gluten for a while to get a "real" result. If they just do blood tests, you might get a skewed result as your IgA is low. Is there a possibility you could see a different GI? Do you have anyone in your family with gluten or other autoimmune conditions?

I am a Hashimoto's sufferer myself, I am making the choice to go gluten free. I think if I had lupus I would do the same. After testing you can try the gluten free diet and see if you feel better.

Best,

beachbirdie

Thanks for the info. I am seeing a new GI doctor on Friday afternoon. My colonscopy biopsy stuff also showed "chronic mucosal injury". I have been eating as normally as I can which means I haven't been limiting any food so I should have enough gluten in me.

mushroom Proficient

If you have a low serum IgA then any IgA testing for celiac disease would be invalid. Keep up the gluten and hope that your new GI is clued in to celiac. :)

Good luck on Friday.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,017
    • Most Online (within 30 mins)
      7,748

    Sjcucinotta
    Newest Member
    Sjcucinotta
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • sleuth
      He is not just a psychiatrist.  He is also a neuroscientist.  And yes, I have already read those studies.   I agree with benfotiamine.  This is short term while glutened/inflammation occurs.  As I had already mentioned, these symptoms no longer exist when this phase passes.  And yes, I know that celiac is a disease of malnutrition.  We are working with a naturopath.
    • knitty kitty
      Please do more research before you settle on nicotine. Dr. Paul New house is a psychiatrist.  His latest study involves the effect of nicotine patches on Late Life Depression which has reached no long term conclusions about the benefits.   Effects of open-label transdermal nicotine antidepressant augmentation on affective symptoms and executive function in late-life depression https://pubmed.ncbi.nlm.nih.gov/39009312/   I'm approaching the subject from the Microbiologist's point of view which shows nicotine blocks Thiamine B1 uptake and usage:   Chronic Nicotine Exposure In Vivo and In Vitro Inhibits Vitamin B1 (Thiamin) Uptake by Pancreatic Acinar Cells https://pubmed.ncbi.nlm.nih.gov/26633299/   While supplementation with thiamine in the form Benfotiamine can protect from damage done by  nicotine: Benfotiamine attenuates nicotine and uric acid-induced vascular endothelial dysfunction in the rat https://pubmed.ncbi.nlm.nih.gov/18951979/   I suggest you study the beneficial effects of Thiamine (Benfotiamine and TTFD) on the body and mental health done by Dr. Derrick Lonsdale and Dr. Chandler Marrs.  Dr. Lonsdale had studied thiamine over fifty years.   Hiding in Plain Sight: Modern Thiamine Deficiency https://pmc.ncbi.nlm.nih.gov/articles/PMC8533683/ I suggest you read their book Thiamine Deficiency Disease, Dysautonomia, and High Calorie Malnutrition.     Celiac Disease is a disease of malabsorption causing malnutrition.  Thiamine and benfotiamine: Focus on their therapeutic potential https://pmc.ncbi.nlm.nih.gov/articles/PMC10682628/
    • sleuth
      Thanks for your response.  Everything you mentioned he is and has been doing.  Tobacco is not the same as nicotine.  Nicotine, in the form of a patch, does not cause gastrointestinal irritation.  Smoking does. He is not smoking.  Please do your research before stating false information. Dr. Paul Newhouse has been doing research on nicotine the last 40 years at Vanderbilt University Medical Center.  
    • Jmartes71
      Im so frustrated and still getting the run around trying to reprove my celiac disease which my past primary ignored for 25 years.I understand that theres a ray of medical that doctors are limited too but not listening and telling the patient ( me) that im not as sensitive as I think and NOT celiac!Correction Mr white coat its not what I think but for cause and affect and past test that are not sticking in my medical records.I get sick violently with foods consumed, not eating the foods will show Im fabulous. After many blood draws and going through doctors I have the HLA- DQ2 positive which I read in a study that Iran conducted that the severity in celiac is in that gene.Im glutenfree and dealing with related issues which core issue of celiac isn't addressed. My skin, right eye, left leg diagestive issues affected. I have high blood pressure because im in pain.Im waisting my time on trying to reprove that Im celiac which is not a disease I want, but unfortunately have.It  has taken over my life personally and professionally. How do I stop getting medically gaslight and get the help needed to bounce back if I ever do bounce back to normal? I thought I was in good care with " celiac specialist " but in her eyes Im good.Im NOT.Sibo positive, IBS, Chronic Fatigue just to name a few and its all related to what I like to call a ghost disease ( celiac) since doctors don't seem to take it seriously. 
    • trents
      @Martha Mitchell, your reaction to the lens implant with gluten sounds like it could be an allergic reaction rather than a celiac reaction. It is possible for a celiac to be also allergic to gluten as it is a protein component in wheat, barley and rye.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.