Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Two Test Questions---Any Help Please?


coryjmclaughlin

Recommended Posts

coryjmclaughlin Newbie

I've had severe diahrea since March and have had a colonscopy and been put on antibiotics, Librax and Nexium. Nothing has worked. I also have Lupus and recently had my prednisone increased which slightly helped my diahrea but now that I am tapering down the diahrea is back again. My GI doctor says I need to just live with it as everything is "normal" so I decided to go for a second opinion. I picked up my records today and two things made me a little uneasy. My fecal fat test was Positive and my IgA serum was low at 73. Could either of this be indicative of Celiac's? I also get bloating and very uncomfortable after eating.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



sb2178 Enthusiast

It could. Keep in mind that you need to be eating a full gluten diet for any testing to be valid (3-4 slices bread or equivalent per day).

Testing is generally a good idea if you have access; just make sure you go in with a list of the full panel. Often, they'll only run one or two tests on the panel and it sounds like you need to have the IgG versions of the tests run. If you have IgA levels below normal, the most common celiac tests are not valid. If your tests are positive, equivocal, or your MD thinks you likely have it, you may be referred for an endoscopy (through the mouth to the intestines).

I don't know how or if prednisone would affect any testing.

After you are done with testing, you can also try a strict elimination diet to see if that helps your symptoms. Read and ask questions!

beachbirdie Contributor

I've had severe diahrea since March and have had a colonscopy and been put on antibiotics, Librax and Nexium. Nothing has worked. I also have Lupus and recently had my prednisone increased which slightly helped my diahrea but now that I am tapering down the diahrea is back again. My GI doctor says I need to just live with it as everything is "normal" so I decided to go for a second opinion. I picked up my records today and two things made me a little uneasy. My fecal fat test was Positive and my IgA serum was low at 73. Could either of this be indicative of Celiac's? I also get bloating and very uncomfortable after eating.

You have lupus. There is a genetic connection between that and other autoimmune conditions like autoimmune thyroid (Grave's and Hashimoto's) and celiac.

I would see about getting genetic test and endoscopic biopsy done, it is in the realm of possibility that you have a gluten issue. You do need to have been eating gluten for a while to get a "real" result. If they just do blood tests, you might get a skewed result as your IgA is low. Is there a possibility you could see a different GI? Do you have anyone in your family with gluten or other autoimmune conditions?

I am a Hashimoto's sufferer myself, I am making the choice to go gluten free. I think if I had lupus I would do the same. After testing you can try the gluten free diet and see if you feel better.

Best,

beachbirdie

coryjmclaughlin Newbie

You have lupus. There is a genetic connection between that and other autoimmune conditions like autoimmune thyroid (Grave's and Hashimoto's) and celiac.

I would see about getting genetic test and endoscopic biopsy done, it is in the realm of possibility that you have a gluten issue. You do need to have been eating gluten for a while to get a "real" result. If they just do blood tests, you might get a skewed result as your IgA is low. Is there a possibility you could see a different GI? Do you have anyone in your family with gluten or other autoimmune conditions?

I am a Hashimoto's sufferer myself, I am making the choice to go gluten free. I think if I had lupus I would do the same. After testing you can try the gluten free diet and see if you feel better.

Best,

beachbirdie

Thanks for the info. I am seeing a new GI doctor on Friday afternoon. My colonscopy biopsy stuff also showed "chronic mucosal injury". I have been eating as normally as I can which means I haven't been limiting any food so I should have enough gluten in me.

mushroom Proficient

If you have a low serum IgA then any IgA testing for celiac disease would be invalid. Keep up the gluten and hope that your new GI is clued in to celiac. :)

Good luck on Friday.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Wheatwacked replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      13

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    2. - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      50

      My journey is it gluten or fiber?

    3. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      8

      results from 13 day gluten challenge - does this mean I can't have celiac?

    4. - knitty kitty replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      8

      results from 13 day gluten challenge - does this mean I can't have celiac?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,368
    • Most Online (within 30 mins)
      7,748

    Klairep
    Newest Member
    Klairep
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • xxnonamexx
      I don't know if I am getting sufficient Omega Threes. I read about  phosphotidyl choline may cause heart issues. I will have o do further research on heathy Omega 3 supplements or from foods. Is there a blood test that can tell you everything level in your system such as Thiamine, Benfotiamine levels etc? Thanks
    • catnapt
      If lectins were my problem, I would react to wheat germ (the highest source of wheat lectins) and beans. I don't. I only react to bread and pasta, which are the highest sources of gluten. Therefore, my issue is wheat-specific (Gluten/ATIs), not a general lectin issue.   I have eaten a supposedly high lectin diet (I say supposedly because lectin content in these foods is greatly reduced by proper cooking and I eat very few of those foods raw, and even then, rarely!!) for years. My health has improved greatly on my whole foods plant forward diet. I have asked all my drs and a registered dietician about my diet, asked if eating such a high amnt of fiber might interfere with the digestion of any other nutrients and the answer has always been NO.     while doing the gluten challenge I did not eat ANY wheat germ (since it doesn't have hardly any gluten, and I was too sick from the bread and pasta to want to eat much anyway) I will NOT put that poison in my body again. That was a horrific experience and if this is what most celiac patients have to deal with, I am very sorry for them I don't care if I have celiac or NCGS I won't intentionally cause myself that much pain and suffering it's not worth it.  
    • knitty kitty
      @catnapt,  Wheat germ contains high amounts of lectins which are really hard to digest and can be irritating to the digestive tract.  They can stimulate IgG antibody production as your blood test shows.   Even beans have lectins.  You've simply eaten too many lectins and irritated your digestive tract.   You may want to allow your digestive tract to rest for a week, then start on gluten in "normal" food, not in concentrated vital wheat gluten. This explains it well: Lectins, agglutinins, and their roles in autoimmune reactivities https://pubmed.ncbi.nlm.nih.gov/25599185/
    • knitty kitty
      I take Now B-1 (100 mg) Thiamine Hydrochloride, and Amazing Formulas L-Tryptophan (1000 mg).   Both are gluten free and free of other allergens.  I've taken them for a long time and haven't had a problem with them. I take Vitamin A from BioTech called "A-25".  It's gluten and allergen free and made in the USA.  It's a powder form of Vitamin A.  I was having trouble digesting fats at one point, but found I tolerated the powder form much better and have stuck with it since.   Tryptophan and Vitamin A help heal the intestines as well as improves skin health.  I get Dermatitis Herpetiformis and eczema flairs when my stomach is upset.  So I'm healing the outside as well as the inside.   I take one 1000 mg Tryptophan before bedtime.   With the Thiamine HCl, take 100 mg to start.  If you don't notice anything, three hours later take another. You can keep increasing your dose in this manner until you do notice improvement.  Remember not to take it in the evening so it won't keep you too energized to sleep. When I first started Thiamine HCl, taking 500 mg to 1000 mg to start was recommended.  If you've been thiamine insufficient for a while, you do notice a big difference.  It's like the start of a NASCAR race: Zoom, Zoom, turn it up!   This scared or made some people uncomfortable, but it's just your body beginning to function properly, like putting new spark plugs in your engine.  I took 1000 mg all at once without food.  It kicked in beautifully, but I got a tummy ache, so take with food.  I added in Thiamine TTFD and Benfotiamine weeks later and felt like I was Formula One racing.  So cool.  You may feel worse for a couple days as your body adjusts to having sufficient thiamine.  Feels sort of like you haven't cranked your engine for a while and it backfires and sputters, but it will settle down and start purring soon enough.  Adjust your dose to what feels right for you, increasing your dose as long as you feel improvement.  You can reach a plateau, so stay there for several days, then try bumping it up again.  If no more improvements happen, you can stay at the plateau amount and experiment with increasing your Thiamine TTFD.  It's like being your own lab rat.  LoL Yes, take one Benfotiamine at breakfast and one at lunch.  Take the B Complex at breakfast. Take the TTFD at breakfast and lunch as well.  I like to take the vitamins at the beginning of meals and the NeuroMag at the end of meals.   You may want to add in some zinc.  I take Thorne Zinc 30 mg at breakfast at the beginning of the meal.   Are you getting sufficient Omega Threes?  Our brains are made up mostly of fat.  Flaxseed oil supplements, sunflower seed oil supplements (or eat the seeds themselves) can improve that.  Cooking with extra virgin olive oil, avocado oil, or coconut oil is also helpful.   @Wheatwacked likes phosphotidyl choline supplements for his Omega Threes.  He's also had dramatic health improvement by supplementing thiamine.  You're doing great!  Thank you for sharing your journey with us.  This path will smooth out.  Keep going!  
    • catnapt
      good luck! vital wheat gluten made me violently ill. I will touch the stuff ever again.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.