Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Sooo, A Month On Gluten And This Is What The Specialist Said

Hawthorn

Recommended Posts

Hawthorn Rookie
Hawthorn
Posted

He asked me about symptoms. Thanks to brain fog I'd written them all down. He looked at the skin problems, looked over the list, looked at my stomach and asked my why oh why was I still eating gluten. I told him my gp told me to so I could be tested and his answer was to stop eating it immediately. He talked about cross contamination, it being hidden in certain foods that you wouldn't expect and to eat whole foods - no processed gluten free crap.

He said the blood tests the doctor did a couple of months back were negative but he didn't want me to continue eating gluten to go for endoscopy. Just quit eating it, right now, today. I was gluten-free for a year (excluding CC and the odd 'I don't care and I'm eating that spring roll' moment, and back on the gluten for just two weeks prior to blood test.

Formally diagnosed as non Coeliacs gluten intolerance - treatment is the same either way. And that was that.

I *really* could have kissed this guy. I went there expecting to be told that I must continue with the gluten for a few more weeks, go for endoscopy and I cannot tell you how rough I feel after a month eating it already.

He obviously decided enough was enough and thank god for that :D

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


adab8ca Enthusiast
adab8ca
Posted

He asked me about symptoms. Thanks to brain fog I'd written them all down. He looked at the skin problems, looked over the list, looked at my stomach and asked my why oh why was I still eating gluten. I told him my gp told me to so I could be tested and his answer was to stop eating it immediately. He talked about cross contamination, it being hidden in certain foods that you wouldn't expect and to eat whole foods - no processed gluten free crap.

He said the blood tests the doctor did a couple of months back were negative but he didn't want me to continue eating gluten to go for endoscopy. Just quit eating it, right now, today. I was gluten-free for a year (excluding CC and the odd 'I don't care and I'm eating that spring roll' moment, and back on the gluten for just two weeks prior to blood test.

Formally diagnosed as non Coeliacs gluten intolerance - treatment is the same either way. And that was that.

I *really* could have kissed this guy. I went there expecting to be told that I must continue with the gluten for a few more weeks, go for endoscopy and I cannot tell you how rough I feel after a month eating it already.

He obviously decided enough was enough and thank god for that :D

He sounds AWESOME!!!

Good for you!

Diane-in-FL Explorer
Diane-in-FL
Posted

He is a rare one, it seems. Let's clone him! :)

kwylee Apprentice
kwylee
Posted

I love reading stories like this!!!! We're still in the dark ages with this, but maybe we can see sparks of light at the end of the tunnel.

Darn210 Enthusiast
Darn210
Posted

He sounds like a keeper to me!!

Takala Enthusiast
Takala
Posted

Welcome back to Sanity World. :)

kareng Grand Master
kareng
Posted

Would you like to tell us his name & where to find him? If not, that's OK.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Hawthorn Rookie
Hawthorn
Posted
  • Author

Would you like to tell us his name & where to find him? If not, that's OK.

hahaha he was called Dr Tai and it was in east yorkshire, UK :P

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,719
    • Most Online (within 30 mins)
      7,748
    storeopinionpc
    Newest Member
    storeopinionpc
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Rejoicephd
      Draft gluten-free ciders… can they be trusted ?

      By Rejoicephd · Posted

      @Scott Adams That's actually exactly what I ended up asking for— vodka tonic with Titos.  I saw on their website that Tito's is certified gluten-free (maybe many of the clear vodkas are, I don't know, I just happened to look up Tito's in advance). I should have actually specified the 'splash' though, because I think with the amount of tonic she put in there, it did still end up fairly sweet.  Anyway, I think I've almost got this drink order down!
    • Wends
      Inconclusive results

      By Wends · Posted

      Be interesting to see the effects of dairy reintroduction with gluten. As well as milk protein sensitivity in and of itself the casein part particularly has been shown to mimic gluten in about 50% of celiacs. Keep us posted!
    • deanna1ynne
      Inconclusive results

      By deanna1ynne · Posted

      She has been dairy free for six years, so she’d already been dairy free for two years at her last testing and was dairy free for the entire gluten challenge this year as well (that had positive results). However, now that we’re doing another biopsy in six weeks, we decided to do everything we can to try to “see” the effects, so we decided this past week to add back in dairy temporarily for breakfast (milk and cereal combo like you said).
    • Gigi2025
      How Come Gluten Didnt Bother Me In Italy

      By Gigi2025 · Posted

      Hi Christiana, Many thanks for your response.  Interestingly, I too cannot eat wheat in France without feeling effects (much less than in the US, but won't indulge nonetheless).  I also understand children are screened for celiac in Italy prior to starting their education. Wise idea as it seems my grandson has the beginning symptoms (several celiacs in his dad's family), but parents continue to think he's just being difficult.  Argh.  There's a test I took that diagnosed gluten sensitivity in 2014 via Entero Labs, and am planning on having done again.  Truth be told, I'm hoping it's the bromine/additives/preservatives as I miss breads and pastas terribly when home here in the states!  Be well and here's to our guts healing ❤️
    • Wends
      Inconclusive results

      By Wends · Posted

      Lol that’s so true! Hope you get clarity, it’s tough when there’s doubt. There’s so much known about celiac disease with all the scientific research that’s been done so far yet practically and clinically there’s also so much unknown, still. Out of curiosity what’s her dairy consumption like? Even compared to early years to now? Has that changed? Calcium is dependent in the mechanism of antigen presenting cells in the gut. High calcium foods with gluten grains can initiate inflammation greater.  This is why breakfast cereals and milk combo long term can be a ticking time bomb for genetically susceptible celiacs (not a scientific statement by any means but my current personal opinion based on reasoning at present). Milk and wheat are the top culprits for food sensitivity. Especially in childhood. There are also patient cases of antibodies normalising in celiac children who had milk protein intolerance/ delayed type allergy. Some asymptomatic. There were a couple of cases of suspected celiacs that turned out to have milk protein intolerance that normalised antibodies on a gluten containing diet. Then there were others that only normalised antibodies once gluten and milk was eliminated. Milk kept the antibodies positive. Celiac disease is complicated to say the least.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.