Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Sooo, A Month On Gluten And This Is What The Specialist Said

Hawthorn

Recommended Posts

Hawthorn Rookie
Hawthorn
Posted

He asked me about symptoms. Thanks to brain fog I'd written them all down. He looked at the skin problems, looked over the list, looked at my stomach and asked my why oh why was I still eating gluten. I told him my gp told me to so I could be tested and his answer was to stop eating it immediately. He talked about cross contamination, it being hidden in certain foods that you wouldn't expect and to eat whole foods - no processed gluten free crap.

He said the blood tests the doctor did a couple of months back were negative but he didn't want me to continue eating gluten to go for endoscopy. Just quit eating it, right now, today. I was gluten-free for a year (excluding CC and the odd 'I don't care and I'm eating that spring roll' moment, and back on the gluten for just two weeks prior to blood test.

Formally diagnosed as non Coeliacs gluten intolerance - treatment is the same either way. And that was that.

I *really* could have kissed this guy. I went there expecting to be told that I must continue with the gluten for a few more weeks, go for endoscopy and I cannot tell you how rough I feel after a month eating it already.

He obviously decided enough was enough and thank god for that :D

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


adab8ca Enthusiast
adab8ca
Posted

He asked me about symptoms. Thanks to brain fog I'd written them all down. He looked at the skin problems, looked over the list, looked at my stomach and asked my why oh why was I still eating gluten. I told him my gp told me to so I could be tested and his answer was to stop eating it immediately. He talked about cross contamination, it being hidden in certain foods that you wouldn't expect and to eat whole foods - no processed gluten free crap.

He said the blood tests the doctor did a couple of months back were negative but he didn't want me to continue eating gluten to go for endoscopy. Just quit eating it, right now, today. I was gluten-free for a year (excluding CC and the odd 'I don't care and I'm eating that spring roll' moment, and back on the gluten for just two weeks prior to blood test.

Formally diagnosed as non Coeliacs gluten intolerance - treatment is the same either way. And that was that.

I *really* could have kissed this guy. I went there expecting to be told that I must continue with the gluten for a few more weeks, go for endoscopy and I cannot tell you how rough I feel after a month eating it already.

He obviously decided enough was enough and thank god for that :D

He sounds AWESOME!!!

Good for you!

Diane-in-FL Explorer
Diane-in-FL
Posted

He is a rare one, it seems. Let's clone him! :)

kwylee Apprentice
kwylee
Posted

I love reading stories like this!!!! We're still in the dark ages with this, but maybe we can see sparks of light at the end of the tunnel.

Darn210 Enthusiast
Darn210
Posted

He sounds like a keeper to me!!

Takala Enthusiast
Takala
Posted

Welcome back to Sanity World. :)

kareng Grand Master
kareng
Posted

Would you like to tell us his name & where to find him? If not, that's OK.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Hawthorn Rookie
Hawthorn
Posted
  • Author

Would you like to tell us his name & where to find him? If not, that's OK.

hahaha he was called Dr Tai and it was in east yorkshire, UK :P

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. yellowstone
      - yellowstone posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      0

      Cold/flu or gluten poisoning?

      Cold/flu or gluten poisoning? Hello. I've had another similar episode. I find it very difficult to differentiate between the symptoms of a cold or flu and those caused by gluten poisoning. In fact, I don't know if my current worsening is due to having eaten something that disagreed with me or if the cold I have has caused my body, which is hypersensitive...
    2. Churro
      - Churro replied to Churro's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      17

      Celiac disease symptoms

      I'm no longer dealing with constipation. I got my liver test last month and it was in normal range. Two years ago I did have a vitamin D deficiency but I'm know taking vitamin D3 pills. Last month I got my vitamin D checked and it was in normal range. I don't believe I've had my choline checked. However, I do drink almond milk eat Greek yogurt on a daily...
    3. Wheatwacked
      - Wheatwacked replied to Churro's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      17

      Celiac disease symptoms

      Non-Celiac Gluten Sensitivity (NCGS) can be associated with low ferritin and iron deficiency. Once Celiac Disease (1% of the population affected) has been ruled out by tests the next step is to check for Non Celiac Gluten Sensitivity (10% of the population affected) by eliminating gluten for a trial period, then re-introduce Gluten Challange. Have...
    4. Churro
      - Churro replied to Churro's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      17

      Celiac disease symptoms

      Thanks for your input.
    5. trents
      - trents replied to Churro's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      17

      Celiac disease symptoms

      If you have hemorrhoids 1x weekly I don't see how you have time to heal from one episode before you experience another one, unless each one is a very minor event. Have you consulted a physician about your hemorrhoid issue? It's not normal to be having an episode every week unless it is really one episode that is not completely healing between weekly...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,062
    • Most Online (within 30 mins)
      7,748
    JTL1976
    Newest Member
    JTL1976
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • yellowstone
      Cold/flu or gluten poisoning?

      By yellowstone · Posted

      Cold/flu or gluten poisoning? Hello. I've had another similar episode. I find it very difficult to differentiate between the symptoms of a cold or flu and those caused by gluten poisoning. In fact, I don't know if my current worsening is due to having eaten something that disagreed with me or if the cold I have has caused my body, which is hypersensitive, to produce symptoms similar to those of gluten poisoning.        
    • Churro
      Celiac disease symptoms

      By Churro · Posted

      I'm no longer dealing with constipation. I got my liver test last month and it was in normal range. Two years ago I did have a vitamin D deficiency but I'm know taking vitamin D3 pills. Last month I got my vitamin D checked and it was in normal range. I don't believe I've had my choline checked. However, I do drink almond milk eat Greek yogurt on a daily basis. 
    • Wheatwacked
      Celiac disease symptoms

      By Wheatwacked · Posted

      Non-Celiac Gluten Sensitivity (NCGS) can be associated with low ferritin and iron deficiency. Once Celiac Disease (1% of the population affected) has been ruled out by tests the next step is to check for Non Celiac Gluten Sensitivity (10% of the population affected) by eliminating gluten for a trial period, then re-introduce Gluten Challange. Have you been supplementing Iron? How are your liver enzymes? Low levels of ferritin indicate iron deficiency, while  59% transferrin saturation indicates high iron levels.  Possibly indicating Fatty Liver Disease.  Choline is crucial for liver health, and deficiency is a known trigger for Non-Alcoholic Fatty Liver.  Some experts say that less than 10% eat the the Food and Nutrition Board established Adequate Intake that are based on the prevention of liver damage. Severe constipation and hemorrhoids may be linked to a bile or choline deficiency.  "Ninety-five percent of phospholipids (PLs) in bile is secreted as phosphatidylcholine or lecithin."  Fatty acid composition of phospholipids in bile in man   Deficiency of these bile salts causes the bile to get thick. Some people with Celiac Disease are misdiagnosed with Gall Bladder bile issues.  Removal of the gallbladder provides only temporary relief. Whether or not celiac disease or NCGS are your issues you need to look at your vitamin D blood level.   
    • Churro
      Celiac disease symptoms

      By Churro · Posted

      Thanks for your input. 
    • trents
      Celiac disease symptoms

      By trents · Posted

      If you have hemorrhoids 1x weekly I don't see how you have time to heal from one episode before you experience another one, unless each one is a very minor event. Have you consulted a physician about your hemorrhoid issue? It's not normal to be having an episode every week unless it is really one episode that is not completely healing between weekly flareups.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.