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Its The Sugar!


glutenfreegirl

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glutenfreegirl Enthusiast

OMG....it is the sugar that is bloating me.....So I posted a few days back about really bad bloating, pain, gas, etc and so i started pulling stuff out of my diet as many of you suggested and the bloating disapearred....finally i felt great, energized and not pregnant...so over the days I would add somehting I thought it might be back in and today I did sugar and ugh I feel awful, sick to my stomach, bloated, yuck!!! after all these yrs of eatting it fine whod a thought?? someone here FODMAP or something like that does anyone know about it? I tried to google it but came up pretty empty except for a site about sue shepard but you had to make an apt with her to get more details....anyway any thoughts as I do notice gluten-free breads are causing bloating too, so it must have to do with the sugar break down....


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GlutenFreeManna Rising Star

Have you considered you could have Candida? That can cause bloating from any carbs at all. That is what I suspected when I originally did my elimination diet. I cut out all forms of carb--all grains, all sugar except very small amounts of honey, all dairy, all fruit, all nuts and even beans for a month. I was eating just plain meat and non-starchy veggies for that month. I think I did end up trying kosher salt, black pepper and olive oil in the first week so I would have some seasonings. I also took natural antifungals. When I added things back in after a month however I found that most starches and carbs did not bother me only gluten, dairy and soy bothered me. Unfortunately there's really no standard anti-Candida diet. If you google it a ton of different approaches for what to eat and what not to eat comes up and none of the info seems very scientific. The SCD--specific Carbohydrate Diet I think can address candida as well as being good for celaic (it's gluten-free if I recall correctly). i don't know abotu the FODMAP diet but I checked a book out from the library on the SCD and a lot of the things I cut out in my elimiantion diet were cut out for doing the SCD.

sreese68 Enthusiast

Lots of info on FODMAP diet here: Open Original Shared Link Her book has good info, too. Just remember that reactions to food can be delayed, so don't add more than one thing at a time for at least 4 days. A week is better. (I react to food 2 days after I eat it.)

Greenling Newbie

I've had a similar reaction to sugar (but not with other carbs), so I know what you mean. Google "Simply Sugar and Gluten Free" and you'll find a very helpful blog with recipes, etc. I just discovered it the other day.

domesticactivist Collaborator

We use the GAPS diet. It is based in the Specific Carbohydrate Diet. I have a post with resources on the blog linked from my profile. Just search GAPS Resources on it and you'll find more.

One of the ideas behind both the SCD and GAPS is that monosaccharide sugars are easier to digest that poly and disaccharide sugars. Also, eliminating sugars helps starve out imbalanced gut flora. (think candida!) There is so much more to say on this, but I don't have time. It's all been said before, though, so maybe you could search on here in the archives?

FODMAP is interesting, but my impression is that it deals more with the effects of the problem than the cause. The FODMAP diet info I have seen points to eating a lot of very refined foods. I prefer the approach of going back to basics of real, whole foods, starting with the most nutrient dense and easily digested.

Skylark Collaborator

Refined sugar is evil. I don't tolerate it well at all. Makes me soooooo tired.

YoloGx Rookie

Ironically now that I am eating a low salicylate diet I tolerate maple syrup very well and some cane sugar now and then. Whereas before that I did not tolerate eating anything that converted to sugar quickly like ground up brown rice flour or any of the other gluten-free flours. Honey is a no no for me both now and previously. Thus the SCD didn't work very well for me...although it has helped many others. Its a great way to lose weight however.

No matter about my ramblings, its more likely you have candida overgrowth than what I have, or even a need to be on SCD, especially since the other foods didn't bother you. Just wanted to put my two cents in however...


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ErinP Newbie

Even beyond the question of candida is the basic biomechanics of sugar digestion. Sugar is digested in the duodenum (upper part) of the small intestine. The small intestine of a celiac is damaged.

Logic dictates that something that is exclusively digested in a damaged organ might not actually be getting digested appropriately...

For my own part, I have discovered that I need to avoid not only gluten, but grains in general as well as most sugars.

speedy2056 Apprentice

Ever since my anxiety came back after being on the gluten free diet, yesterday I considered candida for myself. I may do an anti-candida diet for a month and see what happens, but I love my fruit! And weekends will be hard in not being able to have a treat or two. ;)

glutenfreegirl Enthusiast

Thanks everyone I love hearing your personal experiences...it reminds me I am not alone in this.....big hugs

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    • marion wheaton
      Thanks for responding. I researched further and Lindt Lindor chocolate balls do contain barely malt powder which contains gluten. I was surprised at all of the conflicting information I found when I checked online.
    • trents
      @BlessedinBoston, it is possible that in Canada the product in question is formulated differently than in the USA or at least processed in in a facility that precludes cross contamination. I assume from your user name that you are in the USA. And it is also possible that the product meets the FDA requirement of not more than 20ppm of gluten but you are a super sensitive celiac for whom that standard is insufficient. 
    • BlessedinBoston
      No,Lindt is not gluten free no matter what they say on their website. I found out the hard way when I was newly diagnosed in 2000. At that time the Lindt truffles were just becoming popular and were only sold in small specialty shops at the mall. You couldn't buy them in any stores like today and I was obsessed with them 😁. Took me a while to get around to checking them and was heartbroken when I saw they were absolutely not gluten free 😔. Felt the same when I realized Twizzlers weren't either. Took me a while to get my diet on order after being diagnosed. I was diagnosed with small bowel non Hodgkins lymphoma at the same time. So it was a very stressful time to say the least. Hope this helps 😁.
    • knitty kitty
      @Jmartes71, I understand your frustration and anger.  I've been in a similar situation where no doctor took me seriously, accused me of making things up, and eventually sent me home to suffer alone.   My doctors did not recognize nutritional deficiencies.  Doctors are trained in medical learning institutions that are funded by pharmaceutical companies.  They are taught which medications cover up which symptoms.  Doctors are required to take twenty  hours of nutritional education in seven years of medical training.  (They can earn nine hours in Nutrition by taking a three day weekend seminar.)  They are taught nutritional deficiencies are passe' and don't happen in our well fed Western society any more.  In Celiac Disease, the autoimmune response and inflammation affects the absorption of ALL the essential vitamins and minerals.  Correcting nutritional deficiencies caused by malabsorption is essential!  I begged my doctor to check my Vitamin D level, which he did only after making sure my insurance would cover it.  When my Vitamin D came back extremely low, my doctor was very surprised, but refused to test for further nutritional deficiencies because he "couldn't make money prescribing vitamins.". I believe it was beyond his knowledge, so he blamed me for making stuff up, and stormed out of the exam room.  I had studied Nutrition before earning a degree in Microbiology.  I switched because I was curious what vitamins from our food were doing in our bodies.  Vitamins are substances that our bodies cannot manufacture, so we must ingest them every day.  Without them, our bodies cannot manufacture life sustaining enzymes and we sicken and die.   At home alone, I could feel myself dying.  It's an unnerving feeling, to say the least, and, so, with nothing left to lose, I relied in my education in nutrition.  My symptoms of Thiamine deficiency were the worst, so I began taking high dose Thiamine.  I had health improvement within an hour.  It was magical.  I continued taking high dose thiamine with a B Complex, magnesium. and other essential nutrients.  The health improvements continued for months.  High doses of thiamine are required to correct a thiamine deficiency because thiamine affects every cell and mitochondria in our bodies.    A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function.  The cerebellum of the brain is most affected.  The cerebellum controls things we don't have to consciously have to think about, like digestion, balance, breathing, blood pressure, heart rate, hormone regulation, and many more.  Thiamine is absorbed from the digestive tract and sent to the most important organs like the brain and the heart.  This leaves the digestive tract depleted of Thiamine and symptoms of Gastrointestinal Beriberi, a thiamine deficiency localized in the digestive system, begin to appear.  Symptoms of Gastrointestinal Beriberi include anxiety, depression, chronic fatigue, headaches, Gerd, acid reflux, gas, slow stomach emptying, gastroparesis, bloating, diarrhea and/or constipation, incontinence, abdominal pain, IBS,  SIBO, POTS, high blood pressure, heart rate changes like tachycardia, difficulty swallowing, Barrett's Esophagus, peripheral neuropathy, and more. Doctors are only taught about thiamine deficiency in alcoholism and look for the classic triad of symptoms (changes in gait, mental function, and nystagmus) but fail to realize that gastrointestinal symptoms can precede these symptoms by months.  All three classic triad of symptoms only appear in fifteen percent of patients, with most patients being diagnosed with thiamine deficiency post mortem.  I had all three but swore I didn't drink, so I was dismissed as "crazy" and sent home to die basically.   Yes, I understand how frustrating no answers from doctors can be.  I took OTC Thiamine Hydrochloride, and later thiamine in the forms TTFD (tetrahydrofurfuryl disulfide) and Benfotiamine to correct my thiamine deficiency.  I also took magnesium, needed by thiamine to make those life sustaining enzymes.  Thiamine interacts with each of the other B vitamins, so the other B vitamins must be supplemented as well.  Thiamine is safe and nontoxic even in high doses.   A doctor can administer high dose thiamine by IV along with the other B vitamins.  Again, Thiamine is safe and nontoxic even in high doses.  Thiamine should be given if only to rule Gastrointestinal Beriberi out as a cause of your symptoms.  If no improvement, no harm is done. Share the following link with your doctors.  Section Three is especially informative.  They need to be expand their knowledge about Thiamine and nutrition in Celiac Disease.  Ask for an Erythrocyte Transketolace Activity test for thiamine deficiency.  This test is more reliable than a blood test. Thiamine, gastrointestinal beriberi and acetylcholine signaling.  https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Best wishes!
    • Jmartes71
      I have been diagnosed with celiac in 1994, in remission not eating wheat and other foods not to consume  my household eats wheat.I have diagnosed sibo, hernia ibs, high blood pressure, menopause, chronic fatigue just to name a few oh yes and Barrett's esophagus which i forgot, I currently have bumps in back of my throat, one Dr stated we all have bumps in the back of our throat.Im in pain.Standford specialist really dismissed me and now im really in limbo and trying to get properly cared for.I found a new gi and new pcp but its still a mess and medical is making it look like im a disability chaser when Im actively not well I look and feel horrible and its adding anxiety and depression more so.Im angery my condition is affecting me and its being down played 
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