Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Help Please!


vanik

Recommended Posts

vanik Newbie

Hi All,

I was diagnosed a few years ago with a positive biopsy and blood work. I havent been strict with my diet as i really dont have any major side effects.. until now. I have had severe bloating, diahria, pain (stabby pain) in my stomach and im nauseous. I'm debating if i should go to the dr or even the hospital if i cant get into to see my dr. This has been going on since friday so 4 days now. I know its all due to my celiac but do you think they can do anything to help. This is defintely a lesson learned and will NEVER eat gluten again. I'm so sick. What should i do?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cahill Collaborator

Hi All,

I was diagnosed a few years ago with a positive biopsy and blood work. I havent been strict with my diet as i really dont have any major side effects.. until now. I have had severe bloating, diahria, pain (stabby pain) in my stomach and im nauseous. I'm debating if i should go to the dr or even the hospital if i cant get into to see my dr. This has been going on since friday so 4 days now. I know its all due to my celiac but do you think they can do anything to help. This is defintely a lesson learned and will NEVER eat gluten again. I'm so sick. What should i do?

I would go to the doctor or ER, just to make sure nothing else is going on.

THEN I WOULD GO TOTALLY GLUTEN FREE!!

fairydust81 Rookie

I would definitely seek medical advice from your doctor, especially if the pain is unbearable. If anything, they'll hopefully be able to give you something to help ease the pain and discomfort in your abdomen.

I also agree with the post above - this is your body's way of telling you it really doesn't like gluten, especially with the positive bloods etc....you never know what damage is going on internally and what it can lead to in later life...

I'm newly diagnosed and it's a steep learning curve, I'm awaiting a biopsy before I go gluten free and I know it's going to be very difficult.....

Hope you start to feel better soon

Skylark Collaborator

I hope you got some medical help by now. If you ate a bunch of gluten, there won't be a lot doctors can do for you, but it's important to be sure it is the celiac and not something else.

I find Pepto-Bismol helpful for the nausea and stomachache and I usually take Immodium for diarrhea. Also drink lots of water to help detox and stay hydrated. I've been told to drink half-strength Gatorade (it's gluten-free) to rehydrate from diarrhea. The sugar helps too if I'm too queasy to want food. Once I'm feeling a little better I have some white rice and broth or a little applesauce. Some people take L-glutamine to help healing, and I find a little extra B12 and fish oil helps the anxiety attacks I get from gluten.

erinecox Contributor

It really sucks to know that you've had the information all this time and haven't used it and now you're sick because of that. I don't say that to be condescending. I did the exact same thing and could kick myself. I'm now knocking on the diabetic door (still testing, probably T1) and I know it's MY fault b/c I kept eating gluten for 2.5yrs after my diagnosis b/c I never had the intestinal problems from it. Just bone pain that I'd had forever so I was just used to it.

I hope you're feeling better by now and are on your way to being gluten-free!!

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,602
    • Most Online (within 30 mins)
      7,748

    Victor bowden
    Newest Member
    Victor bowden
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):




  • Who's Online (See full list)


  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Wheatwacked
      Yes.  Now, if you hit your finger with a hammer once, wouldn't you do your best not to do it again?  You have identified a direct connection between gluten and pain.  Gluten is your hammer.  Now you have to decide if you need a medical diagnosis.  Some countries have aid benefits tgat you can get if you have the diagnosis, but you must continue eating a gluten-normal diet while pursuing the diagnosis. Otherwise the only reason to continue eating gluten is social. There are over 200 symptoms that could be a result of celiac disease.. Celiac Disease and Non Celiac Gluten Sensitivity  both cause multiple vitamin and mineral deficiency.  Dealing with that should help your recovery, even while eating gluten.  Phosphatidyl Choline supplements can help your gut if digesting fats is a problem,  Consider that any medications you take could be causing some of the symptoms, aside from gluten.        
    • trents
      Welcome to the forum, @Ben98! If you have been consciously or unconsciously avoiding gluten because of the discomfort it produces then it is likely that your blood antibody testing for celiac disease has been rendered invalid. Valid testing requires regular consumption of generous amounts of gluten. The other strong possibility is that you have NCGS (Non Celiac Gluten Sensitivity) which shares many of the same symptoms with celiac disease but does not have the autoimmune component and thus does not damage the small bowel lining. It is 10x mor common than celiac disease. There is currently no test for NCGS. Celiac disease must first be ruled out. Some experts in the field believe it can be a precursor to the development of celiac disease. Having one or both of the primary genes for developing celiac disease does not imply that you will develop active celiac disease. It simply establishes the potential for it. About 40% of the population has the genetic potential but only about 1% develop active celiac disease. 
    • Ben98
      TTG blood test and total IGA tested on many occasions which have always remained normal, upper GI pain under my ribs since 2022. I had an endoscopy in 2023 which showed moderate gastritis. no biopsy’s were taken unfortunately. genetic test was positive for HLADQ2. extreme bloating after eating gluten, it’ll feel like I’ve got bricks in my stomach so uncomfortably full. the pain is like a dull ache under the upper left almost like a stitch feeling after a long walk. I am just wanting some advice has anyone here experienced gastritis with a gluten issue before? thank you  
    • Wheatwacked
      "Conclusions: The urinary iodine level was significantly lower in women with postmenopausal osteoporosis, and iodine replacement may be important in preventing osteoporosis"  Body iodine status in women with postmenopausal osteoporosis Low iodine can cause thyroid problems, but Iodine deficiency will not show up in thyroid tests.  Iodine is important for healing, its job is to kill off defective and aging cells (Apoptosis). Skin, brain fog, nails, muscle tone all inproved when I started taking 600 mcg (RDA 150 - 1000 mcg) of Liquid Iodine drops. Some with dermatitis herpetiformis, Iodine exacerbates the rash.  I started at 1 drop (50 mcg) and worked up to 12 drops, but I don't have dermatitis herpetiformis.
    • cristiana
      That's great news, you can do this.  Let us know how things go and don't hesitate to ask if you have any more questions. Cristiana 😊
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.