Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Girls Blood Tested Positive

samie

Recommended Posts

samie Contributor
samie
Posted

My 2 girls blood tested positive one of them already has diabetes to. They will get a biopsy on the 25 of this month at the childrens hospital. I was diagnosed with it about six months ago but think i have had it most of my life.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Mummyto3 Contributor
Mummyto3
Posted

Hi,

My daughter tested positive with bloods last month and biopsy today. My hubby and I are neg and my boys were just tested with bloods on Wed.

maximoo Enthusiast
maximoo
Posted

[How old are your girls? And what are thier symptoms? I chose not to have the endoscopy for my 2 teens. There is a high possibility of a false negative plus this notion that the endoscopy is the "gold standard" just makes me wanna scream. It makes no sense. I researched it & read alot before I decided to decline. After what I've learned it is archaic if you ask me. However for those lucky few who actually show positive I guess thats what is keeping this insane practice going. Just my biased & humble opinion. You do what you think is best for your girls. just please research thoroughly. Best of luck 2 u all!/size]

Roda Rising Star
Roda
Posted

[How old are your girls? And what are thier symptoms? I chose not to have the endoscopy for my 2 teens. There is a high possibility of a false negative plus this notion that the endoscopy is the "gold standard" just makes me wanna scream. It makes no sense. I researched it & read alot before I decided to decline. After what I've learned it is archaic if you ask me. However for those lucky few who actually show positive I guess thats what is keeping this insane practice going. Just my biased & humble opinion. You do what you think is best for your girls. just please research thoroughly. Best of luck 2 u all!/size]

I have two boys. My 6.5 year old tested positive for Iga ttg last Nov. I did not have him scoped/biopsied based on his positive blood test only and my celiac diagnosis. However, my 10.5 year old has tested negative on blood work three times now, His new allergist thinks he has celiac or gluten intolerance anyway. We have a GI consult the end of this month and I am going to get him scoped/biopsy. Obviously if he is positive then he will be gluten free for good. If negative I am going to do at least a three month trial and reevaluate. As for myself I wanted the scope. Not only did I want to get the biopsy done but wanted to rule out other things as well. I had another scope done 1.5 years after diagnosis. It wasn't to look at celiac (I did have biopsies redone to recheck it though) but it was because I had developed new symptoms. I found out I had developed an ulcer.

Roda Rising Star
Roda
Posted

My 2 girls blood tested positive one of them already has diabetes to. They will get a biopsy on the 25 of this month at the childrens hospital. I was diagnosed with it about six months ago but think i have had it most of my life.

I would put them gluten free regardless of the biopsy results since they both were positive on blood work and with you already diagnosed. I'm hoping to get my oldest son scheduled for a scope next month. He has a GI consult the end of this month. My youngest is already gluten free as am I so it is likely we will add another to the lot.

samie Contributor
samie
Posted
  • Author

[How old are your girls? And what are thier symptoms? I chose not to have the endoscopy for my 2 teens. There is a high possibility of a false negative plus this notion that the endoscopy is the "gold standard" just makes me wanna scream. It makes no sense. I researched it & read alot before I decided to decline. After what I've learned it is archaic if you ask me. However for those lucky few who actually show positive I guess thats what is keeping this insane practice going. Just my biased & humble opinion. You do what you think is best for your girls. just please research thoroughly. Best of luck 2 u all!/size]

My girls are 3 and 4. The 4 yr old has had problems with constipation most of her life. She also has a speech delay. I dont know if it is related to celiac. Also has been a lot more irritable lately. She also has type 1 diabetes. The 3 yr old has had blood in her stool sometimes and complains about her tummy hurting. She used to constantly throw up when she was young doctor said it probaly was acid reflux. It went away for over a year and now she has been doing it again but not as bad. She also had to be on iron for a little while when she was one cause she was anemic. and thanks for the advice.

samie Contributor
samie
Posted
  • Author

[How old are your girls? And what are thier symptoms? I chose not to have the endoscopy for my 2 teens. There is a high possibility of a false negative plus this notion that the endoscopy is the "gold standard" just makes me wanna scream. It makes no sense. I researched it & read alot before I decided to decline. After what I've learned it is archaic if you ask me. However for those lucky few who actually show positive I guess thats what is keeping this insane practice going. Just my biased & humble opinion. You do what you think is best for your girls. just please research thoroughly. Best of luck 2 u all!/size]

Also my 3 yr old has ezcema. I dont know if its related to it or not.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Hawthorn Rookie
Hawthorn
Posted

Also my 3 yr old has ezcema. I dont know if its related to it or not.

It may well be. I have skin problems that clear up on a gluten free diet. I cannot tolerate lactose either and that seems to set my skin itching for some reason.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,037
    • Most Online (within 30 mins)
      7,748
    cbattiato
    Newest Member
    cbattiato
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      Celiac getting dentures

      By Scott Adams · Posted

      This is an older article, but may be helpful.  
    • gfmom06
      Celiac getting dentures

      By gfmom06 · Posted

      I have had orthodontic work done. The 3M invisalign material was no problem. BUT my retainers are another matter. They seemed okay for a few months. Now, however, they cause a burning sensation on my tongue, gums and insides of my lips. The burning sensation is now spreading to my throat. I notice it when I breathe. This is annoying and interferes with my enjoyment of eating. I am visiting with my provider tomorrow. We'll see where this goes from here.
    • Beverage
      Is this celiac?

      By Beverage · Posted

      Exactly which blood tests were done? There are a few different ones and some docs don't do them all. Also, your results and reference ranges for each?
    • Jmartes71
      Fighting for a name

      By Jmartes71 · Posted

      Thankyou so much for your words.Its a hard battle when a supposed well known hospital whose celiac " specialist " has down played me because my colon looks fine and put it in my medical and so pcp doesn't take seriously. In their eyes we all carry that gene.Im having alot of bad days trying to be positive because of it.
    • Scott Adams
      Celiac getting dentures

      By Scott Adams · Posted

      Your experience is both shocking and critically important for the community to hear, underscoring the terrifying reality that cross-contamination can extend into the most unexpected and invasive medical devices. It is absolutely devastating that you had to endure six months of sickness and ultimately sustain permanent vision loss because a doctor dismissed your legitimate, life-altering condition. Your relentless research and advocacy, from discovering the gluten in MMA acrylic to finding a compassionate prosthodontist, is a testament to your strength in a system that often fails celiac patients. While the scientific and medical consensus is that gluten cannot be absorbed through the skin or eyes (as the molecules are too large to pass through these barriers), your story highlights a terrifying gray area: what about a substance *permanently implanted inside the body*, where it could potentially shed microparticles or cause a localized immune reaction? Your powerful warning about acrylic lenses and the drastic difference with the silicone alternative is invaluable information. Thank you for sharing your harrowing journey and the specific, severe neurological symptoms you endure; it is a stark reminder that celiac is a systemic disease, and your advocacy is undoubtedly saving others from similar trauma.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.