Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Girls Blood Tested Positive


samie

Recommended Posts

samie Contributor

My 2 girls blood tested positive one of them already has diabetes to. They will get a biopsy on the 25 of this month at the childrens hospital. I was diagnosed with it about six months ago but think i have had it most of my life.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Mummyto3 Contributor

Hi,

My daughter tested positive with bloods last month and biopsy today. My hubby and I are neg and my boys were just tested with bloods on Wed.

maximoo Enthusiast

[How old are your girls? And what are thier symptoms? I chose not to have the endoscopy for my 2 teens. There is a high possibility of a false negative plus this notion that the endoscopy is the "gold standard" just makes me wanna scream. It makes no sense. I researched it & read alot before I decided to decline. After what I've learned it is archaic if you ask me. However for those lucky few who actually show positive I guess thats what is keeping this insane practice going. Just my biased & humble opinion. You do what you think is best for your girls. just please research thoroughly. Best of luck 2 u all!/size]

Roda Rising Star

[How old are your girls? And what are thier symptoms? I chose not to have the endoscopy for my 2 teens. There is a high possibility of a false negative plus this notion that the endoscopy is the "gold standard" just makes me wanna scream. It makes no sense. I researched it & read alot before I decided to decline. After what I've learned it is archaic if you ask me. However for those lucky few who actually show positive I guess thats what is keeping this insane practice going. Just my biased & humble opinion. You do what you think is best for your girls. just please research thoroughly. Best of luck 2 u all!/size]

I have two boys. My 6.5 year old tested positive for Iga ttg last Nov. I did not have him scoped/biopsied based on his positive blood test only and my celiac diagnosis. However, my 10.5 year old has tested negative on blood work three times now, His new allergist thinks he has celiac or gluten intolerance anyway. We have a GI consult the end of this month and I am going to get him scoped/biopsy. Obviously if he is positive then he will be gluten free for good. If negative I am going to do at least a three month trial and reevaluate. As for myself I wanted the scope. Not only did I want to get the biopsy done but wanted to rule out other things as well. I had another scope done 1.5 years after diagnosis. It wasn't to look at celiac (I did have biopsies redone to recheck it though) but it was because I had developed new symptoms. I found out I had developed an ulcer.

Roda Rising Star

My 2 girls blood tested positive one of them already has diabetes to. They will get a biopsy on the 25 of this month at the childrens hospital. I was diagnosed with it about six months ago but think i have had it most of my life.

I would put them gluten free regardless of the biopsy results since they both were positive on blood work and with you already diagnosed. I'm hoping to get my oldest son scheduled for a scope next month. He has a GI consult the end of this month. My youngest is already gluten free as am I so it is likely we will add another to the lot.

samie Contributor

[How old are your girls? And what are thier symptoms? I chose not to have the endoscopy for my 2 teens. There is a high possibility of a false negative plus this notion that the endoscopy is the "gold standard" just makes me wanna scream. It makes no sense. I researched it & read alot before I decided to decline. After what I've learned it is archaic if you ask me. However for those lucky few who actually show positive I guess thats what is keeping this insane practice going. Just my biased & humble opinion. You do what you think is best for your girls. just please research thoroughly. Best of luck 2 u all!/size]

My girls are 3 and 4. The 4 yr old has had problems with constipation most of her life. She also has a speech delay. I dont know if it is related to celiac. Also has been a lot more irritable lately. She also has type 1 diabetes. The 3 yr old has had blood in her stool sometimes and complains about her tummy hurting. She used to constantly throw up when she was young doctor said it probaly was acid reflux. It went away for over a year and now she has been doing it again but not as bad. She also had to be on iron for a little while when she was one cause she was anemic. and thanks for the advice.

samie Contributor

[How old are your girls? And what are thier symptoms? I chose not to have the endoscopy for my 2 teens. There is a high possibility of a false negative plus this notion that the endoscopy is the "gold standard" just makes me wanna scream. It makes no sense. I researched it & read alot before I decided to decline. After what I've learned it is archaic if you ask me. However for those lucky few who actually show positive I guess thats what is keeping this insane practice going. Just my biased & humble opinion. You do what you think is best for your girls. just please research thoroughly. Best of luck 2 u all!/size]

Also my 3 yr old has ezcema. I dont know if its related to it or not.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Hawthorn Rookie

Also my 3 yr old has ezcema. I dont know if its related to it or not.

It may well be. I have skin problems that clear up on a gluten free diet. I cannot tolerate lactose either and that seems to set my skin itching for some reason.

Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,353
    • Most Online (within 30 mins)
      7,748

    ace14219
    Newest Member
    ace14219
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • par18
      Thanks for the reply. 
    • Scott Adams
      What you’re describing is actually very common, and unfortunately the timing of the biopsy likely explains the confusion. Yes, it is absolutely possible for the small intestine to heal enough in three months on a strict gluten-free diet to produce a normal or near-normal biopsy, especially when damage was mild to begin with. In contrast, celiac antibodies can stay elevated for many months or even years after gluten removal, so persistently high antibody levels alongside the celiac genes and clear nutrient deficiencies strongly point to celiac disease, even if you don’t feel symptoms. Many people with celiac are asymptomatic but still develop iron and vitamin deficiencies and silent intestinal damage. The lack of immediate symptoms makes it harder emotionally, but it doesn’t mean gluten isn’t harming you. Most specialists would consider this a case of celiac disease with a false-negative biopsy due to early healing rather than “something else,” and staying consistently gluten-free is what protects you long-term—even when your body doesn’t protest right away.
    • Scott Adams
      Yes, I meant if you had celiac disease but went gluten-free before screening, your results would end up false-negative. As @trents mentioned, this can also happen when a total IGA test isn't done.
    • Seaperky
      I found at Disney springs and Disney they have specialist that when told about dietary restrictions they come and talk to you ,explain cross contamination measures tsken and work with you on choices. Its the one place I dont worry once I've explained I have celiac disease.  Thier gluten free options are awesome.
    • Churley
      Have you tried Pure Encapsulations supplements? This is a brand my doctor recommends for me. I have no issues with this brand.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.