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Healing Process


Debijean

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Debijean Newbie

I started a gluten free diet 9 months ago. Many of my symptoms (joint and muscle pain, headaches) stopped. 2 months ago I was diagnosed with celiac disease, so I cut all all small traces of gluten I was missing before, like medications. I feel I am doing a good job at watching everything I eat so that I am not getting gluten accidentally.

So with that said, I have been healing for a good 2 months but I have been getting a lot of stomach aches and pains. Does anyone else get this? I am wondering if it isn't due to the healing that is happening. Some symptoms I never got rid of are the fatigue and ataxia. Those haven't changed since I went gluten free, but the stomach pain I never had before. The stomach pain is rather regular, pretty much every day. I did get glutened accidentally once and that was a far worse pain, this is just a constant dull ache type of pain.

I would like to know if anyone else seems to get this pain.

Thanks!


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eatmeat4good Enthusiast

A few months after I went gluten free I started getting really dramatic stomach rumbling that was constant every day for a few weeks. I didn't have any other symptoms of glutening so I just stayed the course with the gluten free diet and I imagined it was my "Baby Villi" growing back. I don't know if it was or not...but eventually it went away as I healed.

frieze Community Regular

the neuro issues take the longest to heal, that said, sometimes they don't completely go away. The best that can be done is to stop progression. However, be for you give up on that, i would try CoQ10 supplimentation. Good luck

SarahJimMarcy Apprentice

Could it be lactose intolerance?

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    • lalan45
      You’re not crazy—some people have severe neurological and physical reactions to gluten, not just digestive issues. While testing can be tricky without eating gluten, documenting symptoms and seeing a specialist familiar with atypical celiac or gluten-related disorders can help. Your reactions are real, and it’s valid to be cautious.
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    • trents
      You might consider asking for a referral to a RD (Registered Dietician) to help with food choices and planning a diet. Even apart from any gluten issues, you will likely find there are some foods you need to avoid because of the shorter bowel but you may also find that your system may make adjustments over time and that symptoms may improve.
    • Ello
      I wish Dr’s would have these discussions with their patients. So frustrating but will continue to do research. Absolutely love this website. I will post any updates on my testing and results.  Thank you
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      Losing 12" of your small bowel is going to present challenges for you in nutritional uptake because you are losing a significant amount of nutritional absorption surface area. You will need to focus on consuming foods that are nutritionally dense and also probably look at some good supplements. If indeed you are having issues with gluten you will need to educate yourself as to how gluten is hidden in the food supply. There's more to it than just avoiding the major sources of gluten like bread and pasta. It is hidden in so many things you would never expect to find it in like canned tomato soup and soy sauce just to name a few. It can be in pills and medications.  Also, your "yellow diarrhea, constipation and bloating" though these are classic signs of a gluten disorder, could also be related to the post surgical shorter length of your small bowel causing incomplete processing/digestion of food.
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