Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Wow - gluten-free Really Makes A Difference!


AMom2010

Recommended Posts

AMom2010 Explorer

I have to say I am actually surprised at the results I've seen after being gluten-free for almost 2 weeks. I had a negative celiac panel, but was still convinced gluten was the culprit after reading so many of the topics on this forum and getting feedback from so many smarties on this board.

I started my gluten-free diet, but was eating non gluten-free oatmeal for breakfast (I was very skeptical that CC could be an issue). After 4 days, I began eating rice Chex for breakfast and about 36 hours later the joint pain in both my wrists vanished! I tried to eat oatmeal again after another 4 days and the wrist pain returned within an hour! I was honestly shocked. A couple of days after the latest oatmeal meal, I broke out with several pimples on my face (5 in a day) and the itchy armpits returned for a couple of hours.

I'll have to buy some gluten-free oatmeal as it has always been one of my favorite breakfasts (with brown sugar and toasted sliced almonds, yum!)

I am now very hopeful that the ataxia and anxiety will begin to subside as well. I am very encouraged to keep going! A very big, sincere thank you to everyone on this forum for sharing your knowledge with me!!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



gem75 Rookie

That's great news!

I've been gluten-free for almost a month and prior to going gluten-free i had a tooth that was bothering me. Anytime hot of cold would touch it I would have immense pain. I got the tooth filled but still had problems. I just simply couldn't eat food on that side. Well just recently I let cold touch it and it didn't bother me. I'm convinced going gluten-free has done this.

Now to get off zoloft, I'm on my way , and my BP meds:)

wheeleezdryver Community Regular

that's great!!! :)

T.H. Community Regular

COngrats on finding out what's working for you! Wishing you luck on feeling better again!! :D

GFinDC Veteran

There some people with celiac who react to oats like they react to other gluten grains. So it might be a better idea to stay off the oats , even gluten-free oats, for a month or two until you are better in tune with your body gluten free and know the diet better. There are other breakfast cereals you can eat, like BRM mighty tasty gluten-free hot cereal, or hot quinoa or hot rice too. Some people like corn grits for breakfast and there were a couple threads about how to fix/eat them not long ago.

I don't usually eat cereals anymore myself. I eat foods for breakfast that most people would consider dinner. It is not a bad idea to limit your carbs on gluten-free and also make sure you get some protein with every meal. Proteins keep your energy at a more even level than carbs do, and many grains are cc with gluten anyway.

I use to eat oatmeal every day myself but stopped when I found it caused me symptoms. They estimate 10 or more percent of people with celiac react to oats. So they just aren't safe for some people.

anabananakins Explorer

I have to say I am actually surprised at the results I've seen after being gluten-free for almost 2 weeks. I had a negative celiac panel, but was still convinced gluten was the culprit after reading so many of the topics on this forum and getting feedback from so many smarties on this board.

I started my gluten-free diet, but was eating non gluten-free oatmeal for breakfast (I was very skeptical that CC could be an issue). After 4 days, I began eating rice Chex for breakfast and about 36 hours later the joint pain in both my wrists vanished! I tried to eat oatmeal again after another 4 days and the wrist pain returned within an hour! I was honestly shocked. A couple of days after the latest oatmeal meal, I broke out with several pimples on my face (5 in a day) and the itchy armpits returned for a couple of hours.

I'll have to buy some gluten-free oatmeal as it has always been one of my favorite breakfasts (with brown sugar and toasted sliced almonds, yum!)

I am now very hopeful that the ataxia and anxiety will begin to subside as well. I am very encouraged to keep going! A very big, sincere thank you to everyone on this forum for sharing your knowledge with me!!

Yay! It's awesome, isn't it? For what it's worth (your experiences could be totally different but they sound similar so far), I felt great generally pretty fast but the neurological issues took longer to resolve. My ataxia started to seem a lot better from about 6 weeks, it probably took 3 months to be really good. I was unsure about the anxiety as 7 months in it nothing had changed and my doctor said it might be unrelated, but another 6 months has passed since then and I feel so much calmer, so it could be a coincidence or it might have taken that long.

AMom2010 Explorer

Oh no, I hope I don't have to give up oatmeal! Thanks for the tip though.

Ana, I feel so good I don't imagine I will ever go back to eating gluten again. Hopefully like you I will see the neuro symptoms improve at some point. `


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Jenniferxgfx Contributor

Omg you get itchy armpits too???? Mine have bothered me since I was a kid and now I get some relief! Unless cc'd :(

I'm a month into being gluten free after a negative biopsy and feel like a new person. screw the tests. :/

I glutened myself with oatmeal too, but it was Aveeno lotion. I though I'd be ok too. Live and learn I guess.

Yay you!

AMom2010 Explorer

Yes, Jennifer, isn't gluten intolerance glamorous?

Jenniferxgfx Contributor

I feel like a rock star ;)

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,006
    • Most Online (within 30 mins)
      7,748

    mlaabs
    Newest Member
    mlaabs
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Wheatwacked
      Welcome @JoJo0611. That is a valid question.  Unfortunately the short answer is slim to none.  Be proactive, when the diagnosis process is completed, start GFD.  Remember also that the western diet is deficient in many nutrients that governments require fortification.  Read the side of a breakfast cereal box. Anti-tTG antibodies has superseded older serological tests It has a strong sensitivity (99%) and specificity (>90%) for identifying celiac disease. A list of symptoms linked to Celiac is below.  No one seems to be tracking it, but I suspect that those with elevated ttg, but not diagnosed with Celiac Disease, are diagnosed with celiac disease many years later or just die, misdiagnosed.  Wheat has a very significant role in our economy and society.  And it is addictive.  Anti-tTG antibodies can be elevated without gluten intake in cases of other autoimmune diseases, certain infections, and inflammatory conditions like inflammatory bowel disease. Transient increases have been observed during infections such as Epstein-Barr virus.Some autoimmune disorders including hepatitis and biliary cirrhosis, gall bladder disease. Then, at 65 they are told you have Ciliac Disease. Milk protein has been connected to elevated levels.   Except for Ireland and New Zealand where almost all dairy cows are grass fed, commercial diaries feed cows TMR Total Mixed Rations which include hay, silage, grains and concentrate, protein supplements, vitamins and minerals, byproducts and feed additives. Up to 80% of their diet is food that cannot be eaten by humans. Byproducts of cotton seeds, citrus pulp, brewer’s grains (wheat and barley, rye, malt, candy waste, bakery waste. The wheat, barley and rye become molecules in the milk protein and can trigger tTg Iga in persons suseptible to Celiac. I can drink Grass fed milk, it tastes better, like the milk the milkman delivered in the 50's.  If I drink commercial or Organic milk at bedtime I wake with indigestion.    
    • captaincrab55
      Can you please share your research about MMA acrylic containing gluten?   I comin up blank about it containing gluten.  Thanks in Advance,  Tom
    • Aretaeus Cappadocia
      I strongly recommend 2 dedicated gluten free (gluten-free) restaurants in my area (East Bay of San Francisco Bay Area) (2025) -- Life is Sweet Bakery and Café in Danville. I've been a few times with friends and tried multiple entrees and salads. All very good and worth having again. I've also tried a number of their bakery goods. All extremely good (not just "good for gluten-free"). https://lifeissweetbakeryandcafe.com/ -- Kitara Kitchen in Albany (they have additional locations). I've been once and had the "Buritto Bowl". Six individual items plus a sauce. Outstanding. Not just "for gluten-free", but outstanding in its own right. Vibrant flavors, great textures. I can't wait to go back. https://www.kitava.com/location/kitava-albany/  
    • Martha Mitchell
      I'm 67 and have been celiac for 17yrs. I had cataract surgery and they put a gluten lens in my eye. Through a lot of research, I found out about MMA acrylic...it contains gluten. It took 6 months for me to find a DR that would remove it and replace it with a gluten-free lens . I have lost some vision in that eye because of it . I also go to a prosthodontist instead of a regular dentist because they are specialized. He has made me a night guard and a few retainers with no issues... where my regular dentist didn't care. I have really bad reactions to gluten and I'm extremely sensitive, even to CC. I have done so much research on gluten-free issues because of these Drs that just don't care. Gluten is in almost everything shampoo, lotion, food, spices, acrylic, medication even communion wafers! All of my Drs know and believe me I remind them often.... welcome to my world!
    • trents
      If this applies geographically, in the U.K., physicians will often declare a diagnosis of celiac disease based on the TTG-IGA antibody blood test alone if the score is 10x normal or greater, which your score is. There is very little chance the endoscopy/biopsy will contradict the antibody blood test. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.