Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Glutened And I Don't Know From What!


glutenfreeinminnesota

Recommended Posts

glutenfreeinminnesota Contributor

Glutened and had a blood clot in my D, anyone else ever have this??? Here's my long story...Yesterday...for breakfast I ate my Chex Honey Nut cereal with 1% milk (I have no dairy issues), lunch I made a Jiff PB & J (Grape Smuckers) on my homemade Bob's Red Mill gluten-free bread, and a bowl of Annie's gluten-free Mac n cheese for dinner. How much more Gluten free could I possibly BE?!?! I have eaten every one of these and have never had a problem. Here's my issue, I usually feel signs of glutenings under 4 hours of consumption...It hit me at 11pm right after a night out with friends, and hadn't eaten since 6pm (5 hours???)! I drank two cups of Sierra Mist at the horse track, and don't know what happened? Maybe a stray bread crumb being it was $1 hot dog night? I was 30 minutes from home with my boyfriend (bless his heart) and had to stop twice at gas stations....I was in such pain, sweating and generally just freaking out about it. I FINALLY get home and went again, to find what looked like a dark red clot of blood mixed with my....you know what. I hadn't paid attention to the previous unexpected bowel movements, so I don't know if there was blood there? I took two Imodium and went to bed....now I haven't gone all day of course!! I guess I will have to pay attention to it when I am finally able to go. Really, this was to complain about a frustrating unknown glutening, and to ask if anyone else has had blood or if I should be worried???


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ravenwoodglass Mentor

So sorry this happened to you. It is scarey to find blood as I too well know. While it is not real common for us to have bleeding with a glutening it can happen. It happens with me every time I get glutened. However if you do see more blood do talk to your doctor about it. If it is 'free flowing' or if you should have bleeding seepage go to your doctor ASAP.

It is possible that you could have picked up a virus or food poisoning so if the D continues do get things checked out. Gluten reactions can be delayed so you could have gotten glutened by something a day or so ago. Also some of us have issues with even gluten free oats and since BRM processes those there is the possibility that oat CC could have gotten you. You could try some more of the bread and see if you get another reaction.

I hope your feeling better soon.

glutenfreeinminnesota Contributor

So sorry this happened to you. It is scarey to find blood as I too well know. While it is not real common for us to have bleeding with a glutening it can happen. It happens with me every time I get glutened. However if you do see more blood do talk to your doctor about it. If it is 'free flowing' or if you should have bleeding seepage go to your doctor ASAP.

It is possible that you could have picked up a virus or food poisoning so if the D continues do get things checked out. Gluten reactions can be delayed so you could have gotten glutened by something a day or so ago. Also some of us have issues with even gluten free oats and since BRM processes those there is the possibility that oat CC could have gotten you. You could try some more of the bread and see if you get another reaction.

I hope your feeling better soon.

Thank you!! I still haven't gone due to the Imodium, haha. Hopefully today so I can see how it all is. Trying the bread this morning....hopefully it's ok! At least it's the weekend and have no where I have to be. Thanks again!! I do feel better today.

ravenwoodglass Mentor

Thank you!! I still haven't gone due to the Imodium, haha. Hopefully today so I can see how it all is. Trying the bread this morning....hopefully it's ok! At least it's the weekend and have no where I have to be. Thanks again!! I do feel better today.

Since you had multiple episodes of D before you took the Immodium your system may have already gotten rid of most of what it needed to. If this happens again and you don't have to go out of the house you might want to just ride it out and let your body clear itself. Perhaps next time you need to take the Immodium you could try one tablet and see if that does the job. You can always take another if the single tab doesn't help. I find 1/2 tab works for me but everyone is different.

If you like sweet potatoes those might help get things regulated again.

glutenfreeinminnesota Contributor

Since you had multiple episodes of D before you took the Immodium your system may have already gotten rid of most of what it needed to. If this happens again and you don't have to go out of the house you might want to just ride it out and let your body clear itself. Perhaps next time you need to take the Immodium you could try one tablet and see if that does the job. You can always take another if the single tab doesn't help. I find 1/2 tab works for me but everyone is different.

If you like sweet potatoes those might help get things regulated again.

Thanks! I usually let it go, but since I had to be in the car for what seemed like hours (only 15-20 minutes) I freaked out and took two, normally if I take any, it's one. I have now finally gone this afternoon and all is good!! No blood....somewhat back to normal and feeling better! Still a bit tired and trying to shake my headache. Thanks for the advice with sweet potatoes...never knew those could help!!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams replied to Jhona's topic in Introduce Yourself / Share Stuff
      35

      Does anyone here also have Afib

    2. - Jacki Espo replied to CDFAMILY's topic in Related Issues & Disorders
      5

      Covid caused reoccurrence of DH without eating gluten

    3. - Mari replied to tiffanygosci's topic in Coping with Celiac Disease
      1

      New Celiac Mama in My 30s

    4. - Mari replied to Jmartes71's topic in Coping with Celiac Disease
      2

      My only proof


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,959
    • Most Online (within 30 mins)
      7,748

    jenny44
    Newest Member
    jenny44
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      If black seed oil is working for his Afib, stick to it, but if not, I can say that ablation therapy is no big deal--my mother was out of the procedure in about 1 hour and went home that evening, and had zero negative effects from the treatment. PS - I would recommend that your husband get an Apple watch to monitor his Afib--there is an app and it will take readings 24/7 and give reports on how much of the time he's in it. Actual data like this should be what should guide his treatment.
    • Jacki Espo
      This happened to me as well. What’s weirder is that within a couple hours of taking paxlovid it subsided. I thought maybe I got glutened but after reading your post not so sure. 
    • Mari
      Hi Tiffany. Thank you for writing your dituation and  circumstancesin such detail and so well writte, too. I particularly noticed what you wrote about brain for and feeling like your brain is swelling and I know from my own experiences that's how it feel and your brain really does swell and you get migraines.    Way back when I was in my 20s I read a book by 2 MD allergist and they described their patient who came in complaining that her brain, inside her cranium, was swelling  and it happened when she smelled a certain chemical she used in her home. She kept coming back and insisting her brain actually swelled in her head. The Drs couldn't explain this problem so they, with her permission, performed an operation where they made a small opening through her cranium, exposed her to the chemical then watched as she brain did swell into the opening. The DRs were amazed but then were able to advise her to avoid chemicals that made her brain swell. I remember that because I occasionally had brain fog then but it was not a serious problem. I also realized that I was becoming more sensitive to chemicals I used in my work in medical laboratories. By my mid forties the brain fog and chemicals forced me to leave my  profession and move to a rural area with little pollution. I did not have migraines. I was told a little later that I had a more porous blood brain barrier than other people. Chemicals in the air would go up into my sinused and leak through the blood brain barrier into my brain. We have 2 arteries  in our neck that carry blood with the nutrients and oxygen into the brain. To remove the fluids and used blood from the brain there are only capillaries and no large veins to carry it away so all those fluids ooze out much more slowly than they came in and since the small capillaries can't take care of extra fluid it results in swelling in the face, especially around the eyes. My blood flow into my brain is different from most other people as I have an arterial ischema, adefectiveartery on one side.   I have to go forward about 20 or more years when I learned that I had glaucoma, an eye problem that causes blindness and more years until I learned I had celiac disease.  The eye Dr described my glaucoma as a very slow loss of vision that I wouldn't  notice until had noticeable loss of sight.  I could have my eye pressure checked regularly or it would be best to have the cataracts removed from both eyes. I kept putting off the surgery then just overnight lost most of the vision in my left eye. I thought at the I had been exposed to some chemical and found out a little later the person who livedbehind me was using some chemicals to build kayaks in a shed behind my house. I did not realize the signifance  of this until I started having appointments with a Dr. in a new building. New buildings give me brain fog, loss of balance and other problems I know about this time I experienced visual disturbances very similar to those experienced by people with migraines. I looked further online and read that people with glaucoma can suffer rapid loss of sight if they have silent migraines (no headache). The remedy for migraines is to identify and avoid the triggers. I already know most of my triggers - aromatic chemicals, some cleaning materials, gasoline and exhaust and mold toxins. I am very careful about using cleaning agents using mostly borax and baking powder. Anything that has any fragrance or smell I avoid. There is one brand of dishwashing detergent that I can use and several brands of  scouring powder. I hope you find some of this helpful and useful. I have not seen any evidence that Celiac Disease is involved with migraines or glaucoma. Please come back if you have questions or if what I wrote doesn't make senseto you. We sometimes haveto learn by experience and finding out why we have some problems. Take care.       The report did not mention migraines. 
    • Mari
      Hi Jmartes71 That is so much like my story! You probably know where Laytonville is and that's where I was living just before my 60th birthday when the new Dr. suggested I could have Celiacs. I didn't go on a gluten challange diet before having the Celiac panel blood test drawn. The results came back as equivical as one antibody level was very high but another, tissue transaminasewas normal. Itdid show I was  allergic to cows milk and I think hot peppers. I immediately went gluten free but did not go in for an endoscopy. I found an online lab online that would do the test to show if I had a main celiac gene (enterolab.com). The report came back that I had inherited a main celiac gene, DQ8, from one parent and a D!6 from the other parent. That combination is knows to sym[tons of celiac worse than just inheriting one main celiac gene. With my version of celiac disease I was mostly constipated but after going gluten-free I would have diarrhea the few times I was glutened either by cross contamination or eating some food containing gluten. I have stayed gluten-free for almost 20 years now and knew within a few days that it was right for me although my recovery has been slow.   When I go to see a  medical provide and tell them I have celiacs they don't believe me. The same when I tell them that I carry a main celiac gene, the DQ8. It is only when I tell them that I get diarrhea after eating gluten that they realize that I might have celiac disease. Then they will order th Vitamin B12 and D3 that I need to monitor as my B12 levels can go down very fast if I'm not taking enough of it. Medical providers haven't been much help in my recovery. They are not well trained in this problem. I really hope this helps ypu. Take care.      
    • knitty kitty
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.