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Digestive Problem?

Googles

By Googles
in Coping with Celiac Disease

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Googles Community Regular
Googles
Posted

So I'm worried that I am/have developed another digestive problem. Six months ago I got glutened (CC) and then had three months of D, nausea, and vomiting. It slowly disappeared over time. Now last week I started getting D again and nausea. I took Imodium because I had to go to class. That stopped me up for two days and then I had normal BMs for three days. Now the D is back. I don't think this is a glutening as I don't have any of the other symptoms that I get with glutening (not even cramping). I have been gluten free for two years. Could I be developing soy intolerance or lactose intolerance after this amount of time? Any advice/ insight is very much appreciated. Everything has been going well so far.

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burdee Enthusiast
burdee
Posted

So I'm worried that I am/have developed another digestive problem. Six months ago I got glutened (CC) and then had three months of D, nausea, and vomiting. It slowly disappeared over time. Now last week I started getting D again and nausea. I took Imodium because I had to go to class. That stopped me up for two days and then I had normal BMs for three days. Now the D is back. I don't think this is a glutening as I don't have any of the other symptoms that I get with glutening (not even cramping). I have been gluten free for two years. Could I be developing soy intolerance or lactose intolerance after this amount of time? Any advice/ insight is very much appreciated. Everything has been going well so far.

If you are abstaining from gluten, you may now notice sensitivities (intolerances) to other foods. You may have had those reactions all along, but your gluten intolerance reaction was more noticeable. You could actually have a casein (dairy protein) allergy, rather than mere lactose (milk sugar) reactions. After I abstained from gluten, I still had reaction symptoms. So I got allergy (ELISA blood) tests, which showed I had 5 more allergies (besides dairy and gluten, which Enterolab diagnosed).

Even after eliminating my allergens, I still had symptoms. So my doc gave me a stool test for bacteria, parasites and candida. Over a 4 year period I treated 8 different gut bugs. Only after I identified and abstained from all my allergies and identified and treated all my gut bugs did my symptoms finally disappear. I read so many posts on this board from people who think they are being 'glutened' even when they conscientiously abstain from gluten. Unfortunately they don't consider (or get tested for) other allergies or gut bugs. If you know you're not consuming gluten, consider getting reliable allergy tests and/or stool tests for gut bugs from a reputable naturopath

Roda Rising Star
Roda
Posted

Another thing to consider is that your "glutened" symptoms may have changed. Mine sure did. For about the first year after I went gluten free if I accidently got glutened I would start off with reflux then be constipated for about 4-5 days. After that I spent the next 8 months of 2010 chasing down other reasons for new symptoms: belching, reflux, pinching sensation in my RUQ, relentless D and steatorrhea. What I discovered during that time was that my gallbladder is slightly underfunctioning and I developed a peptic ulcer. Watched my fat intake and any other food that might aggrivate the ulcer and took zantac for two months and improved healing the ulcer. The D and steatorrhea persisted and doc wanted to put me on steriods and I refused. I did a further elimination of even gluten free items and found out that I was reacting to the gluten free oat contamination in products. With the aid of taking creon for a few months I finally healed. Now if I eat anything gluten free that has oat contamination or I get glutened I get the D and steatorrhea. I have to start taking the creon again to help me through for about 1-2 weeks until I'm back to normal. Of course all of that didn't help the gallbladder and now I think I am having issues from that again as I know I wasn't glutened. My symptoms from that I believe are severe reflux/burping and the pinching sensation in my RUQ and sometimes pain.

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    • trents
      celiac, chocolate and alcohol

      By trents · Posted

      So, you had both and endoscopy with biopsy and a colonoscopy. That helps me understand what you were trying to communicate. No, no! It never occurred to me that you were trying to mislead me. It's just that we get a lot of posters on the forum who are misinformed about what celiac disease is and how it is diagnosed so I need some clarification from you which you were so gracious to give.
    • barb simkin
      celiac, chocolate and alcohol

      By barb simkin · Posted

      I had both the genetic genes for celiac.  My gastroenologist advised he also took a biopsy during one of my colonoscopies and endoscopy and advised I had celiac disease, along with stomach ulcers from my esophagus stomach down to my small bowel. I was shown the ulcers on the catscan and endoscopy report.  I also had polyps in 3 places throughout my large bowel. I was on a strict diet for months following.  I am sorry if I didnt define how I was diagnosed with celiac disease.  I am sorry if you think I was misleading you. I also had to pay $150.00 for the genetic testing.
    • trents
      celiac, chocolate and alcohol

      By trents · Posted

      So, I'm a little confused here. I understand you to say that you have not been officially diagnosed with celiac disease. Is this correct?  You have had genetic testing done to check for the potential for developing celiac disease and that was positive. Is this correct? I think you meant to type "gluten sensitivity" but you typed "gluten insensitivity". Just so we are clear about the terminology, there is celiac disease and there is NCGS (Non Celiac Gluten Sensitivity). They are not the same but they have overlapping symptoms. Celiac disease causes damage to the small bowel lining but NCGS does not. NCGS is often referred to in short form as gluten sensitivity. However, people often use the terms celiac disease and gluten sensitivity interchangeably so it can be unclear which disease they are referring to. Genetic testing cannot be used to diagnose celiac disease but it can be used to establish the potential to develop active celiac disease. About 40% of the general population has one or both of  the genes that have been most strongly connected with the potential to develop active celiac disease but only about 1% of the population actually develops active celiac disease. This makes the genetic test useful for ruling out celiac disease but not for diagnosing it. A colonoscopy cannot be used to diagnose celiac disease because it doesn't permit the scope to go up into the small bowel where celiac disease does the damage. They use an endoscopy ("upper GI) for checking the small bowel lining for celiac damage.
    • barb simkin
      celiac, chocolate and alcohol

      By barb simkin · Posted

      I did nor read the chocolate pkg as it was of fered to me and I ate 2 pcs. I do know that only very dark chocolate and and a very few others are gluten free. Most alcohols contain gluten. I have several yrs of not knowing my celiac condition as docs would not do the test. After looking on the internet about my sufferings I insisted on the gene trsting which showed positive for gluten insensitivity and a biopsy on my next colonoscopy that also showed positive which could not help the damage done to my small bowel. So I very rarely have a glass of wine
    • trents
      celiac, chocolate and alcohol

      By trents · Posted

      @barb simkin, are you sure the chocolate products are gluten-free and not "manufactured on equipment that also handles wheat products and tree nuts", i.e., cross-contamination? And what kind of alcoholic beverages are we talking about? Most beers are made from gluten-containing grains. Just checking.
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