Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Fda Reopens Comment Period On Proposed


kenlove

Recommended Posts

kenlove Rising Star

Open Original Shared Link

is the link that shows you how to leave comments on the US FDA site for:

FDA NEWS RELEASE

For Immediate Release: Aug. 2, 2011Media Inquiries: Siobhan DeLancey, 202-510-4177, Open Original Shared LinkTrade Inquiries: Stephen King, 240-402-1407, Open Original Shared LinkConsumer Inquiries: 888-INFO-FDA FDA reopens comment period on proposed


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Takala Enthusiast

Brigadoon! Groundhog day! We get to do it again!

Well, so glad to see that Senators Leahy and Wyden, plus the others who put on that "awareness" thing in DC, may have had some effect on this FDA logjam !

Ken, can you have a look at this, and tell us if you think this is a typo or not?

It's from Boston.com

Open Original Shared Link

Now, though, the agency is moving forward with a new standard that manufacturers will be required to meet before they can slap on the gluten-free label. Federal officials are proposing that cookies, bread, and other wheat products making this claim can contain no more that 20 parts per million of gluten, a level below which gluten can

GlutenFreeManna Rising Star

I'm still thinking about this issue and trying to decide how to respond/comment. I really hope those are typo's! Would love to read some other's thoughts and comments on this.

kenlove Rising Star

for some reason the Open Original Shared Link link didnt work for me.

that 2mg is something like

.ooo1 of an ounce I think,

Im pretty sensitive and never take chances anyway

kenlove Rising Star

Got it open finally -- thanks for the Link-- not sure what to make of it all -- They seem to have ti down pat in Italy --

here there are too many companies with big $ gumming up the works.

Bubba's Mom Enthusiast

I commented on the ruling and said I want gluten free* with an asterisc if there is up to 20ppm of gluten, with a clarification posted on the label.

We are looking for foods that are free from ANY gluten, which is vital to our health, not low in gluten. If several of those items are consumed daily they add up to trouble!

Once a person is diagnosed they are told to eat NO gluten. We have to rely on good labeling to ensue we are not consuming it.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Rogol72 replied to suek54's topic in Dermatitis Herpetiformis
      9

      Awaiting dermatitis herpetiformis confirmation following biopsy

    2. - suek54 replied to suek54's topic in Dermatitis Herpetiformis
      9

      Awaiting dermatitis herpetiformis confirmation following biopsy

    3. - trents replied to dani nero's topic in Dermatitis Herpetiformis
      191

      DH Photo Bank

    4. - KeriRae replied to dani nero's topic in Dermatitis Herpetiformis
      191

      DH Photo Bank

    5. - Aretaeus Cappadocia commented on Scott Adams's blog entry in Gluten Busters: Gluten-Free Product Alerts by Celiac.com
      7

      Simple Mills and Made Good Foods Products May Contain Gluten Levels Above the FDA's Allowable Limit of 20 ppm

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,718
    • Most Online (within 30 mins)
      7,748

    Roma Lynn
    Newest Member
    Roma Lynn
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Rogol72
      Hey @suek54, I also have Dermatitis Herpetiformis. I used to be on Dapsone but have managed to wean myself off it after many attempts. It's quiet a toxic drug, as it affects the bone marrow and red blood cells. It also artificially reduces Hemoglobin A1C. Mine was at 21 at one stage, I think normal is around 37. With dermatitis herpetiformis, you need to be really strict. It wasn't until I focused on getting the trace minerals the body needs that I managed to get off it. I believe getting the thyroid numbers in the optimal range also helped with Iodine and Selenium. Iodine doesn't bother me for some reason, but flares others as knitty kitty said. I take Viridian Trace Mineral complex and it's made a huge difference, among other vitamins and minerals. Now I can tolerate gluten free oats which I could never eat before. Though I only have them very occasionally in the form of gluten free soda bread . One thing I miss is my Mums Irish soda bread. Hope this helps.
    • suek54
      Hi all Biopsy confirmed dermatitis herpetiformis. Strict gluten free diet going OK, I cook nearly everything from scratch anyway and am finding gluten free  adaptations for most recipes.  I seem to be tolerating 50mg Dapsone well, regular blood tests OK so far.  Next derma appt in 8 weeks. I have some continuing itching and rash outbreaks, though nowhere near as severe as they were, so I am hoping for an increased dose, as the effect only seems to last 6-7 hours.  I think I may be burning through it more quickly than some due to other medication. Also I cannot mount a response to inflammation due to Addison's Disease.  I hope others are finding their way though the minefield that is dermatitis herpetiformis. Hang on in there! Sue (in UK)
    • trents
      @KeriRae, have you been diagnosed with celiac disease or with dermatitis herpetiformis?
    • KeriRae
      I've had this same rash on my back on and off for the last year or two.  I was taking LDN to help with other issues but quit awhile back. I'm wondering if LDN would help with this rash. 
    • Russ H
      Shingles vaccination also provides some protection against dementia: https://www.nihr.ac.uk/news/major-study-finds-new-shingles-vaccine-could-lower-risk-dementia
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.