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Mouth Sores

jcmi10236

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jcmi10236 Newbie
jcmi10236
Posted

Can you get mouth sores from eating the gluten? I have had many neg tests(frustrating) but find getting rid of gluten has really helped my tummy pain. I ate gluten yesterday and by the end of the day had mouth sores. I have had them many times but never connected the two. Just did not know why I got them. Tired and frustrated and looking for help! Doctors can only help so much. Realizing their not Gods.

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lovegrov Collaborator
lovegrov
Posted

Yes, you can. That was one of my symptoms that went away completely when I went gluten-free.

richard

Bubba's Mom Enthusiast
Bubba's Mom
Posted

I also got mouth sores from time to time before going gluten-free. After an accidental cc glutening I got 2 within a couple of hours! :blink:

krystynycole Contributor
krystynycole
Posted

Definitely! It was one of the wonderful surprises that went away from going gluten-free!

ElseB Contributor
ElseB
Posted

Absolutely. I used to get horrible canker sores that caused my whole mouth and glands to swell. My sister had them to, and in her case, it was an early warning sign of Crohn's Disease.

eatmeat4good Enthusiast
eatmeat4good
Posted

Called aphthous ulcers...one of the many symptoms of Celiac disease. My son used to get them off and on as a child...no known cause and no treatment necessary according to the Dr. :blink: They would just go away on their own. Then come back. Until we went gluten free...then they never came back again.

We never made a connection until several months gluten free and we realized he hadn't gotten any mouth sores since dropping wheat/gluten. Amazing relief.

beebs Enthusiast
beebs
Posted

I used to get them all the time, in my nose too - sooo painful!

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jcmi10236 Newbie
jcmi10236
Posted
  • Author

I get them on my tongue, inside mouth and lips! Normally dont last long. 1st couple times they gave me this mouthwash but now I just wait and it goes away. I have tested negative for celiacs but have went gluten free before the testing. My tummy and back pain so much better but so hard to watch. Especially using pans, utencils etc cross contamination. I have not gone that far yet! So much stress watching everything that enters the mouth. I also have IC wich limits diet!

lcarter Contributor
lcarter
Posted

Yes, I had mouth ulcers, too, as a symptom of vitamin deficiencies. But the sores got much less numerous and frequent after adding Bronson's Super B's along with the Therapeutic Formula of vitamins and minerals...and then, totally went away after we discovered the celiac disease -- except, of course, if/when I get accidently glutened.

It is essential that we Celiacs take added vitamins and minerals to offset any nutritional deficiencies either because of malabsorption or because of a compromised diet. So, adding a Super B vitamin to you regime could be very helpful. It's nice to know that B vitamins are water soluble and so are not toxic in large amounts - in excess they just wash through your system.

By the way, Bronson vitamin and minerals are sold in many USA medical schools. I buy them over the internet at: Open Original Shared Link But, I am sure there are lots of other equally good companies out there.

This particular company was recommended to me when I was a research subject for many years with the Clayton Foundation Nutritional Research Project at the U of TX, Austin. Unfortunately, the foundation has lost it's funding and are no longer operating. But, they were a fabulous help to me all those years when the medical community was ignorant about celiac disease. In fact, they are the ones who told me I was very vitamin deficient and also discovered the fructose intolerance.

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    • Mari
      My only proof

      By Mari · Posted

      Years  ago a friend and I drove north into Canada hoping to find a ski resort open in late spring,We were in my VW and found a small ski area near a small town and started up this gravelled road up a mountain. We  got about halfway up and got stuck in the mud. We tried everything we could think of but an hour later we were still stuck. Finally a pickup came down the road, laughed at our situation, then pulled the VW free of the mud. We followed him back to the ski area where where he started up the rope ski lift and we had an enjoyable hour of skiing and gave us a shot of aquavit  before we left.It was a great rescue.  In some ways this reminds me of your situation. You are waiting for a rescue and you have chosen medical practitioners to do it now or as soon as possible. As you have found out the med. experts have not learned how to help you. You face years of continuing to feel horrible, frustrated searching for your rescuer to save you. You can break away from from this pattern of thinking and you have begun breaking  away by using some herbs and supplements from doTerra. Now you can start trying some of the suggestions thatother Celiacs have written to your original posts.  You live with other people who eat gluten foods. Cross contamination is very possible. Are you sure that their food is completely separate from their food. It  is not only the gluten grains you need to avoid (wheat, barley, rye) but possibly oats, cows milk also. Whenever you fall back into that angry and frustrated way of thinking get up and walk around for a whild. You will learn ways to break that way of thinking about your problems.  Best wishes for your future. May you enjpy a better life.  
    • marion wheaton
      Are Lindt chocolate balls gluten free?

      By marion wheaton · Posted

      Thanks for responding. I researched further and Lindt Lindor chocolate balls do contain barely malt powder which contains gluten. I was surprised at all of the conflicting information I found when I checked online.
    • trents
      Are Lindt chocolate balls gluten free?

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    • BlessedinBoston
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      By BlessedinBoston · Posted

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    • knitty kitty
      My only proof

      By knitty kitty · Posted

      @Jmartes71, I understand your frustration and anger.  I've been in a similar situation where no doctor took me seriously, accused me of making things up, and eventually sent me home to suffer alone.   My doctors did not recognize nutritional deficiencies.  Doctors are trained in medical learning institutions that are funded by pharmaceutical companies.  They are taught which medications cover up which symptoms.  Doctors are required to take twenty  hours of nutritional education in seven years of medical training.  (They can earn nine hours in Nutrition by taking a three day weekend seminar.)  They are taught nutritional deficiencies are passe' and don't happen in our well fed Western society any more.  In Celiac Disease, the autoimmune response and inflammation affects the absorption of ALL the essential vitamins and minerals.  Correcting nutritional deficiencies caused by malabsorption is essential!  I begged my doctor to check my Vitamin D level, which he did only after making sure my insurance would cover it.  When my Vitamin D came back extremely low, my doctor was very surprised, but refused to test for further nutritional deficiencies because he "couldn't make money prescribing vitamins.". I believe it was beyond his knowledge, so he blamed me for making stuff up, and stormed out of the exam room.  I had studied Nutrition before earning a degree in Microbiology.  I switched because I was curious what vitamins from our food were doing in our bodies.  Vitamins are substances that our bodies cannot manufacture, so we must ingest them every day.  Without them, our bodies cannot manufacture life sustaining enzymes and we sicken and die.   At home alone, I could feel myself dying.  It's an unnerving feeling, to say the least, and, so, with nothing left to lose, I relied in my education in nutrition.  My symptoms of Thiamine deficiency were the worst, so I began taking high dose Thiamine.  I had health improvement within an hour.  It was magical.  I continued taking high dose thiamine with a B Complex, magnesium. and other essential nutrients.  The health improvements continued for months.  High doses of thiamine are required to correct a thiamine deficiency because thiamine affects every cell and mitochondria in our bodies.    A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function.  The cerebellum of the brain is most affected.  The cerebellum controls things we don't have to consciously have to think about, like digestion, balance, breathing, blood pressure, heart rate, hormone regulation, and many more.  Thiamine is absorbed from the digestive tract and sent to the most important organs like the brain and the heart.  This leaves the digestive tract depleted of Thiamine and symptoms of Gastrointestinal Beriberi, a thiamine deficiency localized in the digestive system, begin to appear.  Symptoms of Gastrointestinal Beriberi include anxiety, depression, chronic fatigue, headaches, Gerd, acid reflux, gas, slow stomach emptying, gastroparesis, bloating, diarrhea and/or constipation, incontinence, abdominal pain, IBS,  SIBO, POTS, high blood pressure, heart rate changes like tachycardia, difficulty swallowing, Barrett's Esophagus, peripheral neuropathy, and more. Doctors are only taught about thiamine deficiency in alcoholism and look for the classic triad of symptoms (changes in gait, mental function, and nystagmus) but fail to realize that gastrointestinal symptoms can precede these symptoms by months.  All three classic triad of symptoms only appear in fifteen percent of patients, with most patients being diagnosed with thiamine deficiency post mortem.  I had all three but swore I didn't drink, so I was dismissed as "crazy" and sent home to die basically.   Yes, I understand how frustrating no answers from doctors can be.  I took OTC Thiamine Hydrochloride, and later thiamine in the forms TTFD (tetrahydrofurfuryl disulfide) and Benfotiamine to correct my thiamine deficiency.  I also took magnesium, needed by thiamine to make those life sustaining enzymes.  Thiamine interacts with each of the other B vitamins, so the other B vitamins must be supplemented as well.  Thiamine is safe and nontoxic even in high doses.   A doctor can administer high dose thiamine by IV along with the other B vitamins.  Again, Thiamine is safe and nontoxic even in high doses.  Thiamine should be given if only to rule Gastrointestinal Beriberi out as a cause of your symptoms.  If no improvement, no harm is done. Share the following link with your doctors.  Section Three is especially informative.  They need to be expand their knowledge about Thiamine and nutrition in Celiac Disease.  Ask for an Erythrocyte Transketolace Activity test for thiamine deficiency.  This test is more reliable than a blood test. Thiamine, gastrointestinal beriberi and acetylcholine signaling.  https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Best wishes!
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