Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

After So Long...


josh052980

Recommended Posts

josh052980 Enthusiast

I've been gluten free now for 4-months, with only minor hiccups. Friday evening I got some gluten in me, though I have no idea where from. I'm guessing cross-contamination. I felt bad for about 4 hours yesterday, then rebounded, and like a fool ate some spicy food last night at dinner (previously spice hadn't bothered me, so I didn't think I'd react adversely). Boy was I wrong. Overnight my guts felt like they were on fire, I've been on and off nauseous all day today and I just had my first run-in with the Big D since going gluten free. I feel like all my progress over the past months has been for naught, just off of one meal.

My guess is that I've got an issue with nightshades, or at least I do in the aftermath of being glutened. It's so disheartening though... I was doing so well for so long, and now I feel like I did before I went gluten free... I'm not really looking for advice here, just kind of venting. For as hard as my family tries, I don't think they really understand what I go through when this kind of thing happens.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cyberprof Enthusiast

I've been gluten free now for 4-months, with only minor hiccups. Friday evening I got some gluten in me, though I have no idea where from. I'm guessing cross-contamination. I felt bad for about 4 hours yesterday, then rebounded, and like a fool ate some spicy food last night at dinner (previously spice hadn't bothered me, so I didn't think I'd react adversely). Boy was I wrong. Overnight my guts felt like they were on fire, I've been on and off nauseous all day today and I just had my first run-in with the Big D since going gluten free. I feel like all my progress over the past months has been for naught, just off of one meal.

My guess is that I've got an issue with nightshades, or at least I do in the aftermath of being glutened. It's so disheartening though... I was doing so well for so long, and now I feel like I did before I went gluten free... I'm not really looking for advice here, just kind of venting. For as hard as my family tries, I don't think they really understand what I go through when this kind of thing happens.

Don't worry. One episode like this isn't going to set back your progress, although I know it is uncomfortable. After a few days, you should be back on track. And perhaps it's useful for your family to see you going through that so that they understand better.

Usually, after I've been glutened through an accident or cross-contamination, I eat bland things, cause that's what my body craves. White rice, rice noodles, mashed or baked potatoes, chicken/rice soup - that sort of thing. Lots of veggies and spices and meat are on my no-no list after gluten.

Hope you feel better soon.

rosetapper23 Explorer

Something that I've learned through experience is that being glutened either by spicy food or food with peppers (sometimes the peppers themselves are canned ones containing gluten) can be calamitous. This has happened three times during the past seven years, and each time I became extremely ill. In my case, a lot of damage was done to my intestinal lining each time....but this may not occur with you. From your photo, I can see that you're much younger than I am; therefore, I have many more years of damage to contend with.

When it comes to eating spicy food or food containing peppers, if there's ANY chance of cross-contamination or not knowing the source of the peppers, simply walk away from the meal. It's better than living a hellish existence for 2-3 days with possible long-term complications. Be especially careful of paprika, which was responsible twice for my suffering (some brands are fine, but others aren't). At potlucks, people bring what appears to be innocuous potato salad, but they oftentimes mix in paprika....and then I'm in big trouble. So....walk away.

ravenwoodglass Mentor

You said you felt bad for about 4 hrs then a bit better. I could be wrong but I think you would have had D even without the spicey meal. The spicey heat of the meal may have made things worse though.

I hope you feel better soon. If your still having stomach pain some pepto bismal liquid may help a bit.

josh052980 Enthusiast

Something that I've learned through experience is that being glutened either by spicy food or food with peppers (sometimes the peppers themselves are canned ones containing gluten) can be calamitous. This has happened three times during the past seven years, and each time I became extremely ill. In my case, a lot of damage was done to my intestinal lining each time....but this may not occur with you. From your photo, I can see that you're much younger than I am; therefore, I have many more years of damage to contend with.

When it comes to eating spicy food or food containing peppers, if there's ANY chance of cross-contamination or not knowing the source of the peppers, simply walk away from the meal. It's better than living a hellish existence for 2-3 days with possible long-term complications. Be especially careful of paprika, which was responsible twice for my suffering (some brands are fine, but others aren't). At potlucks, people bring what appears to be innocuous potato salad, but they oftentimes mix in paprika....and then I'm in big trouble. So....walk away.

I didn't get glutened from the spicy food, I got glutened, felt sick, got better enough to function and then ate spicy food.

rosetapper23 Explorer

Yes, I realize that....but when you ADD spicy food on top of being glutened, the response can be much, much worse. I'm sorry if I didn't make that clear. The bad response can be from spicy food with gluten in it or eating gluten and then spicy food that doesn't have gluten in it. It seems to be the combination that makes the outcome so much worse.

Jenniferxgfx Contributor

After I get cc'd, I have to eat bland easy food for the next few meals at least because things are SO over sensitive.

I hope you feel better soon!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



PainfulSpaghetti Newbie

I am so sorry. It is difficult on the best days. It's very hard to find foods that aren't laden with sneaky additives, or coated in wheat flour as even nuts are that they give you to sprinkle on your salads. Sneaky, sneaky gluten!

josh052980 Enthusiast

This may be totally unrelated to how I felt, but maybe some of you folks have had the same experience. Last week, I was off my multi-vitamins (I kept forgetting to run out and by more after I ran out), so when I got glutened, I was without vitamin supplements for 5 days straight, then I ate the spicy food the next day (Saturday), still with no vitamin supplement. Yesterday, I was still feeling pretty crappy, but well enough to basically function, so I went out and bought my vitamins, and took one. Within 2 hours I was feeling DRAMATICALLY better.

Do vitamins have anything to do with this, that anyone knows of?

cyberprof Enthusiast

This may be totally unrelated to how I felt, but maybe some of you folks have had the same experience. Last week, I was off my multi-vitamins (I kept forgetting to run out and by more after I ran out), so when I got glutened, I was without vitamin supplements for 5 days straight, then I ate the spicy food the next day (Saturday), still with no vitamin supplement. Yesterday, I was still feeling pretty crappy, but well enough to basically function, so I went out and bought my vitamins, and took one. Within 2 hours I was feeling DRAMATICALLY better.

Do vitamins have anything to do with this, that anyone knows of?

It may just be a coincidence. However, if you're sick and everything is going right through you, you may be low on potassium and magnesium, just to name two. Taking the vitamins might have an immediate effect in that situation. I know that I feel better when I take magnesium supplements regularly, and the B vit sublingual is imperative if I want to have energy.

Glad you're feeling better.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,004
    • Most Online (within 30 mins)
      7,748

    Daffodil
    Newest Member
    Daffodil
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Wheatwacked
      Welcome @JoJo0611. That is a valid question.  Unfortunately the short answer is slim to none.  Be proactive, when the diagnosis process is completed, start GFD.  Remember also that the western diet is deficient in many nutrients that governments require fortification.  Read the side of a breakfast cereal box. Anti-tTG antibodies has superseded older serological tests It has a strong sensitivity (99%) and specificity (>90%) for identifying celiac disease. A list of symptoms linked to Celiac is below.  No one seems to be tracking it, but I suspect that those with elevated ttg, but not diagnosed with Celiac Disease, are diagnosed with celiac disease many years later or just die, misdiagnosed.  Wheat has a very significant role in our economy and society.  And it is addictive.  Anti-tTG antibodies can be elevated without gluten intake in cases of other autoimmune diseases, certain infections, and inflammatory conditions like inflammatory bowel disease. Transient increases have been observed during infections such as Epstein-Barr virus.Some autoimmune disorders including hepatitis and biliary cirrhosis, gall bladder disease. Then, at 65 they are told you have Ciliac Disease. Milk protein has been connected to elevated levels.   Except for Ireland and New Zealand where almost all dairy cows are grass fed, commercial diaries feed cows TMR Total Mixed Rations which include hay, silage, grains and concentrate, protein supplements, vitamins and minerals, byproducts and feed additives. Up to 80% of their diet is food that cannot be eaten by humans. Byproducts of cotton seeds, citrus pulp, brewer’s grains (wheat and barley, rye, malt, candy waste, bakery waste. The wheat, barley and rye become molecules in the milk protein and can trigger tTg Iga in persons suseptible to Celiac. I can drink Grass fed milk, it tastes better, like the milk the milkman delivered in the 50's.  If I drink commercial or Organic milk at bedtime I wake with indigestion.    
    • captaincrab55
      Can you please share your research about MMA acrylic containing gluten?   I comin up blank about it containing gluten.  Thanks in Advance,  Tom
    • Aretaeus Cappadocia
      I strongly recommend 2 dedicated gluten free (gluten-free) restaurants in my area (East Bay of San Francisco Bay Area) (2025) -- Life is Sweet Bakery and Café in Danville. I've been a few times with friends and tried multiple entrees and salads. All very good and worth having again. I've also tried a number of their bakery goods. All extremely good (not just "good for gluten-free"). https://lifeissweetbakeryandcafe.com/ -- Kitara Kitchen in Albany (they have additional locations). I've been once and had the "Buritto Bowl". Six individual items plus a sauce. Outstanding. Not just "for gluten-free", but outstanding in its own right. Vibrant flavors, great textures. I can't wait to go back. https://www.kitava.com/location/kitava-albany/  
    • Martha Mitchell
      I'm 67 and have been celiac for 17yrs. I had cataract surgery and they put a gluten lens in my eye. Through a lot of research, I found out about MMA acrylic...it contains gluten. It took 6 months for me to find a DR that would remove it and replace it with a gluten-free lens . I have lost some vision in that eye because of it . I also go to a prosthodontist instead of a regular dentist because they are specialized. He has made me a night guard and a few retainers with no issues... where my regular dentist didn't care. I have really bad reactions to gluten and I'm extremely sensitive, even to CC. I have done so much research on gluten-free issues because of these Drs that just don't care. Gluten is in almost everything shampoo, lotion, food, spices, acrylic, medication even communion wafers! All of my Drs know and believe me I remind them often.... welcome to my world!
    • trents
      If this applies geographically, in the U.K., physicians will often declare a diagnosis of celiac disease based on the TTG-IGA antibody blood test alone if the score is 10x normal or greater, which your score is. There is very little chance the endoscopy/biopsy will contradict the antibody blood test. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.