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Recent Activity
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- Aretaeus Cappadocia replied to Olenaideole's topic in Gluten-Free Foods, Products, Shopping & Medications17What apps or tech tools help you manage celiac disease?
"lots of celiacs ... already find it very difficult to afford specifically gluten free products. We here this all the time on this online community. If prices go up more because of increasing regulation, many will not be able to afford it any longer." --> Maybe that itself is a great comment to submit. If you could flesh it out with numbers, facts... -
- Scott Adams replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications24Desperately need a vitamin D supplement. I've reacted to most brands I've tried.
Vit K2 (MK7) also helps prevent calcium buildup (arterial sclerosis) in arteries. I added it last year to my daily vitamin intake. NOTE: Vitamin K: Excess vitamin K from supplements can interfere with blood thinning medications and cause issues in some individuals. -
- Aretaeus Cappadocia replied to xxnonamexx's topic in Gluten-Free Foods, Products, Shopping & Medications9
FDA looking for input on Celiac Gluten sensitivity labeling PLEASE READ and submit your suggestions
I am working on a response to this FDA request for comments on gluten. Part of it will be my suggestions, like yours, but a big part of it will be my collected stories of navigating products with ambiguous gluten disclosures, like your Lubriderm story. I plan to name the brands not to shame them but to give the regulators clear facts they can check and evaluate... -
- knitty kitty replied to Jmartes71's topic in Related Issues & Disorders3Keytones
@Jmartes71, Talk to your doctor and dietician about checking for nutritional deficiencies and supplementing with essential vitamins, minerals and Omega threes. Vitamins like Niacin B3, Thiamine B 1, Vitamin C, Vitamin D and Omega three fats are important to maintaining the protective layer of skin. Try incorporating Tallow balm (I use Ancient... -
- Aretaeus Cappadocia replied to Known1's topic in Introduce Yourself / Share Stuff7
Diagnosed Marsh stage 3C in January 2026
You may want to consider getting a food dehydrator for your motorcycle touring. I evaluated getting one but decided against it because my personal business case didn't justify the costs (I occasionally travel by car and food bulk is not as much of an issue). However, if I wanted to travel by motorcycle as often as you I probably would have gotten one.
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Posts
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By Aretaeus Cappadocia · Posted
"lots of celiacs ... already find it very difficult to afford specifically gluten free products. We here this all the time on this online community. If prices go up more because of increasing regulation, many will not be able to afford it any longer." --> Maybe that itself is a great comment to submit. If you could flesh it out with numbers, facts about this website, etc. Affordability is a real issue and one component of getting a celiac diagnosis is to have a surcharge levied on your food bill. (I am not arguing against changing/improving the regulations - I am suggesting that people should share the challenges they face in avoiding gluten.) One possible way to bridge the gap of increased benefit causing increased cost might be for the Government to provide incentives like tax deductions for these efforts. Of course, the FDA can't regulate tax law but they can speak up and advise other parts of the government. -
By Scott Adams · Posted
Vit K2 (MK7) also helps prevent calcium buildup (arterial sclerosis) in arteries. I added it last year to my daily vitamin intake. NOTE: Vitamin K: Excess vitamin K from supplements can interfere with blood thinning medications and cause issues in some individuals. -
By Aretaeus Cappadocia · Posted
I am working on a response to this FDA request for comments on gluten. Part of it will be my suggestions, like yours, but a big part of it will be my collected stories of navigating products with ambiguous gluten disclosures, like your Lubriderm story. I plan to name the brands not to shame them but to give the regulators clear facts they can check and evaluate. -
By knitty kitty · Posted
@Jmartes71, Talk to your doctor and dietician about checking for nutritional deficiencies and supplementing with essential vitamins, minerals and Omega threes. Vitamins like Niacin B3, Thiamine B 1, Vitamin C, Vitamin D and Omega three fats are important to maintaining the protective layer of skin. Try incorporating Tallow balm (I use Ancient Traditions Tallow Balm) to help nourish your skin's need for fats. Thiamine supplementation helps control SIBO bacteria and other bacterial or viral infections. Taking a combination of Thiamine B 1 with Cobalamine B 12 and Pyridoxine B6 helps alleviate pain. These vitamins together work as well as over the counter pain relievers. Taken with pain relievers, the analgesic effects are increased. I'm concerned about the ketones. Our bodies burn stored fat when we're stressed and when we're low in thiamine. Do talk to your doctor about whether you can start taking Thiamine and B vitamins again soon. Thiamine deficiency can be life threatening. A state of confusion is also indicative of a Thiamine deficiency. Tannins in black and green teas break down Thiamine making it unavailable to the body. Avoid drinking large amounts of teas with tannins. Try herbal teas like chamomile, peppermint or ginger teas instead. I like drinking mineral water. I hope you feel better soon. Keep us posted on your progress! -
By Aretaeus Cappadocia · Posted
You may want to consider getting a food dehydrator for your motorcycle touring. I evaluated getting one but decided against it because my personal business case didn't justify the costs (I occasionally travel by car and food bulk is not as much of an issue). However, if I wanted to travel by motorcycle as often as you I probably would have gotten one.
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