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Peripheral Neuropathy

Hungrylady

By Hungrylady
in Coping with Celiac Disease

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Hungrylady Rookie
Hungrylady
Posted

As part of this disease I have peripheral neuropathy. I wear braces and edema gloves to bed every single night since I got pregnant (5 1/2 years ago). I can't talk on the phone or use the mouse very long, etc....horrible pain and nerve shots, falls asleep, it's a mess. I am showing a tiny bit of improvement already so I am excited. I was looking up things I might be able to do to improve things more and came across using a tens unit. My hubby has one in the basement he used for his back a million years ago. So it is actually something I can try. Before I do I was wondering if anyone else has used it and did it improve your hands and if so how?

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ravenwoodglass Mentor
ravenwoodglass
Posted

Before you try this can you get a consult with a PT? They could advise you on whether it might be something that would help and make sure you know how and how long to use it.

Something else that may help is sublingual B12. I don't know if you have had the levels checked but often blood levels read higher than they really are. B12 is not a vitamin you can 'OD' on so if you are not taking it try some. Don't be scared off by the high amount but do make sure they are gluten free and the sublingual not the swallowed pills.

Glad to hear the diet is helping but it can take awhile when the nervous system is involved. I used to have to brace both legs at night myself and know how uncomfortable that can be. I had to do it because I would dislocate though. Once my edema went away I stopped dislocating as much so hopefully once you heal more things will improve for you also.

Hungrylady Rookie
Hungrylady
Posted
  • Author

wow, ouch. Glad it's better for you! Yes, I take DEVA B12 with folic acid&b6, sublingual, under tounge. I didn't think to ask my PT, havent seen her since she came up with the edema gloves under the braces. I can't wait to burn those braces, lol.

Takala Enthusiast
Takala
Posted

Used one for c spine injury - honestly the most useless, ridiculous thing, one is trying to get rid of the sensation of the nerves being impinged, so this 10s unit thing instead shoots you with the same sensation so it's even more annoying. Stick to the diet, supplements, try to keep busy so you don't think about the constant buzz, and it should eventually go away. Gentle yoga helps (no straining stuff) and meditation.

shadowicewolf Proficient
shadowicewolf
Posted

Have you tried water theraphy? I've heard that helps with nerve issues.

Hungrylady Rookie
Hungrylady
Posted
  • Author

Have you tried water theraphy? I've heard that helps with nerve issues.

No, but i'll look into water therapy, sounds nice. I am planning to swim to help regain strength when my son starts school in two weeks (thank goodness).

I guess the tens until would give me more of the same feelings. It doesn't actually heal the nerves huh? Somehow that's what I got in my head, lol.

Takala Enthusiast
Takala
Posted

No, it doesn't heal anything, it's the electrical equivalent of "white noise" which the theory is that by playing that, one does not hear the more annoying noises and it acts as a jamming/blocking device. If you want to heal, stick to the diet and take vitamins and exercise so your body can metabolize and use the nutrients properly.

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