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12 Weeks Pregnant And Cc'd


Melstar23

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Melstar23 Apprentice

I'm really worried that I've done something to hurt my baby. Last night I really wanted pizza, so I bought a gluten free pizza from this place that I've eaten at lots of times before. I've never had any problems when I've had their pizza before so I wasn't worried when I ate it, but an hour later I've had my classic glutened symptoms. I went from being extremely constipated from my pregnancy, to having the worst diarrhea all last night and this morning. I've been drinking lots of water so I'm not getting dehydrated from it. I'm having my 12week ultrasound tomorrow, so at least I will be able to see if the baby's ok.

My celiacs test came back negative (even though from what I've read here, I don't think I had enough gluten in my system to get an accurate result) but the drs at GI specialist all told me I don't have celiac and getting sick from gluten won't have the other problems that celiacs have, but I can't help be worried about miscarriage.

I can't believe how stupid I was to take that risk. :(


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rosetapper23 Explorer

My guess is that your baby will be just fine. If you were to gluten yourself on an ongoing basis, that might have an effect, but it sounds as though you're being extremely careful. My mother's celiac was triggered when she was five months' pregnant with me and had to have an emergency appendectomy. The result was that I was born with Ricketts because she wasn't able to absorb Vitamin D and perhaps calcium. Since she didn't know she had celiac, she kept eating gluten throughout her pregnancy. You, however, have knowledge on your side.

Please let us know how your ultrasound goes, okay? Many of us here will be thinking of you....

tarnalberry Community Regular

Even if celiac, one incident is almost certainly not going to cause a miscarriage. The troubles with celiac and pregnancy come from untreated celiac, not contamination lapses.

Melstar23 Apprentice

Thanks for your replies. I had my scan today and the baby was really well. I will just eat at home now so I know that I'm safe.

rosetapper23 Explorer

That's great news!

domesticactivist Collaborator

I'm glad to read that the baby is doing great! Of course it's important to be careful and of course you are doing your best, but I want to also put it out there that no pregnancy is 100% perfect and most babies come out just fine. :)

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    • Scott Adams
      This is a very common question, and the most important thing to know is that no, Guinness is not considered safe for individuals with coeliac disease. While it's fascinating to hear anecdotes from other coeliacs who can drink it without immediate issues, this is a risky exception rather than the rule. The core issue is that Guinness is brewed from barley, which contains gluten, and the standard brewing process does not remove the gluten protein to a level safe for coeliacs (below 20ppm). For someone like you who experiences dermatitis herpetiformis, the reaction is particularly significant. DH is triggered by gluten ingestion, even without immediate gastrointestinal symptoms. So, while you may not feel an instant stomach upset, drinking a gluten-containing beer like Guinness could very well provoke a flare-up of your skin condition days later. It would be a gamble with a potentially uncomfortable and long-lasting consequence. Fortunately, there are excellent, certified gluten-free stouts available now that can provide a safe and satisfying alternative without the risk.
    • MogwaiStripe
      Interestingly, this thought occurred to me last night. I did find that there are studies investigating whether vitamin D deficiency can actually trigger celiac disease.  Source: National Institutes of Health https://pmc.ncbi.nlm.nih.gov/articles/PMC7231074/ 
    • Butch68
      Before being diagnosed coeliac I used to love Guinness. Being made from barley it should be something a coeliac shouldn’t drink. But taking to another coeliac and they can drink it with no ill effects and have heard of others who can drink it too.  is this everyone’s experience?  Can I drink it?  I get dermatitis herpetiformis and don’t get instant reactions to gluten so can’t try it to see for myself. 
    • trents
      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
    • Scott Adams
      I will assume you did the gluten challenge properly and were eating a lot of gluten daily for 6-8 weeks before your test, but if not, that could be the issue. You can still have celiac disease with negative blood test results, although it's not as common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
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