Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Need Help Please


jodee

Recommended Posts

jodee Newbie

Hello everyone first time on here need some feed back very scared and confused.I started getting sick about a year and half ago.I started out with diarrhea pain in left side of belly.I was also bloating really bad and the only way I could get rid of the gas was using a suppository every day.I finally got into see a gastro doc he did a endoscopy and said I was red and irritated in my stomach.He made me an appt for a colonoscopy He gave me the stuff to drink to clean me out and I got half of it down and started throwing up.He wouldn't do the colonoscopy because He was worried I wouldn't be cleaned out enough.I ended up going to the hospital and they did a cat scan with dye and couldn't find any blockages.In the mean time I finally got the pill cam done and that was two weeks ago and still haven't got results back yet.In the mean time I did cut wheat and milk out of my diet and has helped.But thees a huge problem I haven't been able to go to the bathroom by my self for two months. I have had to give myself an enema every 4 days.I still have the pill cam in me.My doctor finally did ex ray and its on lower left side of abdomen.Since I have been having to give myself enemas im really inflamed down there.He prescribed some cream to take swelling away and told me to do sits baths.I still cant get it out tried another enema and now nothing is coming out but water.My doctor wont listen to me.Is it possible I ate wheat and milk for so long and didn't know i was allergic and now my intestines are so inflamed I cant go to bathroom and if that's the case What can I do to heal.By the way I hate my doctor.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Dwillis Newbie

Get a second opinion..

bbdailey Explorer

It just takes time. I completely understand your frustration. I was unable to use the bathroom for 5 months and it wasnt until about 2 weeks gluten free that I was able to slowly but surely use the bathroom again. I have been gluten free for 4 months now and soy and dairy free for 1 month. I still struggle with constipation but I got so used to not going that I dont really seem to mind the 2 or 3 day periods I cant go. Just stay patient and stay positive! I know it is a difficult road but keep at it and you will figure it out!

kennedymoore Rookie

Hello everyone first time on here need some feed back very scared and confused.I started getting sick about a year and half ago.I started out with diarrhea pain in left side of belly.I was also bloating really bad and the only way I could get rid of the gas was using a suppository every day.I finally got into see a gastro doc he did a endoscopy and said I was red and irritated in my stomach.He made me an appt for a colonoscopy He gave me the stuff to drink to clean me out and I got half of it down and started throwing up.He wouldn't do the colonoscopy because He was worried I wouldn't be cleaned out enough.I ended up going to the hospital and they did a cat scan with dye and couldn't find any blockages.In the mean time I finally got the pill cam done and that was two weeks ago and still haven't got results back yet.In the mean time I did cut wheat and milk out of my diet and has helped.But thees a huge problem I haven't been able to go to the bathroom by my self for two months. I have had to give myself an enema every 4 days.I still have the pill cam in me.My doctor finally did ex ray and its on lower left side of abdomen.Since I have been having to give myself enemas im really inflamed down there.He prescribed some cream to take swelling away and told me to do sits baths.I still cant get it out tried another enema and now nothing is coming out but water.My doctor wont listen to me.Is it possible I ate wheat and milk for so long and didn't know i was allergic and now my intestines are so inflamed I cant go to bathroom and if that's the case What can I do to heal.By the way I hate my doctor.

So sorry to hear of your difficulty. Take a deep breath... you are going to get through this. I would suggest that you try doing a salt water flush. Open Original Shared Link Here is the link at the website Healthbeyoundhype.com. The salt cleanses the entire digestive system, something an enema won't do. Keep doing it until you get some relief.

Aloe vera juice which is gluten free helps with constipation as does Magnesium Glycinate. Good luck to you.

pricklypear1971 Community Regular

And if you are able to eat, try a digestive enzyme with each meal. I use enzymedica digest gold. It helps digest food in the stomach so your tract has an easier time. If I take too many per day (3+) I actually get diarrhea.

You may also add a probiotic.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - sc'Que? commented on Scott Adams's article in Product Labeling Regulations
      1

      Global Experts Recommend Gluten Reference Dose: What It Means for Celiac Safety (+Video)

    2. - xxnonamexx posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      What's your daily meals? Protein bars?

    3. - trents replied to Seabeemee's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Labs ? Awaiting in person follow up with my GI

    4. - Seabeemee replied to Seabeemee's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Labs ? Awaiting in person follow up with my GI

    5. - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      45

      My journey is it gluten or fiber?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,170
    • Most Online (within 30 mins)
      7,748

    Charlotta Herte
    Newest Member
    Charlotta Herte
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • xxnonamexx
      What are your daily meals? Guilty pleasure snacks? Protein bars? I feel when looking for gluten free foods they are filled with sugar cholesterol. Looking for healthy gluten-free protein bars. Something to fill since sometimes I feel like not to eat anything. Especially if on vacation and unsure of cross contamination I figure go with a salad and protein bar to fill and play it safe.
    • trents
      Unfortunately, there is presently no test for NCGS. Celiac disease must first be ruled out. NCGS is thought to be much more common than celiac disease. We know that celiac disease is an autoimmune disorder but the mechanism of NCGS is less clear. Both call for an elimination of gluten from the diet.
    • Seabeemee
      Thanks for your reply Trents…most appreciated.  I am unfamiliar with celiac labs terminology so I wanted to know if the presence of HLA variants (DA:101, DA:105, DQB1:0301 and DQB1:0501) that the labs detected had any merit in predisposing one to be more sensitive to gluten/carbs than the general population?  Also,  I found what you said about NCGS very interesting and I appreciate you mentioning that.  I’ve worked hard to research and advocate for myself with my Hematologist and now with a new GI, since my bowel surgery and to maintain my Vitamin B12 health concurrent with keeping my levels of Iron in the optimal range. I’ve been tested for SIBO (do not have it), biopsy showed negative for HPylori, and have had Fecal studies done (nothing showed up) and I understand how a loss of a large amount of bowel could be highly impacting re: SIBO, malabsorption and motility issues. So I’ve managed pretty well diet and elimination-wise until just recently. That said, this new problem with extreme bloating, distention and upper girth, NAFLD just occured over the last 4 months so it is new for me and I thought celiac might be a possible issue. I’ll probably just continue on in this less gluten/carbs seem to be better for me and see how reintroducing certain foods go.  Thanks again.    
    • xxnonamexx
      Thanks bumped it up and now take all 3 vitamins 2 capsules each with the super b complex at breakfast. I will give it some time to see if I notice a difference. I am going to track my eating daily diary on a myfitness pal app to see if the "claimed" gluten free foods bother me or not.
    • JoJo0611
      Please can anyone help. I was diagnosed on 23rd December and I am trying my best to get my head around all the things to look out for. I have read that yeast extract is not to be eaten by coeliacs. Why? And is this all yeast extract. Or is this information wrong. Thanks. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.