Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Son's Symptoms


kristyn1024

Recommended Posts

kristyn1024 Newbie

It all started about three weeks ago. My 3 year old son woke up in the middle of tthe night throwing up. that morning he started having profuse diarrhea. We figured he had the stomach flu. he seemed lethargic that day and the next. But then on day three he seemed fine all day. We started giving him food again, and then at 1 am he woke up, vomited once and went back to sleep. He also had diarrhea one time in the am. This pattern continued and on day 5 we went to urgent care who said he had rotovirus. He hd not had a fever and i was uneasy so i took him to the ped the following day who also said he had a virus. We started the brat diet then, and we didn't have any more throwing up for two nights. then again he threw up once in the middle of the night. So we went back to the ped. At this point i started frekaing out htat he had cancer. i have a ten week old newborn as well and have been suffering from post partum anxiety. anyhow, they ordered a stool sample but told me it was a virus and sent us home. that night no vomit, but the next night he vomited again. The next mornning was saturday so we took him to urgent care, where they checked him out and ordered a chest xray to make sure he didn't have pnemonia just in case (he has had it before). there was nothing. they sent us ot the er for a cbc which was all normal besides a platelet count of 525. they did a head ct which was negative. we then went four days without puking, and he was taking prevacid during this time. his stools started to firm up. then on day four we had white stool. then on day five we started feeding him normally and he threw up at night and had diarrhea. took him back to the ped who was very nervous about the white poop and sent us for an abdominal ultrasound which was fine. we are now on day five of no throwing up. we go to the gi on thursday but i am curious if this could be a gluten sensitivity? i read that sometimes they set in after a virus. i am just puzzled that he only throws up at night and at almost the same time each night. i am exhausted bc i am so worried!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



domesticactivist Collaborator

How scary! It's so hard when the little ones are sick, especially when you also have a new baby! Hang in there, though. You are right to be taking him to the doctor and looking at all the possibilities. Of course you are exhausted and worried. I hope you have people in your community who can give you some hands on help right about now!!!

The Mayo clinic site says that white stool indicates the liver is not producing bile, or the flow of bile is obstructed. I don't know of this can be related to celiac or not. I've never heard of it before, though.

I think it makes sense to test for just about everything you and your doctors can think of. A celiac panel is worth doing while he is still eating gluten (false negatives are especially common if the person is not eating gluten) Once testing is carried out, it wouldn't hurt to try eliminating gluten and see if that helps.

Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,353
    • Most Online (within 30 mins)
      7,748

    ace14219
    Newest Member
    ace14219
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • SilkieFairy
      It could be a fructan intolerance? How do you do with dates?  https://www.dietvsdisease.org/sorry-your-gluten-sensitivity-is-actually-a-fructan-intolerance/
    • Lkg5
      Thank’s for addressing the issue of mushrooms.  I was under the impression that only wild mushrooms were gluten-free.  Have been avoiding cultivated mushrooms for years. Also, the issue of smoked food was informative.  In France last year, where there is hardly any prepared take-out food that is gluten-free, I tried smoked chicken.  Major mistake!
    • catnapt
      my IGG is 815 IGA 203  but tTG-Iga is   <0.4!!!!!!!!!!!!!   oh my god- 13 days of agony and the test is negative?  I don't even know what to do next. There zero doubt in my mind that I have an issue with wheat and probably more so with gluten as symptoms are dramatically worse the more gluten a product has   I am going to write up the history of my issues for the past few years and start a food/symptom diary to bring with me to the GI doctor in March.   I googled like crazy to try to find out what other things might cause these symptoms and the only thing that truly fits besides celiac is NCGS   but I guess there are some other things I maybe should be tested for ...? like SIBO?   I will continue to eliminate any foods that cause me distress (as I have been doing for the past couple of years) and try to keep a record. Can anyone recommend an app or some form or something that would simplify this? I have a very full and busy life and taking the time to write out each symptom name in full would be tedious and time consuming- some sort of page with columns to check off would be ideal. I am not at all tech savvy so that's not something I can make myself ... I'm hoping there's some thing out there that I can just download and print out   do I give up on testing for celiac with such a low number? I am 70 yrs old I have been almost completely off gluten for the most part for about 2 yrs. I had a meal of vital wheat gluten vegan roast,  rolls and stuffing made from home baked bread and an apple pie- and had the worst pain and gas and bloating and odd rumblings in my gut etc - almost went to the ER it was so bad. I was thinking, since I'm spilling a lot of calcium in my urine, that perhaps this was a kidney stone (never had one before but there's always that first time, right?)    Saw my endo on Jan 20th and after hearing the story about the symptoms from eating that holiday meal, she suggested doing a gluten challenge. She said 2 weeks was fine- she said stopping it in the middle if symptoms got bad was fine- In the meantime I'd read that 2 weeks was not enough- called and argued with the nurse about this, but ultimately decided to stop the gluten on the 13th day and get the test done because I was in too much pain and almost suicidal and knew I could not continue.   so.............. that's where I am now I have had no bread since Sunday. I did have some rolled oats today and had some gas and bloating afterwards I did have some wheat germ in a smoothie on Tuesday and had a stomach ache later that night.   but overall I feel so much better! all the joint pain is gone! the nausea is gone. The stomach pain and gas and bloating are going away. Still a bit gassy but no more of that horrible odor. wow, that would clear a room if I was out in public!  I see a GI nurse March 4th  I hope she'll be able to help sort this out! can you think of what my next steps might be?
    • par18
      Thanks for the reply. 
    • Scott Adams
      What you’re describing is actually very common, and unfortunately the timing of the biopsy likely explains the confusion. Yes, it is absolutely possible for the small intestine to heal enough in three months on a strict gluten-free diet to produce a normal or near-normal biopsy, especially when damage was mild to begin with. In contrast, celiac antibodies can stay elevated for many months or even years after gluten removal, so persistently high antibody levels alongside the celiac genes and clear nutrient deficiencies strongly point to celiac disease, even if you don’t feel symptoms. Many people with celiac are asymptomatic but still develop iron and vitamin deficiencies and silent intestinal damage. The lack of immediate symptoms makes it harder emotionally, but it doesn’t mean gluten isn’t harming you. Most specialists would consider this a case of celiac disease with a false-negative biopsy due to early healing rather than “something else,” and staying consistently gluten-free is what protects you long-term—even when your body doesn’t protest right away.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.