Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

How Do We Get Restaurants To Consider Being Part Of The Gig Program Described On This Site?


mommyto2kids

Recommended Posts

mommyto2kids Collaborator

I'd love love love to work on that in my community, northern CA. Not much safe choice around here. My kids miss eating out and wish I could go out more.If you know how this program works, please let me know. Two women just started a gluten free bakery. They are opening up the doors for change. As you may recall the highest end restaurant glutened me and they really didn't care when I called them back to report how sick I was.

Is there a complaint site for gluten poisening. That would be cool. There needs to be one.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



rosetapper23 Explorer

Have you tried contacting GIG directly? They're very friendly people! I worked with them when they were developing their restaurant training program because I was developing a similar program for my senior project while attending St. Mary's College in Moraga. (By the way, which part of Northern California do you live in? I live in the S. F. Bay Area.) The Executive Director, Cynthia Kupper (pronounced like "Cooper"), flies all over the U.S. to meet with CEOs of large chain restaurants so that their staff can get training and gluten-free menus can be put together. I don't think it's a free service, though, so a restaurant would definitely need to be interested in serving people who can't tolerate gluten. Perhaps there would be a way for you to receive the training from GIG directly, and then you could train some local restaurants (either free or for a fee). Try giving GIG a call--something wonderful might happen. Their website is www.gluten.net.

mommyto2kids Collaborator

So what do you do now? Do you have a phone number for this person, I'd love to talk to her about this. You never know, I do have 2 teaching credentials. I just want to educate and have people care. I just had a hysterectomy and only one nurse knew what celiac even was. My husband is a nurse and he had never learned about it before. Thank you for your info. I'll check it out.

rosetapper23 Explorer

You sound ideal! Cynthia Kupper can be contacted at 253/833-6655 or cynthia.kupper@gluten.net .

Also, if you live anywhere near Marin, there's an active GIG chapter there. It's the first and, I believe, only GIG chapter in California If you're interested in their contact information, just let me know. Where do you live in Northern California?

mommyto2kids Collaborator

Unfortunately I'm about 3 hours north of Marin. As far as I can tell, my area has nothing. It is hard to brave celiac with nothing. Do you have celiac? Yes any info you can pass on to me would be wonderful. I haven't figured out the private messaging here. Remind me again how it works. Thanks so much for helping me. I was looking at the GIG web site. They have a really neat magazine on line for kids written by kids. We should pass the word on how cool this is!

rosetapper23 Explorer

Yes, I have celiac--was diagnosed more than seven years ago, but I believe it was triggered when I was 11. Even so, I had horrible bone, muscle, and connective tissue pain from birth because I was born with Rickets--we believe my mom's celiac was triggered during her pregnancy with me, so I was born with nutritional deficiencies.

Three hours away from Marin? Are you in Redding or thereabouts? My stepmom lives there, and I visit several times a year. Going out to eat is a drag, though, because there are hardly any restaurants that accommodate. The Chevy's manager actually suggested that I leave because he couldn't guarantee my safety. However, if you live anywhere in the Northern part of the state, I know what you're faced with. No one seems very educated about celiac or preparing gluten-free meals safely.

The kids/teens group sponsored by GIG really is a great program. The young man who started it spoke a few years ago at the annual conference in Seattle. GIG also sponsors several gluten-free Kids' Camps during the summer, which is a huge undertaking since volunteers (some are dietitians) are the ones who do all the cooking and serving. However, the children get so excited to meet other children who are just like them and to be able to eat anything that's served--it's the best! There are a number of good celiac groups out there, but I've received a lot of guidance and support from GIG. I try to attend their annual conferences every year, but I had to skip the last one (it was in Florida, and I'm trying to save to visit my daughter in Australia in November). GIG is responsible for putting together the program that certifies the large restaurant chains (which is a huge and difficult process) and they have a program for certifying food products, too. They perform regular surprise audits of the companies that become certified. They're definitely a very hard-working group that operates just on donations and lots of volunteers. I'm sure they would be delighted to get to know you and to learn of your interest. Cynthia Kupper is a certified dietitian and has devoted most of her life to making GIG what it is today.

Regarding the private messenging, you need to go to your log-in at the upper right of the screen and drop down the menu to choose "messenging." You'll be able to figure it out from there. I'm not too experienced using this feature either, but I've communicated with a few members.

How long have you known you have celiac? Do you know anyone else in your area who has it?

mommyto2kids Collaborator

Yes I live near where you are speaking of. Oh my, I can't believe the Chevy's manager asked you to leave! You see why I want to make a difference. I was diagnosed in May. So many things to learn. It is quite the journey.

I don't know anyone, but know of some people I'm going to try to meet who have it. I'll contact that person when I have the chance. What is your line of work now? Maybe don't tell me where for safety purposes.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



rosetapper23 Explorer

I work in education, but I'm hoping to retire soon in order to work in the medical field. I would very much like to create a job, such as health advocate, that would help doctors understand how to identify celiac...and help patients who have been newly diagnosed. Of course, this is a dream job that doesn't yet exist, but I would like to pitch it to Kaiser or possibly Blue Shield. I know I can save insurance companies a ton of $$ by identifying people who have celiac.

I'm sorry to hear that you live in a part of the state that is largely uneducated about celiac--it's about five years behind the S.F. Bay Area.

mommyto2kids Collaborator

I'd love to be part of your dream job. I'm in education too. I've been working hard to keep my credentials up to date, early childhood and multiple subject. I need 20 more hours before December for my site supervisor permit in early childhood. Anything you'd suggest I read or can think of that could work tward these hours for renual that would also educate me tward this cause? Do think there may be a paid position from this part or the state someday working with celiac advocacy? What a dream. Now how do we do it?

rosetapper23 Explorer

Since this job doesn't yet exist, I'm also pondering which classes or degrees might help me further my goals. I only have a B.A. (I'm classifed, not certificated, though I've taught at the postsecondary level) and have thought about returning to earn my Master's in Health Administration....but that sounds sooooo boring (and costly!!). I'm always looking for training that might help me develop an advocacy-type position, but, of course, mainstream medical training only focuses on "standard of care," which doesn't really allow a professional to suggest natural treatments. I'm so far from mainstream medicine, it would be hard for me to work in an environment that doesn't accept the concept that there ARE some diseases and disorders that can be treated with diet and natural supplements. The type of job I envision is one that allows for travel throughout a large region to speak with groups of doctors (primary care physicians, dermatologists, gynecologists, neurologists, dentists, etc.) to educate them on the varied symptoms of celiac that can be missed. Then, after more patients are diagnosed, I would counsel the groups of newly diagnosed patients to help them adjust to a gluten-free lifestyle and to provide them with resources. Finally, I would hope to develop statistics over time that would demonstrate to the medical community the cost-effectiveness of identifying people with celiac and gluten sensitivity and the health benefits to their patients.

I may have to actually start a business that contracts with hospitals to do all of the above, but I would prefer to be able to convince a large healthcare provider like Kaiser or Blue Shield to give me a chance to educate their doctors, nurses, and patients.

If you're interested in getting into a field like this, I can only suggest that you start a GIG chapter in Northern California (a large area that would include Redding, Red Bluff, Corning, Chico, Paradise, etc.) so that you can gain experience in providing support to celiac sufferers. I think that eventually the medical community will become more open to learning about celiac and dermatitis herpetiformis--and then you and I will be ready and willing to help them.

mommyto2kids Collaborator

It is neat you have an idea of the job you'd like to do. Yes I will give her a call this week. I was thinking about doing a write up on some of the successful(kind,helpful, we don't get sick) gluten free bakeries in this area. Just a thought I'm working on. Instead of giving any attention to all the poor restaurants, to give some attention to the good ones. Then submitting it to a local magazine.

rosetapper23 Explorer

That's a good idea! I contacted a local magazine about five years ago to write a positive story on the restaurants that offered gluten-free menus in our area, and they were very interested in publishing it. They had scheduled the story to run two months from the time they interviewed me about my idea...and then I got diagnosed with breast cancer a week later. Unfortunately, by the time I'd recovered from the surgeries and chemo, the magazine had changed owners and now was going in a different direction.

However, it's likely that your local magazine may be very interested in this type of story. Going gluten free is becoming more commonplace, and there are lots of statistics showing how the industry is growing. I think these types of stories spur other restaurants to look into new ways they can make more money in this difficult economy.

I've thought about approaching a small newspaper in our town about writing a weekly column on celiac--there are tons of topics that could be covered. Maybe after I get back from Australia, I can give this some more serious thought.

Good luck with your article!

mommyto2kids Collaborator

Have a fun trip! Los Altos and Palo Alto have a little newspaper. Sunset Magazine is in Meno Park or there about. I wonder if they'd be on board. That would be wonderful if they'd listen. My husband used to be friends with someone that worked there, maybe that is a thought.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - nanny marley replied to nanny marley's topic in Related Issues & Disorders
      4

      Manitol and mri

    2. - nanny marley replied to nanny marley's topic in Related Issues & Disorders
      4

      Manitol and mri

    3. - Scott Adams replied to RDLiberty's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Toothpaste question.

    4. - Scott Adams replied to Theresa2407's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Probiotics

    5. - Scott Adams replied to Colleen H's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Celiac attack confusion and anxiety


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,790
    • Most Online (within 30 mins)
      7,748

    Lori Jean
    Newest Member
    Lori Jean
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • nanny marley
      Oral drink: You will be given a solution of mannitol mixed with water to drink over a period of about 30-60 minutes this is what it says it is ,?
    • nanny marley
      Brilliant thankyou for the information I will contact them tomorrow, I was just concerned because I'm already in a bowel flare too , and I didn't want to take anything that would cause me more issues , especially with the way sweeteners make be feel I've had a really bad throat from this type of stuff before , and it upsets my digestive system too and I have a wedding in a week 😳
    • Scott Adams
      There is no scientific evidence to suggest that hydrated silica or its relative, silicon dioxide, triggers a celiac-specific immune response or causes intestinal damage in individuals with the condition. The concern you likely encountered online is a common misconception. Here’s the key distinction: the protein in gluten (gliadin) is what causes the autoimmune reaction in celiac disease. Hydrated silica and silicon dioxide are minerals, chemically inert compounds of silicon and oxygen, and are completely unrelated to gluten proteins. They are widely used as abrasives in toothpaste and anti-caking agents in food powders because they are stable and non-reactive. While any individual can have a unique sensitivity to any substance, there is no mechanism by which these silica compounds would mimic gluten or exacerbate celiac disease. Your diligence in using a certified gluten-free toothpaste is the correct and most important step, as it eliminates the risk of cross-contamination with wheat-derived ingredients like starch. Based on current scientific understanding, the hydrated silica in your toothpaste is not an issue for your celiac management.
    • Scott Adams
      There is no single "best" probiotic brand universally recommended for celiac disease. The goal of a probiotic in this context is to help support the gut microbiome, which can be disrupted by the damage caused by gluten exposure. The most important factor is not the brand name, but ensuring the product is certified gluten-free, as some probiotics use wheat-derived starches or are produced in facilities that handle gluten, posing a cross-contamination risk. Furthermore, the specific strains of bacteria can matter; some research suggests strains like Lactobacillus and Bifidobacterium may be beneficial, but individual responses vary greatly. Because the supplement industry is not tightly regulated, choosing a reputable brand that undergoes third-party testing for purity and potency is key. 
    • Scott Adams
      What you are describing, while terrifying and severe, is an experience that others in the celiac community have reported during a powerful reaction. The systemic inflammation triggered by gluten exposure in someone with celiac disease can absolutely extend far beyond the digestive tract, creating a cascade of symptoms that feel like your entire body is in revolt. The severe pain, neuropathy, muscle and jaw tension, and intense anxiety and confusion are all potential manifestations of this body-wide inflammatory and autoimmune response. It's a well-documented phenomenon that a celiac attack can provoke a significant neurological and psychological component, including "brain fog," disorientation, and panic-level anxiety. While your first step should always be to meticulously re-check all foods, medications, and even cross-contamination sources, it's also possible that a previously safe product has changed its formula or that you encountered a hidden source. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.