Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Need Advice


NewToGlutenFreeLife

Recommended Posts

NewToGlutenFreeLife Newbie

Hello,

After hearing about many improved lifes of celiac-positive friends, and many symptoms I learned may be related to allergies, I decided to do an elimination diet this month. I am already a lifelong vegan, so, in addition, I cut out soy, peanuts, corn, gluten, sulfur-rich food (onion & garlic), chilies, citrus (except lemon) and nightshades (potatoes, tomatoes, peppers, cherries and eggplant). I also gave up coffee, processed food, sugar etc.

After 10 days of this diet I spoke with a doctor that reported a high rate of clinical success with a food allergy panel (blood test). I had heard otherwise previously & still read that poitive results by blood are 55% accurate. Nonetheless, I was convinced by this doctor that a blood test may be a more accurate route to take because I could be allergic to something I was still eating. The Dr. also told me to add back all the food I had elliminated for at least 2 weeks in order to get an accurate test. So that night I had stir-fry with wheat noodles. I was very sick within minutes. My symptoms came back dramatically, along with new symptoms: Diarrhea, Vomiting, loud tinnitus (it had gotten fainter on the elimination diet), all-over body malaise, extreme fatigue, mental "fog," instant stomach bloating, epigastric bloating...in short, I feel aweful. NOW, 4 DAYS LATER, and 100% gluten-free I still feel aweful. I feel worse that when I began the elimination diet. I'm eating very little but my digestive system is in uproar. So now I'm commited to remaining on this strict diet instead of getting testing because I cannot bare to feel this way.

Sidenote: before trying the elimination diet I felt healthy but had fatigue, mental fog, achy (like a flu-but I felt this way over a year), and bloated. I felt hungry but wonderful when I began the diet. My stomach wasn't distended & I felt hollow and clean (like I feel when fasting) even though I was eating enough calories.

Any thoughts? Similar experiences? Suggestions?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



pricklypear1971 Community Regular

Was the stir fry homemade and msg-preservative free? I ask because most premade ones have nasty nasty stuff in them and you may have a problem with that, too.

MissKris2 Newbie

My symptoms got worse (and I developed some new ones) after I eliminated gluten and then added back in. I think that's pretty common. If the gluten free diet makes you feel better, stick with it!

domesticactivist Collaborator

I'm so sorry! It can be really hard to tell what the problem is when you add everything back at once. I'd go back on the diet that was helping you and then slowly add one thing back in (waiting a few days each time).

Our family has been doing the GAPS diet. It starts off very basic and then adds foods in slowly. We thought more things were a problem than actually are. For instance, we thought nightshades were an issue for our son but he's actually fine with them now that grains are out. Also, foods I thought were NOT a problem for me have shown themselves to be the causes of some of my symptoms. For example, cheese was my bad breath and mental instability, and my parasthesia is hypoglycemia due to spiking my blood sugar and then it dropping in the night.

We're all so individual... it takes experimenting to figure out what works and what doesn't. Our experience with allergy testing was that the IgE tests were useful, but IgG isn't a reliable indicator of an underlying problem.

NewToGlutenFreeLife Newbie

Was the stir fry homemade and msg-preservative free? I ask because most premade ones have nasty nasty stuff in them and you may have a problem with that, too.

Yes, the dish was homemade & organic. I stir-fried with a little organic sesame oil, ginger & added ground sesame seeds to the dish. The veggies were organic too & nothing new (organic zuccinni, carrot, red cabbage)

NewToGlutenFreeLife Newbie

I'm so sorry! It can be really hard to tell what the problem is when you add everything back at once. I'd go back on the diet that was helping you and then slowly add one thing back in (waiting a few days each time).

Our family has been doing the GAPS diet. It starts off very basic and then adds foods in slowly. We thought more things were a problem than actually are. For instance, we thought nightshades were an issue for our son but he's actually fine with them now that grains are out. Also, foods I thought were NOT a problem for me have shown themselves to be the causes of some of my symptoms. For example, cheese was my bad breath and mental instability, and my parasthesia is hypoglycemia due to spiking my blood sugar and then it dropping in the night.

We're all so individual... it takes experimenting to figure out what works and what doesn't. Our experience with allergy testing was that the IgE tests were useful, but IgG isn't a reliable indicator of an underlying problem.

Thanks for sharing, My daughters are on the diet with me but they were fine with the wheat pasta. I removed gluten foods from the house for now. I'm still feeling ill from the pasta.

NewToGlutenFreeLife Newbie

My symptoms got worse (and I developed some new ones) after I eliminated gluten and then added back in. I think that's pretty common. If the gluten free diet makes you feel better, stick with it!

Thanks. I didn't realize this was common. I'm at a loss for what I can eat now...


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,112
    • Most Online (within 30 mins)
      7,748

    tomhaley
    Newest Member
    tomhaley
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      If you were off gluten for two months that would have been long enough to invalidate the celiac blood antibody testing. Many people make the same mistake. They experiment with the gluten free diet before seeking formal testing. Once you remove gluten from the diet the antibodies stop being produced and those that are already in circulation begin to be removed and often drop below detectable levels. To pursue valid testing for celiac disease you would need to resume gluten consumption equivalent to the amount found in 4-6 slices of wheat bread daily for at least two weeks, preferably longer. These are the most recent guidelines for the "gluten challenge". Without formal testing there is no way to distinguish between celiac disease and gluten sensitivity since their symptoms overlap. However, celiac disease is an autoimmune disorder that damages the small bowel lining, not true of gluten sensitivity. There is no test available for gluten sensitivity so celiac disease must first be ruled out. By the way, elevated liver enzymes was what led to my celiac diagnosis almost 25 years ago.
    • trents
      Then it does not seem to me that a gluten-related disorder is at the heart of your problems, unless that is, you have refractory celiac disease. But you did not answer my question about how long you had been eating gluten free before you had the blood antibody test for celiac disease done.
    • Xravith
      My genetic test results have arrived - I’m homozygous for DQB1*02, meaning I have HLA-DQ2. I’ve read that this is one of the genes most strongly associated with celiac disease, and my symptoms are very clear. I’m relieved that the results finally arrived, as I was getting quite worried since my symptoms have been getting worse. Next step, blood test. What do these results imply? What should I tell my family? I’m concerned that this genetic predisposition might also affect other family members.
    • Roses8721
      Two months. In extreme situations like this where it’s clearly a smoking gun? I’m in LA so went to a very big hospital for pcp and gi and nutritionist 
    • rei.b
      So far 3 months in - worsening symptoms. I have had the worst constipation in my life and I am primarily eating naturally gluten-free foods like potatoes, eggs, salad with homemade dressing, corn tortillas, etc. I hate gluten-free bread and pasta so I don't eat it. Occasionally I eat gluten-free almond flour crackers. As stated in the post, I don't have any vitamin deficiency. I was already tested.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.