Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

DH - How Long To Go Away?

lub2bmom

By lub2bmom
in Dermatitis Herpetiformis

Recommended Posts

lub2bmom Apprentice
lub2bmom
Posted

Good Morning,

I have had chornic hives for 6 years now -- after tons of testing for everything under the sun -- A friend suggested that it looks just like HD celiac... and she's right-- exactly like it -- and i have it on my arms, legs, itchy scalp, and face. I have been gluten free for about 3 weeks now and it's only left on my right arm --any one else have the HD version -- how long did it take to fully go into remission? I am so thankful for website like this-- i've found TONS of info on here! Thanks!

Diane

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


gluten free overseas Apprentice
gluten free overseas
Posted

Corn (esp high fructose corn syrup) gives me DH as well as gluten. You might want to consider eliminating corn for a while (and it's hard because it's in so much!!). Also, avoid iodine--for some reason, if you eat foods with iodine, DH will not go away. Get a salt that does not have iodine, don't eat salmon for a while etc. I hope you feel better soon!

lub2bmom Apprentice
lub2bmom
Posted
  • Author

That is really good to know! I learn new things on here every day!! My mom actually has a corn allergy ... so i could see myself having that as well! thanks for the tip!!

Hungrylady Rookie
Hungrylady
Posted

I can still see mine if I look in a 10x mirror but it's gone with the naked eye! I have been gluten-free (with the exception of getting glutened more often than I should) about 2.5 months. I am thrilled since it was smack dab on the middle of my face. The peeling is what took forever, especially on the hair line :(

Flasaltwater Apprentice
Flasaltwater
Posted

I can still see mine if I look in a 10x mirror but it's gone with the naked eye! I have been gluten-free (with the exception of getting glutened more often than I should) about 2.5 months. I am thrilled since it was smack dab on the middle of my face. The peeling is what took forever, especially on the hair line :(

When you say peeling is it like when a sunburn peels or is it like a dried up flaky what was once a scab. Just looknig for clerification becasue mine does not peel like a sunburn.

pricklypear1971 Community Regular
pricklypear1971
Posted

When you say peeling is it like when a sunburn peels or is it like a dried up flaky what was once a scab. Just looknig for clerification becasue mine does not peel like a sunburn.

Mine does both.

Hungrylady Rookie
Hungrylady
Posted

ughhh.....it makes me crazy. When I first get glutened it turns bright and I mean bright red (I look like I have a red mustache and beard, lol). Then it get raised and itches and stays like that for about oh it varies but I'd say about a week then it begins to peel. Dry flakes that keep peeling like a sunburn but no matter what you do, it keeps right on peeling-ironically exfoliating doesn't help at all. This goes on for about a dang month. Then it goes away (away to the naked eye). This same thing happens on my hair line but I swear from a different reaction (I also can't have eggs, nuts, milk, shellfish (although this one is confusing me right now).

Go figure. That's how I found out I have celiacs...the dermatologists!!!!!!!!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Flasaltwater Apprentice
Flasaltwater
Posted

ughhh.....it makes me crazy. When I first get glutened it turns bright and I mean bright red (I look like I have a red mustache and beard, lol). Then it get raised and itches and stays like that for about oh it varies but I'd say about a week then it begins to peel. Dry flakes that keep peeling like a sunburn but no matter what you do, it keeps right on peeling-ironically exfoliating doesn't help at all. This goes on for about a dang month. Then it goes away (away to the naked eye). This same thing happens on my hair line but I swear from a different reaction (I also can't have eggs, nuts, milk, shellfish (although this one is confusing me right now).

Go figure. That's how I found out I have celiacs...the dermatologists!!!!!!!!

Oh my goodness no I don't think I have anything like that. Maybe I don't have the DH that everyone talks about, this sounds different. I get actual blisters under my skin that end up breaking and scabbing over and hurt and itch really bad. No rash like your describing. I guess Ill find out Monday when I go to the Derm.

ravenwoodglass Mentor
ravenwoodglass
Posted

Oh my goodness no I don't think I have anything like that. Maybe I don't have the DH that everyone talks about, this sounds different. I get actual blisters under my skin that end up breaking and scabbing over and hurt and itch really bad. No rash like your describing. I guess Ill find out Monday when I go to the Derm.

Your description sounds very much like DH. If you are getting a skin biopsy make sure the derm is familiar with how to do the biopsy. They need to biopsy intact skin next to an active lesion and they also need to tell the lab that they are looking for DH.

Hungrylady Rookie
Hungrylady
Posted

Oh it sounds painful :( I hope you get some much needed answers. I really know nothing about DH only as it relates to my own situation. I will say it is one of the symptoms I didn't educate myself on. I am so busy with the ones that really hurt, like my hands. Which is why I like this section, I'm learning.

I wish you all the best, look forward to hearing how it goes...

pricklypear1971 Community Regular
pricklypear1971
Posted

DH can look very different person to person. The same person can have two types of lesions, and they can change over time.

I have tiny pinpricks, and if I get into something nasty - big swollen bumps filled with fluid.

Don't diagnose it based on look. Diagnose it based on how it acts, biopsy, and if it recedes with iodine and gluten withdrawal.

eatmeat4good Enthusiast
eatmeat4good
Posted

One year gluten free and DH sores still healing. The last 4 leasions are very minimal. I kept interfering with the healing by eating salty foods like chips and iodine containing foods like eggs and dairy...causing them to welt and the healing process had to start all over again. So much better at healing without those Gluten AND Iodine. Trace gluten is awful and will cause a huge reaction. I wanted to be one of those who healed in a matter of weeks, but alas, I was not that lucky. or perhaps it was me and I was not vigilant enough. However, it appears I will be free of all lesions in a couple of weeks which will actually be my one year anniversary of being gluten free. DH is really miserable, but I've gotten better about avoiding what causes me to react. If only I would stop testing dairy, and grabbing a handful of chips...Jeez!!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,539
    • Most Online (within 30 mins)
      7,748
    Josiemc
    Newest Member
    Josiemc
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • knitty kitty
      Unusual bright yellow but odourless discharge

      By knitty kitty · Posted

      Yes, I, too, have osteoporosis from years of malabsorption, too.  Thiamine and magnesium are what keep the calcium in place in the bones.  If one is low in magnesium, boron, selenium, zinc, copper, and other trace minerals, ones bone heath can suffer.  We need more than just calcium and Vitamin D for strong bones.  Riboflavin B 2, Folate B 9 and Pyridoxine B 6 also contribute to bone formation and strength.   Have you had your thyroid checked?  The thyroid is important to bone health as well.  The thyroid uses lots of thiamine, so a poorly functioning thyroid will affect bone heath.  
    • Celiac50
      Unusual bright yellow but odourless discharge

      By Celiac50 · Posted

      That sounds so very likely in my case! I will absolutely ask my doctor on my next bone check coming up in March... Thanks a lot! 
    • trents
      Unusual bright yellow but odourless discharge

      By trents · Posted

      Calcium levels as measured in the blood can be quite deceiving as the body will rob calcium from the bones to meet demands for it by other bodily functions. Also, supplementing with calcium can be counterproductive as it tends to raise gut pH and decrease absorption. More often than not, the problem is poor absorption to begin with rather than deficiency of intake amounts in the diet. Calcium needs an acidic environment to be absorbed. This is why so many people on PPIs develop osteoporosis. The PPIs raise gut pH. And some people have high gut PH for other reasons. Low pH equates to a more acidic environment whereas high pH equates to a more basic (less acidic) environment.
    • Celiac50
      Unusual bright yellow but odourless discharge

      By Celiac50 · Posted

      Kind thanks for all this valuable information! Since my Folate was/is low and also my Calcium, there IS a chance I am low in B vitamins... My doctor only measured the first two, oh and Zinc as I has twisted her arm and guess what, that was mega low too. So who knows, until I get myself tested properly, what else I am deficient in... I did a hair mineral test recently and it said to avoid All sources of Calcium. But this is confusing for me as my Ca is so low and I have osteoporosis because of this. It is my Adjusted Ca that is on the higher side and shouldn't be. So am not sure why the mineral test showed high Ca (well, it was medium in the test but relative to my lowish Magnesium, also via hair sample, it was high I was told). But anyway, thanks again for the VitB download, I will look into this most certainly!
    • ElisaAllergiesgluten
      Allergy medication: cetirizine by the HealthA2Z is it gluten free?

      By ElisaAllergiesgluten · Posted

      Hello good afternoon, I was wondering if anyone has ever brought their anti-allergy pills? I have been wanting to use their Cetirizine HCI 10mg. They are called HealthA2Z and distributed by Allegiant Health.I’m also Asthmatic and these allergies are terrible for me but I also want to be sure they don’t have any sort of gluten compound.    I have tried calling them but to no avail. Has anyone ever used them? If so, did you had any problems or no problems at all?    thank you
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.