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DH - How Long To Go Away?

lub2bmom

By lub2bmom
in Dermatitis Herpetiformis

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lub2bmom Apprentice
lub2bmom
Posted

Good Morning,

I have had chornic hives for 6 years now -- after tons of testing for everything under the sun -- A friend suggested that it looks just like HD celiac... and she's right-- exactly like it -- and i have it on my arms, legs, itchy scalp, and face. I have been gluten free for about 3 weeks now and it's only left on my right arm --any one else have the HD version -- how long did it take to fully go into remission? I am so thankful for website like this-- i've found TONS of info on here! Thanks!

Diane

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gluten free overseas Apprentice
gluten free overseas
Posted

Corn (esp high fructose corn syrup) gives me DH as well as gluten. You might want to consider eliminating corn for a while (and it's hard because it's in so much!!). Also, avoid iodine--for some reason, if you eat foods with iodine, DH will not go away. Get a salt that does not have iodine, don't eat salmon for a while etc. I hope you feel better soon!

lub2bmom Apprentice
lub2bmom
Posted
  • Author

That is really good to know! I learn new things on here every day!! My mom actually has a corn allergy ... so i could see myself having that as well! thanks for the tip!!

Hungrylady Rookie
Hungrylady
Posted

I can still see mine if I look in a 10x mirror but it's gone with the naked eye! I have been gluten-free (with the exception of getting glutened more often than I should) about 2.5 months. I am thrilled since it was smack dab on the middle of my face. The peeling is what took forever, especially on the hair line :(

Flasaltwater Apprentice
Flasaltwater
Posted

I can still see mine if I look in a 10x mirror but it's gone with the naked eye! I have been gluten-free (with the exception of getting glutened more often than I should) about 2.5 months. I am thrilled since it was smack dab on the middle of my face. The peeling is what took forever, especially on the hair line :(

When you say peeling is it like when a sunburn peels or is it like a dried up flaky what was once a scab. Just looknig for clerification becasue mine does not peel like a sunburn.

pricklypear1971 Community Regular
pricklypear1971
Posted

When you say peeling is it like when a sunburn peels or is it like a dried up flaky what was once a scab. Just looknig for clerification becasue mine does not peel like a sunburn.

Mine does both.

Hungrylady Rookie
Hungrylady
Posted

ughhh.....it makes me crazy. When I first get glutened it turns bright and I mean bright red (I look like I have a red mustache and beard, lol). Then it get raised and itches and stays like that for about oh it varies but I'd say about a week then it begins to peel. Dry flakes that keep peeling like a sunburn but no matter what you do, it keeps right on peeling-ironically exfoliating doesn't help at all. This goes on for about a dang month. Then it goes away (away to the naked eye). This same thing happens on my hair line but I swear from a different reaction (I also can't have eggs, nuts, milk, shellfish (although this one is confusing me right now).

Go figure. That's how I found out I have celiacs...the dermatologists!!!!!!!!

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Flasaltwater Apprentice
Flasaltwater
Posted

ughhh.....it makes me crazy. When I first get glutened it turns bright and I mean bright red (I look like I have a red mustache and beard, lol). Then it get raised and itches and stays like that for about oh it varies but I'd say about a week then it begins to peel. Dry flakes that keep peeling like a sunburn but no matter what you do, it keeps right on peeling-ironically exfoliating doesn't help at all. This goes on for about a dang month. Then it goes away (away to the naked eye). This same thing happens on my hair line but I swear from a different reaction (I also can't have eggs, nuts, milk, shellfish (although this one is confusing me right now).

Go figure. That's how I found out I have celiacs...the dermatologists!!!!!!!!

Oh my goodness no I don't think I have anything like that. Maybe I don't have the DH that everyone talks about, this sounds different. I get actual blisters under my skin that end up breaking and scabbing over and hurt and itch really bad. No rash like your describing. I guess Ill find out Monday when I go to the Derm.

ravenwoodglass Mentor
ravenwoodglass
Posted

Oh my goodness no I don't think I have anything like that. Maybe I don't have the DH that everyone talks about, this sounds different. I get actual blisters under my skin that end up breaking and scabbing over and hurt and itch really bad. No rash like your describing. I guess Ill find out Monday when I go to the Derm.

Your description sounds very much like DH. If you are getting a skin biopsy make sure the derm is familiar with how to do the biopsy. They need to biopsy intact skin next to an active lesion and they also need to tell the lab that they are looking for DH.

Hungrylady Rookie
Hungrylady
Posted

Oh it sounds painful :( I hope you get some much needed answers. I really know nothing about DH only as it relates to my own situation. I will say it is one of the symptoms I didn't educate myself on. I am so busy with the ones that really hurt, like my hands. Which is why I like this section, I'm learning.

I wish you all the best, look forward to hearing how it goes...

pricklypear1971 Community Regular
pricklypear1971
Posted

DH can look very different person to person. The same person can have two types of lesions, and they can change over time.

I have tiny pinpricks, and if I get into something nasty - big swollen bumps filled with fluid.

Don't diagnose it based on look. Diagnose it based on how it acts, biopsy, and if it recedes with iodine and gluten withdrawal.

eatmeat4good Enthusiast
eatmeat4good
Posted

One year gluten free and DH sores still healing. The last 4 leasions are very minimal. I kept interfering with the healing by eating salty foods like chips and iodine containing foods like eggs and dairy...causing them to welt and the healing process had to start all over again. So much better at healing without those Gluten AND Iodine. Trace gluten is awful and will cause a huge reaction. I wanted to be one of those who healed in a matter of weeks, but alas, I was not that lucky. or perhaps it was me and I was not vigilant enough. However, it appears I will be free of all lesions in a couple of weeks which will actually be my one year anniversary of being gluten free. DH is really miserable, but I've gotten better about avoiding what causes me to react. If only I would stop testing dairy, and grabbing a handful of chips...Jeez!!

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