Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Anyone In Rolla, Mo Area?


nettiebeads

Recommended Posts

nettiebeads Apprentice

Hi! I'm new to this forum, but not to celiac, unfortunately. I've been doing this on my own since my dr put me on gluten-free ten years ago to cope with chronic diahrrea I'd experience for 6 weeks. Yep it worked. I haven't had the formal diagnosis, but anytime I get gluten, I get the diahrrea back. Plus lots of other fun physical stuff that I'm sure I don't need to go into detail with anyone here. So in a way I'm guess I'm lucky in that my gp figured it out right off the bat. I've read where other people have suffered for a long time before the celiac was found out. For the longest time celiac disease hasn't bothered me, but just recently there was an incident that just bummed out totally. I had a voucher to eat in a cafeteria, and the only thing available to me was the salad bar!! I wasn't in to mood for (yet another) salad!!! Then when I got home nearly three hours later (car trouble) my husband served me a pre-grilled chicken breast. Afterwords he read the label and found that the soy sauce was made with (you guessed it) wheat flour. So I've been recovering from that for the past two weeks. And he felt very very bad about that. He's cooked for me before (he's a trained sous chef) and is almost as conciencious about label reading as I am.

So, to come to the point of my mad rambling, I'd love to share experiences, coping techniques and receipes with anyone, but especially someone in the south central Missouri area.

And if anyone is interested, my husband makes a killer gluten-free breaded chicken breast that he'll be glad to share the receipe with anyone.

  • 1 month later...

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



drjmarkusic Newbie

I live in Springfield, MO and was just diagnosed in May '05 after having severe abdominal pain and constipation for a two year period which was commensurate with a low iron count that continued to drop to 4 even after having been prescribed Ferrex for two months. Following an EGD I was diagnosed and have been gluten-free since. However, I had one incident when I ate at Outback Steakhouse, which has a gluten-free menu. I was in severe lower back and abdominal pain for 7 days. Believe me that will be end of that. I've found a few recipes I like made from scratch. Meatloaf is my favorite and then there are desserts like brownies. Usually I am able to use food items I purchase in the grocery store except bread and that comes from Akin's Health Food Market. I'm always willing to try something new and have been that way all of my life so that's a good thing. My wife does pretty well with my diet and when she wants something else I'll make it for her or go out to a restaurant (the restaurant is a luxury since I've been gluten-free) but eating at home is usually fun. I've learned quickly to focus on what I can eat and make it worth the while. Nice to hear from someone in the area.

nettiebeads Apprentice

Thanks for writing. Since I've been at this forum I've become bolder in addressing my celiac with drs and talked to the owner of our one and only health food store. The gluten-free offerings have been expanded so I mentioned that I probably am not the only one in the area with celiac disease. I'll probably post something on their bulletin board to start a group here. But it can't be an official support group because one has to be a member of one for two years before a new support group can be formed. And St. Louis is a little far to drive on a week night.

Anyhow, I agree with eating out to be a luxury. I love the experience of dining out, but to me the risks usually outweigh the enjoyment. But I've learned a few tricks to turn store bought stuff into tasting gourmet. Made chicken alfredo last night. I serve it over spagehtti sqaush. I poached the chicken in a broth made from herbox bullion cubes, diced up onion, green and yellow peppers, sauted that with some minced garlic. Added the Ragu classic alfredo to that. thinned it with a cheap white wine, simmered it to get the raw taste out, added the chicken and it was great! One of my favorite recipes. Sure keeps me from feeling deprived.

PreOptMegs Explorer

I am in St. Louis Missouri, and actually we play U of Missouri Rolla in basketball because they just joined our conference. WHat a small world.

  • 1 year later...
Hayleesdad Rookie
I am in St. Louis Missouri, and actually we play U of Missouri Rolla in basketball because they just joined our conference. WHat a small world.

I'm in South east MO.,but travel to springfield alot to record music.

Audiori J Newbie

St Louis here too. Wish there were more gluten-free friendly resteraunts here.

jennyj Collaborator

HHHHMMMMMM I have family in Rolla. I went to high school in Salem. I live in a small town close to Columbia.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



BFreeman Explorer

I live about 100 miles from Springfield (southeast); very rural, and work in West Plains. My two children live in Springfield so we are there a lot. I have been wondering if there were places there where people felt safe to eat. We usually just rely on Wendy's.

BF

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Midwesteaglesfan posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      0

      Going for upper endoscopy today

    2. - marlene333 replied to Grace Good's topic in Gluten-Free Foods, Products, Shopping & Medications
      3

      Bee balm lipbalm not gluten free

    3. - Mari replied to Jmartes71's topic in Coping with Celiac Disease
      4

      Related issues

    4. - Scott Adams replied to catsrlife's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      Patiently Waiting to See Results

    5. - catsrlife replied to catsrlife's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      Patiently Waiting to See Results


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,265
    • Most Online (within 30 mins)
      7,748

    Midwesteaglesfan
    Newest Member
    Midwesteaglesfan
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Midwesteaglesfan
      At 41 years old I have been fighting fatigue and joint pain for a couple months.  My family doctor kept saying nothing was wrong but I was insistent that I just didn’t feel right.  Finally after running several blood labs, one came back showing inflammation in my body and I was referred to a rheumatologist.  He was extremely thorough and sat with me and my family for a good hour asking questions and listening. He ordered X-rays of all my joints and more bloodwork.  He suspected some sort of reactive inflammatory arthritis.  My TTG (Tissue Transglutaminase) came back at 34. he told me to try going gluten free and out me on Salfasalzin to help the join inflammation.  Over the next couple days going gluten free and doing a lot of research and talking to people with celiacs,  we found that I should have an upper endoscopy for insurance purposes in the future.  I reached back out to my rheumatologist and expressed this concern and he got back to me stating I was correct and resume regular gluten diet and stop the medication until after that scope.     They were able to schedule me in for 2 days later.  I had been gluten free, or as close to it as I could be for about 5 days.  I know I ate some brats with it but wanted to use them up.  My symptoms had gotten slightly better in those 5 days.  I felt less fatigue and joint pain was slightly better(it had gotten really bad) so for these last 2 days I’ve gone crazy with wheat bread, pasta and such.  I’m hoping those 5 days didn’t screw this endoscopy up.  I can’t imagine after a life of gluten, my intestines healed in 5 days and after eating gluten again for these couple days,  my stomach hurts, joint pain is coming back up so I know the inflammation is there.   Hinesight after this diagnosis, I have had chronic migraines since my late teens.  Has that been a lingering symptom of celiacs all these years?  I’ve never really had the stomach issues, for me it came in heavy these last couple months as the fatigue, just always feeling tired and exhausted.  And the joint pain.     So getting in the car for the 2 hour drive to the hospital for this scope now.     Wish me luck!
    • marlene333
      To play it safe, use Vasoline Lip Therapy. No questions as to it containing gluten.
    • Mari
      jmartes, Thank you for sharing  more information with us. Most of us Celiacs whose problems do not clear up with in a few years have to decide what to do next. We can keep seeing DR.s and hope that we will get some  medication or advice that will improve our health. Or we can go looking for other ways to improve our health. Usually Celiac Disease is not a killer disease, it is a disabling disease as  you have found out. You have time to find some ways to help you recover. Stay on your gluten-free diet and be more careful in avoiding cross contamination . KnittyKitty  and others here can give you advice about avoiding some foods that can give you the gluten auto immune reaction and advice about vitamins and supplement that help celiacs. You may need to take higher doses of Vit. B12  and D3.  About 20 years before a Dr. suggested I might have Celiac disease I had health problems that all other Dr said they could not identify or treat. I was very opposed to alternative providers and treatments. So many people were getting help from a local healer I decided to try that out. It was a little helpful but then, because I had a good education in medical laboraties she gave me a book  to read and what did I think. With great skeptism I started reading and before I was half way through it I began using the methods outlined in the book. Using those herbs and supplements I went from hardly able to work to being able to work almost fulltime. I still use that program. But because I had undiagnosed celiac disease by 10 years later some  of my problems returned and I started to loose weight.    So how does a person find a program that will benefit them? Among the programs you can find online there are many that are snake oil scams and some that will be beneficial. by asking around, as I did. Is there an ND in your area? Do they reccomend that person? If you would like to read about the program I use go to www.drclark.net   
    • Scott Adams
      It's unfortunate that they won't work with you on this, but in the end sometimes we have to take charge of our own health--which is exactly what happened to me. I did finally get the tests done, but only after years of going down various rabbit holes and suffering. Just quitting gluten may be the best path for you at this point.
    • catsrlife
      My doctor didn't take the time to listen to anything. I don't even think she knows what it means. She is more concerned about my blood pressure that is caused by her presence than anything else and just wants to push pills at me. The so-called dermatologist wouldn't do a skin test. she prescribed all of these silly antihistamine skin meds. This lady didn't even know what she was talking about and said "they never turn out as celiac, they usually just say it's dermatitis so here's your meds," just like my regular quack. I'm trying to change insurance companies at the moment and that has been a battle because of red tape, wrong turns, and workers having wrong phone numbers. What a joke! The allergy blood days say I have a wheat allergy of .31. Hopefully it's just that and until I find a decent doctor and dermatologist, I'll just lay off the wheat anyway, since it gives me asthma, high blood sugar, and joint pain. So frustrated at this point. The rash on my back of arms/elbows is mostly gone. Both calves and chest have started up. smh. It comes and goes. It fades faster now, though, although my forearms still produce one or two bumps on each side. The itching has calmed down a lot except for the bump area. I have dry skin to begin with so anything affecting it just makes it crazy. i'm never going to eat wheat again. I don't care if they need it to produce results or if it is just an intolerance, allergy, or celiac. It gives me hell.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.