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Miserable Waiting For Test

smvillers

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smvillers Newbie
smvillers
Posted

I am being tested for celiac next week Tuesday and I am absolutely MISERABLE on my gluten filled diet. Before scheduling the test I was about 95% gluten free and feeling OK--going back to gluten full time is horrible. Pain, bloating, D, heartburn, tiredness, brain fog, anxiety, depression, can't sleep--I've got it all. I know you all have been there, I really just need to vent. In my brain right now, it doesn't even feel like I'm going to make it until Tuesday. I just burst into tears at my desk at work thinking about dealing with this for several more days. I was dealing with a lot of symptoms with over the counter meds and supplements and I'm not supposed to take any the week leading up to the test and it is making things even worse. My brain is just so messed up right now.

My worst fear is that because I was mostly gluten free for so long that the test won't show that I have celiac. I know I'm giving up gluten after Tuesday regardless, but I would really like the diagnosis. Is it weird to hope for a disease?

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shadowicewolf Proficient
shadowicewolf
Posted

were you full on gluten for at least 3 months before this test? If not it could give inaccurate results.

Not weird at all.

smvillers Newbie
smvillers
Posted
  • Author

were you full on gluten for at least 3 months before this test? If not it could give inaccurate results.

No, I have not been full on gluten for 3 months. I've been eating gluten once or twice a week for about the last 6 months (some weeks more, some weeks less) and am doing two weeks of full gluten for the test. I know I may get a false negative but there after a week and a half of full gluten, I know there is no WAY I could do it for 3 months. Oh well.

ravenwoodglass Mentor
ravenwoodglass
Posted

It sounds like your body is giving you the answer no matter what the tests results are. You may not have been back on full gluten long enough for a positive on the tests but it sounds like you are going to go back to gluten free when the tests are done. Do be sure to be strict about it when all testing is done. As you are finding out after being gluten free or low gluten the symptoms can be worse. I hope you recover quickly.

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      No she didn't because if I want to ask I have to pay 700$ for 1 hour appointment so I couldn't even ask. I read that fillers like cornstash can alter the result and tylenol contains it so that's why I tried to find someone who can answer. 
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