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- Threecents commented on Scott Adams's article in Frequently Asked Questions About Celiac Disease28What is a Gluten Challenge and How Long Must it Last?
Yah, I might die if I eat a slice of bread a day.- blood tests
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- Wheatwacked replied to MCAyr's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms3Hernia symptoms after gluten exposure
That should answer your question about gluten. Plus a dermatitis herpetiformis diagnosis is definative of celiac disease by itself. Now you need to decide if you need to to pursue a diagnosis. For your baby's health, I would assune both you and the baby have Celiac Disease. Eat gluten free and account for the fact that gluten free foods are not fortified... -
- marnie51 commented on Scott Adams's article in Latest Research3Will Commercially Available Gluten Digestive Enzymes Allow Those with Celiac Disease to Eat Wheat Crust Pizza? (+Video)
Why bother unless eating out and fear cross contamination? I feel that there is no benefit in buying a supplement that may or may not work. I get pretty sick when accidently cross contaminated so I avoid at all cost. Additionally, there is a level of contamination vs level of sensitivity with Celiac. Simply--Why trust it with a definite diagnosis of Celiac...- an-pep
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- Threecents commented on Scott Adams's article in Frequently Asked Questions About Celiac Disease28
What is a Gluten Challenge and How Long Must it Last?
Yah, there is no gluten in hand sanitizers, and if there was, the alcohol would not cause it to be absorbed through the skin. Proteins, such as gluten, are not soluble in alcohols.- blood tests
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- Threecents commented on Scott Adams's article in Diagnosis, Testing & Treatment9
New Blood-based T Cell Celiac Disease Diagnostic Test Eliminates Prolonged Gluten Challenge (+Video)
As an immunologist with Celiac, I am pleasantly surprised that a T-cell test would be sensitive enough to pick up celiac in gluten-free individuals, but I am skeptical that it will be made simple enough to do in clinical labs. Concerning eyesight improvements in celiac patients who go gluten-free, I have not experienced that, and I still need glasses. One...- celiac disease
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By Wheatwacked · Posted
That should answer your question about gluten. Plus a dermatitis herpetiformis diagnosis is definative of celiac disease by itself. Now you need to decide if you need to to pursue a diagnosis. For your baby's health, I would assune both you and the baby have Celiac Disease. Eat gluten free and account for the fact that gluten free foods are not fortified. Make sure to get lots of folate and Choline to prevent neurotube defects. My son was diagnosed when he was weaned by biopsy in 1976. Everyone called it just colicky, but his giant abdomen and green and yellow poop said otherwise. Oh, and dispite general belief, they do not outgrow it. If you are gluten free then your newborn will be gluten free and testing will not be positive for celiac disease, until the baby starts eating gluten and gets sick. Why put him through that? Gluten free household will give him the best health. Just before I started gluten free and one of the reasons I did was that I was lying in bed watching TV when I coughed. My belly was bloated and I felt sick as a dog. A bubble, looked like Bazooka bubble gum, popped out of my navel. I am male, but apparently umbilical hernias are not uncommon in pregnancy. Mine eventually resolved by itself. Low choline levels in pregnant women raise babies' risk for brain and spinal-cord defects, study shows "From 180,000 pregnant women screened between 2003 and 2005, the researchers identified 80 whose pregnancies were affected by neural tube defects. Choline, an essential nutrient found in egg yolks, soy, wheat germ and meats, was the only nutrient measured whose blood levels were linked to risk of neural tube defects." -
Appreciate the comment thanks yes seems my doc wants to go down the skin biopsy route for dermatitis herpetiformis as don't need to be on gluten-free apparently but we shall see what they say.
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Welcome to the community @MCAyr! One thing you need to know is that in order for celiac disease diagnostic testing to be valid, you must not have been on a gluten-free diet already. The first stage of celiac disease testing involves looking for the blood antibodies that are produced by the inflammation in the small bowel lining. Once you eliminate gluten, the antibodies begin to disappear and it takes weeks or months of being back on normal amounts of gluten for them to build up to detectable levels again.
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Hi currently being investigated for celiac; suspected dermatitis herpetiformis, low calcium and vit D, stomach discomfort and 2 episodes of awful stomach pain (docs think maybe triggered by pregnancy) Went gluten-free for 5 weeks was feeling great then last week accidentally had some in a sweet! Followed by 2 days of absolute hell and excruciating stomach pain and cramping below right of belly button. Since then the really bad pain has gone, but I've had sore to touch above my belly button and think I can feel a lump, was painful for a couple of days to point I couldn't sleep on sides. Docs palpated few days before I could feel lump, and felt nothing. Anyone had a hernia they didn't know about until their gluten reaction inflamed it? Or is this just another lovely gluten sensitivity symptom? Many thanks
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By Scott Adams · Posted
Your story is a powerful and heartbreaking testament to the profound damage that can be caused by undiagnosed celiac disease and the profound pain of not being believed or supported by family. It is sadly a common narrative within the celiac community to have suffered for years, even decades, while autoimmune conditions stack up, all while being dismissed. To answer your core question: yes, living in a environment with significant, constant gluten exposure, especially from airborne flour in a home where milling and baking occurred, would have created a perpetual state of autoimmune activation for you, even beyond the direct ingestion. This chronic exposure is strongly linked to the development and exacerbation of the very autoimmune disorders you describe—Migraines, Meniere's, Hashimoto's, and more. Your body was under constant attack, and the lack of care and understanding from your family compound that trauma significantly. It is not your fault. Many in the community share similar stories of a cascade of illnesses finally explained by a celiac diagnosis, often coming too late to prevent irreversible damage. While I cannot speak to the legal aspects of your inheritance situation, your experience with the medical neglect and the lasting impact of your childhood environment is deeply valid and shared by others who understand this unique type of suffering. Thank you for having the courage to share your truth. Celiac.com has published a book on our site by Jean Duane PhD called Gluten-Centric Culture, which covers many of the social aspects of having celiac disease: This chapter in particular covers issues around eating with family and others - Gluten-Centric Culture: Chapter 5 - Grabbing A Bite Together:
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