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Ok So Now We Continue To Wait

cassidyred

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cassidyred Newbie
cassidyred
Posted

So my 14mo old sons tests all came back negative for whatever they tested for (8 biopsies)in addition to crohns and celiacs. So there is no explanation for the ulcerations and swelling at this moment in a medical sense. GI doc said it could of been something simple like a bacterial infection as the ulcerations were all new. She also said it could be the very beginnings of celiacs and that she is more than happy to check again in a few months. i am breathing a cautious sigh of relief! my 30mo old tested negative as well. i am going to continue to give a gluten reduced diet as opposed to gluten free since i have seen no symptoms from either child. i appreciate this site very much.

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Goobieville Newbie
Goobieville
Posted

Just a question... were your children on a reduced gluten diet right up until they were tested?

Roda Rising Star
Roda
Posted

How are they going to treat the ulcerations? With the doctor stating it could be the early start of celiac, I'd be inclined to try the diet. Why does she want to wait until there is more damage. What kind of symptoms were your children having? There are some people that don't have ouward symptoms that indeed have celiac. love2travel comes to mind.

cassidyred Newbie
cassidyred
Posted
  • Author

Just a question... were your children on a reduced gluten diet right up until they were tested?

nope,, wasnt even a thought in my mind, we have been treating him for reflux which is why the endoscopy was being done to check his esophagus and such. the ulcerations were a surprise.

cassidyred Newbie
cassidyred
Posted
  • Author

How are they going to treat the ulcerations? With the doctor stating it could be the early start of celiac, I'd be inclined to try the diet. Why does she want to wait until there is more damage. What kind of symptoms were your children having? There are some people that don't have ouward symptoms that indeed have celiac. love2travel comes to mind.

My 2yr old daughter was tested last year because of her constant diarhea but her diagnosis ended up just being 'toddlers diarhea' which she has out grown for the most part unless she has to much milk.

my son had reflux since birth along with a milk allergy. seems to have a soy allergy as well. and because he hadnt outgrown the reflux as most babies tend to, the gi doc suggested the endoscopy and 24hr ph test. there is no signs of reflux now so i guess he must of finally outgrew it. gi doc said its a slight possibility its the start of celiacs but since my other child is neg as well as me i am not to worried about that but the ulcerations are definatly a mystery. i asked about testing my son again just in case and she said she would be happy to but if he is gluten free then it wont show on a test.

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      No she didn't because if I want to ask I have to pay 700$ for 1 hour appointment so I couldn't even ask. I read that fillers like cornstash can alter the result and tylenol contains it so that's why I tried to find someone who can answer. 
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