Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Horrible Insomnia Rant (With A Question)


HopefulMama23

Recommended Posts

love2travel Mentor

I didn't even have the Hashi's antibodies in my bloodwork, and my TSH, T4 and T3 were all in normal range. My diagnosis was based on the swelling in my thyroid and the nodules. Becuase there were no antibodies, I am still not totally convinced that it wasn't post partum thyroiditis, which I understand can present very similarily to Hashimotos with the swinging in between hyper and hypo stages. I had a baby one year ago and this all started a few months after the birth.

We'll see what the new endo thinks.

Hmmm....interesting. I see my doctor next week so will ask him about it.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



HopefulMama23 Explorer

Am curious too which homeopathics you tried for insomnia. There are a variety given for different causes of insomnia. As I recall I remember one that is good in cases of "fear of never falling asleep." Besides caffeine, mint products will make homeopathics not work--and probably other strong herbs as well.

Yolo, I see a homeopath and have a constitutional remedy, so first I tried that. And while I think it may have helped take the edge off, it did not solve the problem. And the problem continued to get worse. So then I bought one of those generic catch-all remedies (I can't remember the brand) at the store and tried that. Again, I think it helped, but only a little. And the problem didn't go away. 0

I am actually starting to study homeopathy- it's so interesting and in many ways my homeopath has helped me immensly through this whole journey of being sick, having celiacs, having Hashimotos, etc. I emailed her last night as I was trying to fall asleep and asked her to retake my case based on the insomnia and see if she comes up with a different constitutional for me. We'll see.

jerseyangel Proficient

I found a homeopathic remedy called "Calming" by Heel. I use it 3 or 4 times a day and have been sleeping better. I was having terrible insomnia, sometimes not sleeping at all or for just a couple of hours. This works better than "Calms Forte" for me and is completely gluten-free.

pricklypear1971 Community Regular

Do you need a specific test for Hashimoto's or is the TSH bloodwork the required indicator? Had my physical and bloodwork done in August and was told my thyroid was "normal".

It's specific, called TPO.

pricklypear1971 Community Regular

I didn't even have the Hashi's antibodies in my bloodwork, and my TSH, T4 and T3 were all in normal range. My diagnosis was based on the swelling in my thyroid and the nodules. Becuase there were no antibodies, I am still not totally convinced that it wasn't post partum thyroiditis, which I understand can present very similarily to Hashimotos with the swinging in between hyper and hypo stages. I had a baby one year ago and this all started a few months after the birth.

We'll see what the new endo thinks.

Uhm, you need a specific test for this called TPO. I've never heard of it being diagnosed symptomatically. Perhaps it can be, but never heard of it.

love2travel Mentor

It's specific, called TPO.

Thank you. I will request it. I would do anything to conquer this insomnia once and for all. Perhaps this is it...

Takala Enthusiast

I sleep when I am tired, instead of trying to sleep whenever everybody else is. Heck, the **** dogs sleep all day, snore snore snore. The cat is asleep now. I've seen the horses go down for naps mid morning to mid afternoon after they were up grazing at night, why fight the trend ? My spouse has to get up really early sometimes to talk to people in different time zones, then he's down for the count by 4pm and sleepy. It's a hundred degrees out now in the sun, I'd be out like a lightbulb if it were not for the A/C ; ) Yet the myth persists we should get up at 6 am fresh and perky. pffffffffffffffffffffffttttttttttttttttt


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



YoloGx Rookie

Yolo, I see a homeopath and have a constitutional remedy, so first I tried that. And while I think it may have helped take the edge off, it did not solve the problem. And the problem continued to get worse. So then I bought one of those generic catch-all remedies (I can't remember the brand) at the store and tried that. Again, I think it helped, but only a little. And the problem didn't go away. 0

I am actually starting to study homeopathy- it's so interesting and in many ways my homeopath has helped me immensly through this whole journey of being sick, having celiacs, having Hashimotos, etc. I emailed her last night as I was trying to fall asleep and asked her to retake my case based on the insomnia and see if she comes up with a different constitutional for me. We'll see.

Do let me know how it goes. I agree, homeopathy is both very helpful as well as interesting. Just got a book on it that is helping me a lot.

Meanwhile I know what its like not being able to get to sleep. Have had that problem for years. Everything seemed to conspire to create it--the gluten and salicylate sensitivity as well as old injuries to my sacrum and L- 5 vertebrae with sciatica at night not to speak of too much drama going on in my life as an infant.

So like the last responder I eventually learned to just go to bed really late and get up late and do what I do in the wee hours of the morning and call it "normal".

But now I am trying to break the cycle. I do think that hormones are a factor, as well as habits, fears etc. pure and simple. Or should I say, not so simple??

At least the homeopathics are making it so my body isn't jerking around at night when I lie down. A huge improvement. Hypericum perforatum thus is helping a lot... Next I also want to try out some cell salts since I am very low in minerals even though I have been taking a ton of them for years.

Skylark Collaborator

Skylark, you're right. I see a new endo Monday and I'm prepared to push. Hard.

Good luck! I know how awful the insomnia is because my thyroid went a little bonkers this spring.

There are actually three autoimmune thyroid antibodies. TPO is the most common, but you should also be tested for anti-thyroglobulin, and possibly TSI. TSI is the Graves' disease test.

Also, "normal" for TSH should be between 0.5 and 2.5. It used to be that below 5.0 was considered normal, and some ignorant doctors still use the old range but most people with TSH at 5.0 feel pretty sick.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,074
    • Most Online (within 30 mins)
      7,748

    ImVenus
    Newest Member
    ImVenus
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Jmartes71
      EXACTLY! I was asked yesterday on my LAST video call with Standford and I stated exactly yes absolutely this is why I need the name! One, get proper care, two, not get worse.Im falling apart, stressed out, in pain and just opened email from Stanford stating I was rude ect.I want that video reviewed by higher ups and see if that women still has a job or not.Im saying this because I've been medically screwed and asking for help because bills don't pay itself. This could be malpratice siit but im not good at finding lawyers
    • AlwaysLearning
      We feel your pain. It took me 20+ years of regularly going to doctors desperate for answers only to be told there was nothing wrong with me … when I was 20 pounds underweight, suffering from severe nutritional deficiencies, and in a great deal of pain. I had to figure it out for myself. If you're in the U.S., not having an official diagnosis does mean you can't claim a tax deduction for the extra expense of gluten-free foods. But it can also be a good thing. Pre-existing conditions might be a reason why a health insurance company might reject your application or charge you more money. No official diagnosis means you don't have a pre-existing condition. I really hope you don't live in the U.S. and don't have these challenges. Do you need an official diagnosis for a specific reason? Else, I wouldn't worry about it. As long as you're diligent in remaining gluten free, your body should be healing as much as possible so there isn't much else you could do anyway. And there are plenty of us out here who never got that official diagnosis because we couldn't eat enough gluten to get tested. Now that the IL-2 test is available, I suppose I could take it, but I don't feel the need. Someone else not believing me really isn't my problem as long as I can stay in control of my own food.
    • AlwaysLearning
      If you're just starting out in being gluten free, I would expect it to take months before you learned enough about hidden sources of gluten before you stopped making major mistakes. Ice cream? Not safe unless they say it is gluten free. Spaghetti sauce? Not safe unless is says gluten-free. Natural ingredients? Who knows what's in there. You pretty much need to cook with whole ingredients yourself to avoid it completely. Most gluten-free products should be safe, but while you're in the hypersensitive phase right after going gluten free, you may notice that when something like a microwave meal seems to not be gluten-free … then you find out that it is produced in a shared facility where it can become contaminated. My reactions were much-more severe after going gluten free. The analogy that I use is that you had a whole army of soldiers waiting for some gluten to attack, and now that you took away their target, when the stragglers from the gluten army accidentally wander onto the battlefield, you still have your entire army going out and attacking them. Expect it to take two years before all of the training facilities that were producing your soldiers have fallen into disrepair and are no longer producing soldiers. But that is two years after you stop accidentally glutening yourself. Every time you do eat gluten, another training facility can be built and more soldiers will be waiting to attack. Good luck figuring things out.   
    • Russ H
      This treatment looks promising. Its aim is to provoke immune tolerance of gluten, possibly curing the disease. It passed the phase 2 trial with flying colours, and I came across a post on Reddit by one of the study volunteers. Apparently, the results were good enough that the company is applying for fast track approval.  Anokion Announces Positive Symptom Data from its Phase 2 Trial Evaluating KAN-101 for the Treatment of Celiac Disease https://www.reddit.com/r/Celiac/comments/1krx2wh/kan_101_trial_put_on_hold/
    • Scott Adams
      BTW, we've done other articles on this topic that I wanted to share here (not to condone smoking!):    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.